Sounds terrible. You might be abscessng and the tract may have branched off. Are you taking antibiotics? they help a lot. I could not have survived my fistula Seton battle without them...
Could be any of the things already mentioned but most likely it's a Crohns flare possibly a stricture? In addition to the stool sample maybe they can order you up some blood work CBC, CRP, ESR....
I think he needs to know you will always accept him Crohns and all and stand by him. Same as most men but he likely feels inadequate and won't be able to keep you. If he has a law degree there are...
If you have a non crhns fistula you may want to check out this guys experience Abscess Fistula Sufferer (11/2013 - 6/2015) My anal fistula story - https://fistulapatient2patient.wordpress.com/...
Crohns colitis is an IBD confined to the large bowel. There is no distinction in your case...
I've been on MTX, folic acid and entyvio for a year 25 mg inj. In the thigh. A little fatigue and nausea at first but after a few weeks no problem. Has helped me a lot. The meds are all scary but the...
I have medicare and get Entyvio infusions. I'd imagine REMI is similar. The book price is $15k' but medicares negotiated rate is $5k and Medicare pays 80% my supplemental policy pays the balance. If...
Go back to the vicodin. If it's working don't change anything! First rule of crohns club Really morphine is way more addictive and obviously too strong for you With pain meds always best to go with...
I have PA Crohns w fistula for many years. My GI says it is the most stubborn Crohn's to treat and thus drug cos. don't try to dvelop drugs specifically to treat it as they usually fail. But some...
From my personal experience yes. Flagyl and cipro with pred. (5-10mg/d)would close the fistula but it usually came back after stopping the ABs. I would restart them and it would reclose until I...
Hi players _ Sounds like you need to treat the abscess better. Have you discussed a seton with your doc. That helps keep it draining and theoretically avoid the abscesses. Also antibiotics to treat...
Hi Samir Thank you for the study. As a supplemental therapy I strongly agree that SCD or similar can be helpful esp. for those having trouble achieving remission with drugs alone. Definitely worth a...
It was 3years between stopping and starting remicade for me. When I first took it in 1999' they only gave you 3 infusions, which put me in remission for a few years then I flared and went back on...
Remicade sounds like a good bet for you, although I think Humira works a little better fOr RA. What a bitch having to deal with both. I did remicade a second time 3yrs after stopping. Worked great...
What biologic are you on for RA?...
The idea that the disease burns itself out is from old anecdotal observations from 40-50 years ago, not from any studies. It was thought the immune system weakened as one got older. Not as true today...
MTX is diff than Imuran I couldn't take it either. I do good yogurt, kefir or probiotics every night...
Methotrexate injections. They are easy very thin needle once a week. Can have side effects at first like nausea and fatigue Similar to Imuran and 6 mp but different and works faster like 1 mo....
Not much side effects from the pred. At higher doses yes. I have been fortunate as I've taken pred for over 30 of the 50 yrs I've had crohns and no major side effects like osteoporosis, diabetes etc....
I was on cipro/Flagyl for most of the 90s for PA fistula. They work best in combo. After stopping them the fistula usually came back but not always. It did stay closed for a year or two with the help...
Most definitely Remicade can. Surgeons only know surgery Get the infection cleared, check your WBC 11or less is good 12 might be ok, And go straight for the remicade possibly a double dose. You might...
Hi rose flow Sorry for the late reply I just saw your post. I have had PA fistulas for much of the past 30 years. For much of that time I was on Flagyl and cipro on and off until no more flagyl for...
Rose flo I have a fistula and seton. I also can no longer take cipro or Flagyl. I am taking augmentin and bactrim They help but not as much as the others did...
I will answer question 1 and 4 You can make a yogurt in 4-5 hrs but it will not be SCD legal. It will still have lactose remaining. It takes 24 hours for all the lactose to be "eaten" This is why...
