I get them in my mouth and throat very bad too once soo bad i could hardly breath my throat was so swollen. I use rinse too you have to be careful too once mine got infected and abcessed. My face...
so sorry to hear i just got out seems like we are always in a dr office or in emergency lol. Hope you are feeling better soon and hopefully things settle and you can avoid surgery. GL wishing you the...
I am going for my 3rd remi infusion on March 25th so i guess were in the same boat, i just got out of the hospital last week after another week in there for another flare so i am on a tapering dose...
the SBFT is the worst i think, but barium enema, colonoscopy prep are bad too......I've had really bad scopes that hurt but luckily my new GI is great and it doesn't hurt bad (sedation helps too but...
well after the emerg room thursday, scope friday i was admitted into the hospital and finally got home last night. still not great today. I went from the worst D ever to not going (Never happens to...
wow its so different in the states. Im in canada i was told the cost of the two are about the same just the humira i would have to inject it. I am on remicade and my infusions are just under $7000....
ohio have u tasted that crap??????? lol sorry it makes me gag lol......flowery i have diab too thanks to pred. I have to do 4 needles a day both slow and quick insulin. however, on those really bad...
well im headed back to the hospital, dr is doing a scope at 1:30 today without a prep just did an enema (not sure why nothing except water came back out) no time for a prep going to see if he can see...
im from canada never heard of it before but just looked it up online and it is suppose to be. Says it is for travelers D...
welllll went to the ER and the travelling joint pain they told me i wasn't crazy lol they think it is from the remicade. Had a bunch of x-rays noobstruction (well there is a shocker only been going...
I am a law clerk and work for a title insurance company in ontario, I have been off work since september 2007. I was on LTD through my company and then they cut me off sept 2009 telling me i can go...
My crohn's has been out of control for over 2 years and my WBC is through the roof. It elevates when your body is fighting off something usually a sign you have an infection (in crohn's your immune...
My thoughts exactly prednisone sends my blood sugars into the 30's and had me hospitalized i would have your levels checked asap high sugars are dangerous....
been on cholestramine before it didn't really do anything. I don't take imodium either cause then i don't go for a week till my system explodes and then i live in the bathroom for a couple days but...
I had endometriosis and crohn's and was on diff drugs to control the endo (tons diff pills, depo etc etc) i have 2 babies from the pill cause my body just got "use to" it and it didn't work on me....
Hello its me again, So sorry to be always whining on here but im so sick and i just can't get this under control. I have been having constant D that is bright yellow and burns badly since january...
I am Canadian, live in Ontario canada....
I've been on 200mg imuran for over a year now it does not keep my crohn's in remission. I have recently just added remicade (had my first 2 infusions) so hoping that will work and it can keep me off...
My mom and my husband are BOTH bad for this. They don't read anything and they both think that i am sick because i do not eat right. I don't eat vegtables and if i just ate them all the time i'd feel...
Im not sure if you have it where you are but im from Ontario Canada and my new GI uses this stuff called PICO SALEX for prep. Box has 2 packets in it take first one mix it with a cup of water drink...
I was on LTD from work until sept when they decided that i can return to work as there is a bathroom at work so that solves my crohns disease problem. I haven't returned cause im sick all the time...
I get aptheous ulcers in my mouth and throat (crohn's ulcers). I have used a stroid ointment, inhaler, laser treatment and high dose pred to get rid of them. They are painful and peel and bleed (like...
oh and as far as being over weight only with crohn's in large intestine. I am overweight and my crohn's is in my small intestine, mouth and throat. I malabsorb my food all the time. I am vit d and...
hi M&M, I use to be very thin until i got sick. I was not officially diagnosed until recently but i have suffered for years and told it was IBS, then colitis, then crohn's then lupus and then crohn's...
fiber does not do well for me either, when i was younger the doctors told me to take fiber supplements to increase the amt i intake and it make me 100 times worse. over the years i just watched what...
