Thanks, everyone. I sincerely appreciate your comments. Ironically, I'm a psychologist, so I always really believed that the mind and body were pretty intertwined. I still do, but I've become a...
I haven't written on this site for quite some time. I'm definitely feeling much better than I was when I first got sick, but I still haven't gotten all of the weight off from prednisone, yet. I'm...
Thank you so much for your responses. It's really great to be able to discuss these things with people who understand....
I started sweating a lot about 6 years ago. I figured I was just getting older and more neurotic. Does anyone know why Crohn's causes excessive sweating?...
Wow...I had no idea that my sweating might be related to Crohn's. I can't tell you how relieving it is to read all of your posts, given that's it's been a constant source of embarrassment for me....
I get heat exhaustion easily. Ever since I was dx with Crohn's, I've had to be very mindful of my fluid intake or else I get incredibly weak and I get tremors. Drinking electrolyte fortified drinks...
Thanks so much. That is helpful. I haven't been tested for RA, but I'll definitely ask my doctor about it....
I have had Crohn's colitis for 3 years now and every month or so I get edema in my feet i.e. very swollen feet. This never happened to me before I was diagnosed with Crohn's and I wondered if it...
Hi Everyone, I was wondering if any of you have had white stools. I previously thought that my white stool was mucous, but apparently they are not synonymous. Is this something that others have...
I need to lose my prednisone weight, too. My goal is to eat a lot of proteins and cut out the carbs...which is really hard with GI problems. I'm also eating veggies, but only veggies that have been...
You can try chamomile tea. It has some sleep-inducing properties, but personally I would insist on your doctor prescribing more sleeping pills. Posisbly consider trazadone, because that doesn't seem...
I've been off of prednisone now for 2 months and I sitll have a swollen face aka moon face. Does anyone know how long it takes for the swelling to go down? And, does anyone know ways to speed up the...
I'm so exhausted that I have to take naps every day on the floor of my office (I should really buy a mat), but apparently my exhaustion is due to prednisone withdrawal....
Thanks so much. This has definitely been a pretty bad period for me and I'm really thankful that a forum like this exists. I'm trying to stay positive and recognize that this is all temporary, but...
Oh...I'm not sure about prednisone versus an active flare. Personally, I would try other options first, like Asacol or Pentasa. I also think that although the research shows effects of prednisone on...
I don't know about taking prednisone in the first trimester, but our research shows that elevations in cortisol early in pregnancy (week 10) predict preterm delivery and decreases in infant...
Low birth weight, preterm delivery, and fetal growth restriction can be caused by many different things, so it would be problematic to discuss generally the long-term follow-up studies on low birth...
Thanks so much. I'm actually off prednisone now (for 3 weeks!), but I still have the puffy face and I'm experiencing what my doctor calls "prednisone withdrawal." Which he said could last from a...
This is actually my area of research, so I can tell you what we know so far. There's some evidence that prednisone during pregnancy (usually at low doses-10 mgs throught) can lead to growth...
Wow...that's crazy. I never knew that. I've chewed ice whole life and I've always been slightly anemic. I wonder why that happens. Can I just ask my doctor for B12 shots? If not, how do I get them?...
I cut down to 1 cup a day from about 4-5 cups. It's been rough, especially with the fatigue from pred withdrawal, but the 1 cup doesn't aggravate my symptoms. And, I make a strong 1 cup....
I just got diagnosed with Crohn's in August. I really liked this book "The First Year: Crohn's Disease and Ulcerative Colitis: An Essential Guide for the Newly Diagnosed"by Jill Sklar, but I'm sure...
I know it might be really vain talking about how prednisone and Crohn's has affected my appearance, but it's really been bothering me. I've gained about 15 pounds due to prednisone, my face is still...
I take Asacol twice a day. 6 400 mg tablets in the morning and 6 in the evening. I've been to two different GI docs who both say that you can take it twice a day....
Thanks everyone for your responses. I was feeling pretty good for a few days when I was on 5 mg every other day, but generally I had really bad side effects on the prednisone (e.g. tremors, extreme...
I just finished tapering off of prednisone last week (started on 60 mg and tapered over 2.5 months) and I'm incredibly exhausted, plus my feet swelled up so badly that I couldn't put my shoes on, but...
I smoked for 10 years (from 13 to 23 years old), but I quit 7 years ago. My doctor told me that quitting may have been the one thing I did that could have contributed to the onset of my IBD, but I...
I was swelling a lot in my legs, feet, hands, and face and then I substantially decreased my sodium intake, which helped tremendously. I wasn't eating anything over 500 mg of sodium and usually my...
Thanks so much for your responses. I really appreciate it....
what about tylenol? is that okay?...
I read that you shouldn't take alleve if on prednisone, but I get really bad menstrual cramps. What do other people take for menstrual cramps while on prednisone? Have other people taken alleve?...
Dragonfly, benadryl stops having sleep-inducing effects after 3 days and tylenol PM is comparable. One of the reasons why doctors prescribe benadryl for sleep is because it's cheap and relatively...
It is hard to eat small, frequent meals, but it's actually healthier in general, so I figure it's probably a good habit to learn even without having Crohn's. One strategy I'm trying to use is cutting...
I eat tons of sushi, but now that I'm on prednisone I use ponzu sauce instead of soy sauce, because it has lower sodium. Even the low sodium soy sauce usually is pretty high in sodium....
I noticed that I feel much worse after meals, as well. I'm trying to decrease my portion sizes and eat more frequently throughout the day, which seems to help a bit, although I'm really messed up on...
Sorry. I didn't mean to imply that mercury is a safe substance. It definitely is not. The point I was making is that the levels of mercury in fish in the US is usually pretty negligible. Also, the...
I'm a scientist and I just did a search of all of the scientific articles ever written and there's no study linking mercury poisoning to Crohn's disease, any form of IBD, or IBS. I would be careful...
Thank you so much for your responses. I feel a lot better now, because I was starting to worry that I might have some kind of neurological problem. I can't tell you how much I appreciate it. It's...
Thanks, Vickie. I went to the ER last week and my glucose levels were 170, which they said was high, but normal for being on prednisone. Did you ever get the shaking while on prednisone? Because, I...
I first had fits where my hands and arms would start uncontrollably shaking after I started Asacol and now that I'm on prednisone it has gotten much worse, happening daily. Does anyone else these...
My shaking and weakness has been a side effect of the prednisone, not a result of tapering. Prednisone has a lot of systemic effects on the body, including making it very difficult to break down...
I just wanted to thank everyone for their responses. Being on prednisone and getting diagnosed with Crohn's last month has been really hard, so I truly appreciate the help. I also did some reading...
I started having breathing problems two years before I was diagnosed with Crohn's a month ago. They couldn't find a cause for the breathing problems (no allergies), but diagnosed me with asthma. I've...
I was just diagnosed with Crohn's and I'm currently on 2.5 20 mg of prednisone (being tappered weekly). It's been pretty awful with really painful swelling, insomnia, mood swings, acne, etc. Does...