Hi, my daughter took oral MTX for 9 months when first diagnosed and did well, then she began to throw up after taking it. So they swithed to injections, which was worst. Nausea and vomiting every...
Hi Everyone, We were prepared to do the hookworm, got the Blood work done and filled out the questionaire for AIT. Then, she started doing really well again, maybe the LDN began working again. She is...
Hi, Its low dose naltrexone. Go the website.-lowdosenaltrexone.org. There is so much information there. There is also a yahoo chat site for LDN and IBD. Studies at Penn State show LDN is helping...
Hey there, Sorry to hear of all you have been through. It all seems so unfair. Why some have to suffer so much. I am curious as to why you say the Imuran caused all this. My 14 yr old daughter may...
So sorry to hear about this new problem! You are always so supportive of everyone here, now it's our turn to do that for you. Try to keep positive thoughts, and I will definately keep you in my...
Oh sorry, you answered most of my questions in the earlier posts in part one. Diana...
Hi, I'm seriously considering Helminthic Therapy for my 14 year old crohns daughter. I have communicated with the company "Autoimmune Therapies". There is also another company called Ovamed. Which...
Yes, this happened to my daughter when she was on Methotrexate. She would vomit every time she took it and there was always blood. One time, there were several mouth fulls. That was so scary. We...
Hi there, I wouldn't worry just yet. Those inflammation levels are still very low. I was told they can vary from month to month for many reasons-even sore muscles from excersise. My daughter never...
I was on the "Crohns Boy" website. He says he's pretty much cured of crohns. Still eats mostly SCD, takes vitamins, digestive enzymes and colloidal silver. He says colloidal silver made a huge...
Hi June, The prednisone does give you large mood swings. That might be part of the reason you have been crying so much. But, I think a good cry is warranted in your case.You have alot going on right...
The article was very interesting. I'm always glad to see research going on, but since they are only at the "mouse" stage, I don't predict anything concrete for decades. By the time they get around to...
Vixen No worries! We're all here for the same reason. I think it all relates one way or another. I guess my main goal(like everyone here) is to find a cure for my daughter. But my thoughts are, that...
Hi Tsitodawg, Thanks for your input. Just to let you know, we did finally get a kitten 2 years ago. We did get him shortly after she was diagnosed. His name is Waldo and is a cutie. So now we do have...
Thanks for the replies. Ya, I guess this theory is just a coincidence in my daughters case. I know I should not feel guilty about her crohns, but I do somehow. I just keep wondering if it was...
I was just reading an old article by Joel Weinstock. I believe he is involved with a company that is selling hookworms. Anyway, he stated that children should have 2 dogs and a cat and therefore...
Is anyone that tried the hookworm therapy still posting here? I'm researching this for my daughter and would like to hear how things have or have not turned out. Diana...
Hi , Just curious how long you tried each individual medication for. You seem to have tried several in only 2 years. Maybe you didn't give each med long enough to kick in. From my research most need...
LDN stands for Low Dose Naltrexone. It modulates the immune system and many people with autoimmune diseases are having success.Most doctors don't believe in it but some are coming around. My 14 yr...
Kell, sorry to hear of your losses. I hope that you will successfully conceive someday. Thanks for your positive outlook. I find that watching my 14 yr old daughter suffer with crohns has really...
Hi FallColors, I happened to read some old posts from 2008 provided by IVY6 and it seemed you were going to try the hookworm therapy. What happened? Did you try it? Please let me know. It would help...
Hi Sickofitall, Thanks for the info. Yes, I was surprised the doc brought it up. I asked about RMAT therapy and he said he thought hookworms was a better bet.This doc does give his patients a certain...
Well, i can say that this infertility from crohns makes me really sad. My 14 yr old daughter has crohns and I know that she really wants kids when she is older. She is always talking about what she...
My 14 yr old daughter takes prednisone when she is flaring. It helps quickly and she tolerates it well. It is usually given on a short term basis like 6-8 weeks, to get inflammation down. I know that...
Yes, I've seen these videos and read alot about MAP and RMAT therapy.It seems to be pretty convincing evidence. I took my 14 year old daughter yesterday to see her GI because of a flare and I went...
Thanks everyone for the responses. My daughter is now 14 years old and was diagnosed at 11 with crohns. We are trying to do as much as possible to keep her off the strong meds, so we are trying...
I brought my daughter to her GI today because she is flaring again. He put her back on Prednisone for now and stated that he may try her on Imuran if it happens again. Don't know much about Imuran...
I don't know if anyone believes in the MAP bacteria as a cause for crohns. But they do day that MAP has been found in our water supply too. My understanding is it leaches through the soil from the...
I do hope your son does not have crohns too. One in the family is too much! My 13 year old daughter was diagnosed at 11 with crohns. Now, when ever her 3 older brothers have a stomach ache or D etc.,...
Yes, my daughter's joints were so inflamed when she was diagnosed at 11, that she could not walk or bend her arms. Her CRP and ESR were both very high too. At one point, they considered Rhumatoid...
Hi Again, I'm wondering if there are any Canadians on the Anti-Map therapy.(We live in SW Ontario) My 14 year old daughter has crohns and I have been researching this for a while now. I know that not...
Hi canadian, My 14 year old daughter has crohns, mostly in the small bowel. The first sign to me that she is starting to flare is she begins to lose weight. She starts off real slow, then it ramps up...
I always wonder if I'm doing the right thing concerning my 14 yr old daughters crohns. Doctors only talk about meds which I don't think is the only answer. I don't think drug companies want to cure...
Hi CrohnicStyle, You didn't really say what the homeopath has you taking.Also,what type of diet are you on? Have you considered the SCD diet. (Specific Carbohydrate Diet) If not, google "Breaking the...
Hi, my daughter took Methotrexate in the oral form for about 8 months when she was first diagnosed at 11 years old, with success, but then began to get severe nausea and vomiting. We swithed to...
Hi Comedybob, There is a theory that most crohns is caused by the MAP bacteria. This has been found in our milk supply . Cows that have Johne's disease(very similar to crohns) are transmitting it...
My daughters old doc said diet didn't matter with crohns. She actally discouraged us and said just don't eat what bothers you. To me, this sounds totally ridiculous. How can what you eat, not...
I believe that MAP is the cause in many cases of crohns. There is a doc who is treating it with a combination of antibiotics with great success. He actually is working on ONE pill and states it...
Hi MoobyDo, I know how difficult it is to see your daughter suffer this way. May I suggest you look into the (SCD) Specific Carbohydrate diet. It is no grains, no processed sugar, no lactose, no...
Hi Stayingpositive. I agree with Bensmom. I think its great you are talking to others about this. My 14 year old daughter was diagnosed at 11. She missed the first 3 weeks of grade 7 from being in...
My 14 year old daughter takes, prenatal vitamin, 2/1000mg omega 3, 2000IU vit D3, 1000mg calcium, 1 Udo's Choice Probiotic 3mgs LDN at bedtime. She also is on SCD and the SCD yogurt. She is presently...
My 14 year old daughter also did well on 3mg LDN for almost a year, then relapsed in November after cheating for a few months on the SCD diet. She is back down to 10mgs of Prednisone and started back...
Hi, my 14 year old daughter was on Methotrexate when she was first diagnosed. She took it orally for 6 months and did ok. Then she began to throw up every time she took it. We then switched to...
Hi, I'm new here. My 14 year old daughter has crohns, diagnosed 2 years ago. I was wondering if anyone here has tried RMAT therapy. It is a combination on antibiotics which is said to kill the MAP...