Question????? I get sick eating most veg esp greens (salads come out the same way they went in) does juicing make it so you can digest them?????? If so could be something to try cause i loose alot of...
I get the same thing esp right before i am going to be sick. I get goose bumps all over. People know i am going to be sick i don't have to tell them they can look at me and know im sick alot of the...
well 2nd infusion done, still have the rash, now have a head ache and some joint pain and really tired. Had a fever & chills last night but that broke. Not as tired as yesterday so hopefully on...
june, i waited years for a diagnosis, i was wrongly diagnosed for years and then i got really bad 2 1/2 years ago (how long i've been off work) and just got a formal diagnosis. I have more than just...
you may be one of those unfortunate people like me that flares the minute i get down to a lower dose of pred. On high doses of pred the D stops and i begin to feel better i have been on 200 mg...
I'm not sure i know your body can build antibodies to it not sure if there is a time limit to it i just started remicade 2 weeks ago go for my 2nd infusion tomorrow. Welcome, Im newer here, i was on...
I have 3 children and was not on any drugs during my preg and luckily i did not have any problems at all. It was like it totally went away and i never felt healthier. It all came back after i had...
btw thanks all for the advice...
well was at hospital today and saw the GI doc not sure if the rash is from the remicade for sure or not so going to go for my second infusion tomorrow. Taking antihistamines so going to continue them...
the only premeds i had with it were corticosteroid. I woke up this morning with a migraine and i have felt "sick" today just an unwell feeling and extremely tired like my body is fighting off...
vixen i have been on immuran (atathioprine generic name) for over a year now at 200mg dose. I started at 50mg and increased to the 200 which is the norm dose for crohn's (adult dose) however...
Hello all its me with yes another problem, I had my first remicade infusion on the 10th (suppose to have the second one on Thursday) and today i broke out in a rash (belive its hives) which started...
So if i run around naked outside can i tell them i have Crohn's and my vit D is low and not get charged with indecent exposure????? LMAO JK, interesting fact though I myself have a severe vitamin D...
When i have a flare up i do not really have a "safe food" everything makes me ill, i stick to water or flat gingerale (diabetic so have to watch sugars going too low when really ill) I drink lactaid...
I can't drink ensure, or any of those drinks, I get a worse flare up then if I was to eat canned corn!!! I am exactly like you, 5-10mins after drinking it I'd have to run to the bathroom. Just not...
ya my dr suggested water aerobics for me as well i just still can't get over going to going to a class of old people, im still young and i should be up there in those classes with the young ones...
Hi Zanne, For awhile they dr's argued btn them on if i had lupus or crohn's crohn's won lol, anyway i also have joint pain and was put on a drug plaquinil. It is a drug for joint pain and it took all...
I am just wondering what people take for pain meds when needed. My crohn's is out of control and this week i now have a rectal prolapse that i am going to be having surgery on and of course cannot...
not sure where u are from but im in Ontario, Canada. When i had my CT Enterography i had to drink this prep stuff. i had to drink only a third of what you need for a prep It was 4 big cups though and...
thanks for the thought i have had countless scopes lol...
If it is any consolation I have used many different types of preps and that oral fleet crap is about as worse as it gets. I also threw it up and just the smell had me heaving and the nurse rolled her...
Im waiting for a call it can't come too soon, im having a terrible flare up and i can't stop going and it hurts so bad to go have a call into the dr now if things dont change soon i think im off to...
As if i didn't have enough problems I now also have a prolapse. It goes back in the problem is i am going so often that it keeps coming out and it hurts like hell. I have to go see a surgeon they are...
I just went through something similar i've been on Immuran for over a year and it isn't working and just started remicade well in getting my "routine" chest x-ray they found something and i had to...
Well im feeling depressed.....i use to be under weight and couldn't gain it when my dr told me too no matter how much i ate then i got really ill (where i would go 20+ times a day and nothing stayed...