My Neurologist just last week put me on 30mgs of Cymbalta for the Fibromyalgia. To me both Cymbalta and Lyrica have the same side effects. Which aren't the best. Then my GI Dr, put me back on...
/community/emoticons/shakehead.gif /community/emoticons/shakehead.gif The Dr said NOPE. I don't want to take a chance of your body going through anymore side effects to your Nervous system. So...
I'm switching from Remicade to Cemzia, as my whole body had really bad side effects from Remicade. well i'm supposed to be switching to Cemzia, but found out yesterday, that I now have no insurance....
sooper, you're not alone at all. Exact same thing happened to me. Started I swear on the same day I had my 2nd treatment of remicade. (sept 1st). It got worse as the days went by. Both feet, toes,...
opsssss Nanners, sorry about that. For some reason I had *C* on my brain... Thank you...
Good Morning Jean, Yep it has to be better, or else someone is going to have to have a really good answer!!! lol. See my husband and I said that about this year, as the last 2 years, we had to deal...
Good Morning and thank you Nanners., for the idea with Vitamin C. I read this after I WAYYYYYYYYYYY over did it yesterday outside! I was leaf blowing etc, and kept taking my Oxycodone, to help deal...
I do not have to go to Mass General or Brighams Womens Hospital in Boston, as i'm going with a local nuerologist instead right now. He believes its Fibromialgia that is causing all the pain etc in my...
Scared to death this week, As all 4 of my Dr's saw so many signs that pointed to MS!!!! But got a HUGE relief that it's NOT MS. But after looking up Fibromialgia, scared to death about it as well....
So instead of Humira, the Dr and I are going for Cimzia instead. To me it's whats the BIG DIFF, all of them have the same bad side effects. So lets go for it. Hugsssssssss to all. Sally...
Just Came back from the Gastro Dr's appt. I had printed out what you said about your nervous system etc.I told my Gastro Dr, some of what was said on this post. This is way over what he is able to do...
Knowing that you're going to Mass General, I some what wish we lived closer. This way we could compare side effects etc, I live about 1 1/2 hours from the Mass/NH border. 495 to RT 95 then up...
I also meant to add, that I will mot be tqaking remicade anymore. I'm switching to Humira to see what happens. SAlly...
((((((Hugs)))))) for you!!! You're going through exactly what i've been going through since Sept 1st!!!!! Except my right side is far worse then my left side. My thought also went either to a side...
I've had 3 treaments of Remicade, The first one was on August 19th, after being brought to the ER by ambulance, because the pain that I was having was more intence then something I ever had before....
Jennifer, Yep that's the one I was thinkiing about. The Dr and I decided to try Humira first, and if that doesn't do the job, or if my body doesn't agree with it. I will thern go to Cimiza. Steroids...
Jennifer, I also meant to add, that when my stomach is not being nice, that my snacking on Rice Chex's will usually help alot. Lets just say Rice Chexs and I have become really reallly good friends....
Hi Jennifer, First Congrats!!!!!!! on getting married. As far as going off Humira with out telling the Dr, I know it says not to do that. But I am not sure of the reasons why. I've only had Crohns...
Jennifer, First off CONGRATULATIONS !!!!!!!!!!!!!! on getting married. Wishing years and years of happiness..... There is another injection besides Remicade or Humira. Ummm it starts with the letter...
I hope Remicade works for you, It had been working for me, right after the 1st treament when I was in the hospital in August of 2009. Thats when I was told that I had Crohns. The 2nd treatment on...
Hi vls, My pain is not all from the muscles, it started as nerve pain/damge. First in my fingers on both hands, then went to the plams on both hands. It has now made it so that my muscles are just...
I used to take Celebrex and Mobic, for Joint pains etc. Switched to Mobic, about 10 years ago when things started coming out about side effects with Celebrex. Mobic worked wonderful. But I just asked...
Hi Miss Cris, Thanks for the hugs, (((Hugs right back to you))) Man I look at what you've been through and others on here, and it's like what the hell, I have no right in complaining at all. Yikes...
Good Morning Trigirl, Sorry that you had the same reactions, but least i'm not the only one. Thought maybe I was going crazy. Yep like you I am scared to try the other 2, I mentioned for Crohns, but...
Hi Frogeleita, Thanks for replying, The sweating happens to me all the time. It used to happen at night, but that was me going through *the Change*. lol. Now it's totally different. I sweat buckets,...
Thank you for replying vls, yep thats why i'm afraid of Humira etc, but it's like one has no choice, it's either take something for the Crohns to try and keep it in check some what sorta. Then deal...
Yes my husband had to do that,. He was diagnosed with Small Cell Carcenoma Lung Cancer 2 years ago. This happened to him because of the prednisone he had to take when he was being given Chemo for the...
Luckystar01, you're in my thoughts and prayers...... sending you BIG HUGE ((((((((((((((((((((((HUGS))))))))))))))))) From New Hampshire...
Thank you Vicki for the reply. I'm just hoping that someone here on the Forums, or if someone knows someone with these side effects, Will let me know. Also wondering if anyone had these RARE side...
Quoted from a Remicade phamplet * Nervous System* "There has been rare cases where people taking Remicade or other TNF blockers have developed disorders that affected their Nervous Sytem. Signs that...
when I was younger (Middle school) I made Egg Nog at home for breakfast. Using raw eggs, milk and spices. I never onve got sick from it. But then again the Raw whole milk with the cream on top came...
I' was diagnosed wit severe Crohns in August of 2009, but i've had 3 remicade treatments. The first 2 i had no side effects, well except for being extremly fatiqued. The 3rd treament Sept 30th....
See I am the opposite of you, even with taking Amodium AD 2 pills 3 X a day, and only eating Rice, Banamas, and Rice Chexs. This has been going on for over a week, and I need to call my Dr every day...
I was told that I had Crohns in Aug of this year. I had areally bad reaction to my 3rd treatment of remicade on Sept 30th. It attacked my arthritis that is every where in my body and made it 10 X...
Thank you for your reply Carnival Huckster, I didn't have any of the signs that have been posted on this thread last week including yours at all. The only one besides bing really extremely fatigues...
Hi jeanneace and pb4, Thank you both of your replys. jeanneace I never got any of those symptons last week. Well except for being extremly fatigue. Which isn't much different then since I found out I...
Can anyone, give signs to look for, when you're headed towards a flare up. I had one this week, (Monday - Today) and now that I had time to think about it, I realized that I was headed towards one...
Thank you pillpopper, Yep I was thinking the same thing about the side effects. Except for the night of my last remicade treatment (sept 30th). When I thought the pain that brought me to the ER on...
Good Morning, I was diagnosed with Crohns in the beginning of August (2009). I am 51 years old. The Dr's tried the steroid route with me my first 10 days in the hospital, but they didn't work. On my...