Zoeycat, cannabis doesn't increase risk of lung cancer. There are many healthy treats that can be made with canna butter. First make sure you strain it well when you make it. It mixes well with...
You may want to look into a fecal matter transplant. It is execellent for treating c dif and can also help Crohn's....
I am 65 have had CROHNS for 50 years. Tried all the drugs. Learned to take care of myself at an early age. Expect to live another 25 years...
I am on Entyvio. after the third inf. it was nt doing much so we added the MTX 25mg/1ml inj. Slowly but steadily things have improved Had some side effects on he 25 mg dose. Doc said split it into...
Thank you for your posts D. Owczarek. Diet can help many people. Results are not always immediate. Food plays a role in this disease and the antigen response seems to be a factor, one of many and...
Hi Dorri, I have been on Entyvio for six months with minimal to no side effects. It's working ok but had to add MTX to get noticeable results, e.g lowered pred from 30 to 10 and entocort from 6 to...
Bobbie girl. Sorry for your ordeal. Sometimes it takes tme and trying many things to get crohns nder control. 60 mg pred is a lot 40 was the magic number for me. Some things to consider as you...
Vitaka I thought it was Lyme. Don't know how severe your crohns is but if possible avoid the immuno suppressors. Is Remicade working well for you? If not maybe dump it BTW anti biotics can be helpful...
Joie 1. You might want to talk to your doc about amitryptilene. It helps with fibro pain, diarrhea and sleep it makes you groggy so only take at night. Med can ibis also helps replace opioids at...
High WBC chills could be sign of infection. How high was it? Fever? Ct was negative so no abscess I presume which could cause the pain. You need to try some treatments sometimes you learn what might...
Billo same thing for me but I had to take them on and off for years to control a fistula. Most docs hate prescribing anti biotics. But with crohns its so common for the gut to get bad bacteria...
Hi Annie you've been through a lot and at such a young age I have a PA fistula and have been through all the meds like you but have had a better response esp to the anti biotics. You definitely have...
Sharbear I am in a similar sit. Started Entyvio in sept was on pred. 30 mg/d and 6 mg entocort and augmentin. My main problem is a pa fistula. 4-6 BM /d but sometimes more and sometimes...
Entyvio is supposed to be much less dangerous but also less effective and very very slow Had to add pred as a bridge slowly tapering but also had to add MTX After REMI I think we build up high...
Vitaka do you have Lyme? Isn't fatigue the primary symptom?...
Go for it. It's best at closing fistulas. Then you can ditch the Flagyl canasa and lialda....
Not necessarily but almost maybe. I am about 2yrs ahead of you and it hasn't been fun First if you do have antibodies you can try humira. More likely your body found a way around the medication in...
Hi Jennifer You will find something that works. First you need a Crohn's doc not a GI that does all GI stuff. Remicade is the go to drug for CROHNS Can you try that? Can you do budesonide instead of...
I am almost 5 mos into Entyvio and like kerrilyn I am steroid dependent. After the third infusion and still unable to lower pred. we added methotrexate injections. I have now been able to lower the...
Holly bear I have taken a lot of prednisone over the years. For me the pred is the lesser of 2evils A few things that can help mitigate the symptoms Long Hard exercise if you can. Sauna baths with...
Trust what your body tells you...
Been there done that. Remi stopped working lots f inflammation New doc switched me to Humira. Did nothing tried it for 6 mos and things kept getting worse. Should have increased remi before trying...
Remicade is #1for healing fistulas Did it for me Go for it and don't look back Good luck...
The whole point f SCD is zero tolerance for non allowed foods That's their protocol so if you want to give it a chance you have to go 100%...
Any time I Get a cut I immediately cleanse it with hydrogen peroxide then apply tea tree oil and repeat 2xday Infection fr us is always lurking. Vit c helps too...
If he thinks you have infectious bacterial colitis that's what you should treat first Remicade and MTX are specifically for crohns, if that is what you have. Remi and MTX can work well for crohns but...