Thank you so much for the advice. I did switch to the enemas for a while but the same thing keeps happening. Will look into the other meds thanks...
Thank you!...
Good Afternoon, I would really appreciate some advice. My Crohn's colitis is under control - to an extent. As undercontrol as it is going to be with medications currently available (I've tried them...
Hi, I am due to start Cimzia tomorrow after a two week break from Humira. However, both my GI and rheumatolgist were concerned about me taking Cimzia whilst still on Thalidomide. I have tried to...
Hi everyone, I hope that someone has experienced the same and can give me some advice. I've had Crohns disease for 14 years, and after briefly going back in aziothioprine last year, I have been...
Hi everyone, I'm 23 years old and have had Crohn's disease for 13 years. I have tried every treatment going and... have reached the end of the line. There's not much that works for my bowl now but I...
Thank you for your replies. It's only been four days of not being allowed to contact him and I'm finding it incredibly difficult......
Hi all, Thank you for reading this and I would very much appreciate some advice. I have been with my boyfriend for 3 years and we have also been so happy together. But within the space of a few...
Thank you for all you comments... I will definitely have to start keeping a food diary and may ask the doc about bacterial overgrowth. I did ring earlier in the week. And, to put it bluntly, the docs...
Thank you for the replies. I'm on Infliximab every 6 weeks, have recently come off methotrexate because of side effects I have suffered for 8 long years, but my symptoms haven't changed. I had the...
Hello everyone, I'm 22, and have suffered with Crohn's disease for 11 years now. I have been pretty stable on Infliximab for about four years, never perfect but things don't get in the way too much....
Hi Are you on any kind of antibiotic at all? I had this really bad when I was one - not sure which one it was now but I soon came off it after this! Best wishes SKR ...
Thank you for your replies There has certainly been times when the tiredness has been severely influenced by disease activity but at one point, I did get very depressed and looking back I think that...
When I was diagnosed ten years ago, at the age of 10, my bed was my favourite place to be - and it still is. Is it just me, or do other people long for their bed at any time of the day, given any...
Hi Has anyone tried Fybogel? Is it normal to feel worse before feeling better and how long did this take for you? Best wishes SR...
Hello everyone :) I'm a 20 year old with Crohns Colitis since the age of ten. I need a little bit of advice on concealment. I'm soon to be going on holiday with my boyfriend and am a little bit...
Hi everyone I'm 19 and have had Crohn's disease since the age of 10 :(. I was just wondering.. what tips do people have to hide the noises, smells and all the nasty horrible symptoms that come with...
Hi I have been on methotrexate for a good eight years but it had to be stopped because of the nausea I was experiencing. I have also been taking Infliximab for nearly two year in November... I'm a...
Hi I have been on methotrexate for 8 years and came off it 3 weeks ago. It was just stopped - no tapering. Since then I've been really itchy- there is no redness of the skin or anythin like that -...
Hi Thank you. I do feel a lot calmer about things now. And yes so far the only test I have had is where they blow the puff of air into the eye. I guess when I see the eye specialist I'll know a lot...
Hi I'm 19 and have similar issues - to the point where I don't even wish to tell anyone that I have Crohn's - especially friends you go clubbing with and potential boys. It's not that I think they...
Hi No I haven't been on any pred lately...I was on it quite a bit when I was younger but it has been a while now... Did they inveisgate your eyes and found that everything was fine? Best wishes SKR...
Hello all Has anyone ever experienced increased pressures in the eyes due to taking methotrexate. I'm a little concerned because I have been taking it for a good 8 years and my pressures had never...
Thanks for the advice! I take 2 ml of folic acid everyday..except methotrexate day. It's supposed to help with the nausea right? :-/ I will definitely try some of things suggested. Anything that will...
Hiya I have been on methotrexate for seven years now and have always taken the weekly injection in my stride. But recently its really been getting me down. I feel sick before I have it ( no doubt...
Hi Everyone, I've been on steroids (Prednisolone) many times in the past and just recently had a two week course. Just a boost - no tapering just to calm down some inflammation. Although the hamster...
Its really insightful reading your replies...some of u are very fortunate to have ppl so supportive.. which gives the rest of us a bit hope. Take care...
Hiya Everyone Crohns colitis 18 years diagnosed 2000 Currently on Infliximab and methotrexate I just wondered how Crohns has affected your relationships.. if at all! You see to me, my Crohns is a...
Thanks everyone thats really useful.. SKR 18 YEARS diagnosed 2000...
Hiya I'm going through a bit of a rough patch and just wondered if people know of natural meds that have worked really well for their symptoms. I'm on peppermint tea and although it doesn't make me...
Thanks everyone..will take advice..and wil try to stop sleeping! lol Take care xxx...
Hiya all, Im currently in remission with Crohn's of 8 years, welll kind of, still spend more time in the bathroom than I should but it doesn't interfere with things too much. Thing is, I'm always...
I gained weight after a flare by drinking the supplement drinks you can get from your doctor - Fortisip and Enlive. Not to bad to drink, they do them in lots of different flavours now. It really...
I have been really looking forward to this weekend..I haven;t got work and planned a weekend of partying! But today my Crohns disease has decided to riun all that...even had an accident when out...
Thanks for the replies guys...has helped! xxx...
My Crohn's has been slightly more active over the last two weeks, and although I only work Saturdays because I am a fulltime university student, I had a day off..jus wasn't good.. In all I've had...
I've been on Infliximab for a year now, and although it works great and has given me a life back, I still have to use enemas to keep things at bay. But my doctor has jus informed me that he doesn't...
Hiya I've been on methotrexate by weekly injection for five years now and I must say it's been the drug that has worked the best for me. It gave me two years of absolutely brilliant health - no...
Thanks everyone! xxx...
Hiya Im 18 years old and was diagnosed with Crohn's when I was 10. I have currently recovered from a fairly bad flair that lasted around 12 months will the help of infllximab, and still haven't...