My apologies Nanners – didn’t mean to violate any rules. I made changes to my post. Please see my signature if you are interested in reading more about me. *You may only put your blog in your...
Hi all! I wanted to share my blog with you all. It’s about the trials and tribulations of living with Crohn’s disease. See my signature for my blog address. Thanks for your support! *Sorry, it was...
Thanks for the replies all - keep em coming. I'd love to kickbox again, but the prices at the local club went up 40% and I just can't justify spending that kind of money. Maybe things will look up...
It’s great to hear that you (almost30inMI) were able to at least start with the P90x. The Shaun T workout is a beachbody workout as well and is what I am starting this evening. The entire workout...
Oh I can walk quite well. I have no real physical limitations with regards to my ability to walk etc. The only limitation I have is if I have to make a quick dash to the facilities I don’t like to be...
Hey all - I am curious what some of you do to help keep the weight off. I am by no means over weight but since going on the Remicade I have gained about 35lbs and would really like to be at my goal...
Thanks for your input. With regards to the yeast based probiotic florastore - this probiotic is actually REALLY bad for people who are on Remicade as it can cause Fungemia. My pharmacist originally...
Well I went and purchased a brand that I had taken years ago - I never thought it did much good on its own (but I'm on Remicade now) to help with D. One thing I do know is it didn't cause D and I am...
thanks for the response pb. It's getting extremely expensive testing all of the different probiotics. I haven't really found one that has agreed with me either. I'm thinking I may stick with a brand...
Hi all! So I have some questions. Hopefully someone can provide me with some insight. I submitted a urine sample on Thursday and the doctor called me this morning to tell me I have a bladder...
I know about the whole theory of “You get what you pay for” with regards to probiotics. I definitely didn’t cheap out. The stuff I purchased was $40.00 and is a 30 day supply. It has to be...
I actually started taking probiotics because I was having yeast problems and it was recommended that I incorporate something into my regime. I'm wondering if perhaps I should try something with fewer...
Thanks for your reply - I was doing really well with having no D since I started my remicade and then after I started the probiotics things started getting all gurgly and upset. I'm wondering if I...
So I recently incorporated probiotics into my diet along with Liberte organic yogurt. The probiotics I had recommended to me are called Ultimate Flora and contain 50 billion live bacteria -...
EMom - thanks for your reply. I haven't had any issues with the Activia, but I have thought about purchasing something else. I am in Canada and not aware of any brands of natural yogurt I could...
I'd love to make my own but I am so busy right now that making it really isn't feasible. Also, I live in a basement apartment and don't have a full size fridge to house what I make. I think I am...
I will advise him when I see him next week that I have been taking it. I'm hoping I can stop taking it by then....
Thanks for the responses - I was just going by what the back of the bottle said. I think I will taper it down though and see how I tolerate it. Also, the bottle of extract I have has Oregano Oil in...
Well.... read about it some more and decided to give it a try today. I put about 8 drops of the extract in my juice at lunch and again at dinner. Now, I am experiencing EXTREME D (The remicade pretty...
Hi All! I've been fighting a yeast infection since January due to a long course of Flagyl (4 months). Anyhow, I've been told I should grab some Grapefruit Seed Extract and take it orally for 14 days....
I've had this done as well as a localized Small bowel enema where they stick a tube down your nose into your stomach and small bowel until it reaches the TI. This is where they found my stricture....
I've never had pre meds with my infusion and I feel a little tired during the infusion because I'm sitting there doing nothing but I'm ready to get back to work right after the infusion. Do you have...
I hear ya on the carbs and that is what I'm trying to avoid because I am gaining weight and I don't want to. I am always hungry because of the carb over load in my diet. I think I will try some...
Yes - they cultured. Now they have run a blood test to see if I may have Fungemia. Ever heard of it?...
Oh, I've been avoiding red meat for years now. I googled the diet and it sounds like I am pretty much following the diet now. I don't eat a lot of high fiber foods - never really did because they...
I'm still experiencing troubles and Diflucan combined with OTC kits aren't working. I had read that fungal infections are a common thing with Remicade. Hoping someone else may have some insight....
How long has it been since your surgery Lamb?...
I can eat canned fruits however I find that the "juice" they are packed in is chalked full of sugar. I suppose I will just buy my fruit fresh and puree it into a smoothie and have that as a snack. I...
Hi all! So, I have been struggling with my diet the last little while. Since going on Remicade my bowels have improved significantly and I can pretty much eat whatever I want (within reason of...
Hi All! I'm currently on Remicade - my last dose was 300mg and my nest infusion is being upped to 400mg and then changed to a 6 week cycle. I've been experiencing recurring vaginal irritation for the...
Again, thank you for your reply. I have heard that the section I am having removed is quite common. Apparently, Crohn’s likes to hide out in this area. The reason I am choosing to have the stricture...
Hi there! Thanks for your reply. My GI said the stricture is in my small bowel, close to where it connects to the colon. I used to have problems with certain foods, but since starting Remicade I have...
Hi All So a little update. September of last year developed a fistula, ultimately formed an abscess that I had surgically drain twice and a seton put in. I started Remicade in January of this year...
Well it's good to know that drainage is normal even though I'm on the remicade. I have noticed that the drainage has increased but no more than before the remicade infusions started. I find that the...
Hi all! Ok so here is a little background for those of you who aren't familiar with my case. In September I developed an abscess and ultimately had to have surgery to have a seton put in and a second...
Hi Octobergirl I'll tell you a little about my recent problems - I was in a flare from August until a week ago when I had my first Remicade infusion. It didn't matter what I ate I was in large...
Has anyone ever tried the probiotic pearls and had success?...
One thing I may suggest for those of you on Nexium - I was on it briefly and it dropped my B12 levels so low that I was experiencing fatigue, dizziness, nausea, and body aches. This is especially...
I'm glad I had a thick head of hair as well. I've noticed a difference in my hair texture since my first remicade treatment last Thursday. I don't have to wash it twice a day anymore - but the hair...
How many of you cd'ers experience hair loss - enough to need to clean your brush out every other day?...
njmom - I agree. I don't plan on introducing anything into my diet until I have my loading doses of remicade - I am also going to speak with my GI about his recommendations. As for the Lingzhi - I...
Great to hear from everyone - would love to hear more. What do you all find most successful? What about those with peri anal crohn's specifically?...
Things seem to be looking up for me. The pain is still there but the swelling has gone down. Sher - are you still on Remicade? I just keep thinking - 5 more days until my treatment. I had to stop the...
I've been reading that a lot of you are including a probiotic into your daily regime. Say I want to purchase a probiotic - how would I know it's good? There are so many out there that I really...
Very good to hear! Here's hoping it works for me that well!...
Bump...
mv4au - how has your abscess felt since the remicade? Has it increased in size or caused you any more pain? Are you currently on any antibiotics for the abscess? Becoming Undone - thanks for the tip...
I was on Salofalk and Pentasa - after reading this I now know that all of those things I was feeling were side effects. Pain on the left side kidney area of my back Maroon stains on the toilet seat...
Hey all, was just curious what vitamins and supplements you all are taking and which ones do you find work best for you? Also, if you could explain the function of the vitamin or supplement (why you...
I just have to get to my remicade infusion and then a couple days after and I will stop taking it as well. I totally agree with you, I HATE antibiotics. Has anyone ever heard of Flagyl causing...