rab1257 I feel your pain. I had a colonoscopy about 4 months ago that didn't show any active disease. I also was told by my doctor that my blood tests show no inflammation. But I have been miserable...
Bethanyv, You are not alone! That is actually the reason that I logged in today - to see if anyone else was having this problem. I take 40mg Humira bi-weekly. I had a colonoscopy in March that showed...
Yogamomma, I had a colonoscopy about 3 months ago and was given the suprep. I was very nervous because I knew that if I did the second dose (I think mine was 3 hours) before my procedure I would...
I had the surgery in November 2008 after only being diagnosed in May that same year. I had 18 inches of my small intestine removed. From May to November I was in the hospital several times for a week...
Thanks for all the responses. I am hoping to hear back from my doctor today about the biopsies. Equestrian Mom - My crohns was originally in my small intestine. I had 18 inches of my small intestine...
I don't have a follow up appointment as of yet. She said she would know more from the biopsies by Wednesday and call me. I did not want to have the scope done. I am ok with how I am doing. I never...
I had a colonoscopy on Friday. It was to check and see if there was active disease and see if the Humira was working. I still have pain and D on a daily basis and the doctor was concerned that I...
My doctor gives me a script for a years worth of B12 injections. She told me I could come to her every month, see my GP or do it myself if I was comfortable. Luckily I have a wonderful friend who is...
flowery, I have wondered the same thing for a while now. Since having a resection in November of 2008 and being on Humira since that time I have had bathroom issues and some pain on a normal basis....
Recently a doctor suggested to me that my pain could either be caused from the Crohn's being active or it could be that my nerve endings in my intestines are sensitive from my resection. Anyway to...
Thanks for the replies. I did not intend to go back to this doctor just for the fact that she did not listen to me. I was curious to know though if that sounded crazy to anyone else or just me. As...
Yesterday I went to see a new doctor. She advised me that I need to have a colonoscopy. She thinks that the crohns is still active and I have never responded to Humira (been on it since 2009). She...
I am feeling very frustrated today. I went to my regular GI doctor last week and she wants me to go see another doctor - more of a specialist in the Crohn's field. Quick recap - diagnosed in May...
I agree! Every time I have come across a new "issue" with the meds or the disease I have thought, "Really? Isn't the disease bad enough?" But I guess not. I fortunately have never had to deal with...
Oh no - it is not just you!! What kind of side effects are you having? I have had so many different things happen to my body with this disease and I don't even know anymore if it is from the disease,...
I have been on Humira now for 4 1/2 years. I have always done the pens and I do them every other week. Lately my Crohn's has been bad. My problem is that after 5 years of the disease I still can't...
kazbern - Yes the adderall does decrease my appetite. I am taking that to help with the fatigue. No - my Crohn's is not in remission - well I don't think so. I am not sure what remission really is. I...
Yes - I have done the food journal route and even went to see an endocrinologist. He said that according to what I was eating I should be losing weight and more or less he didn't know what to tell...
The last time I had that test I started running to the bathroom after drinking the first glass. I had been 8 times before they even did the test on me. It was miserable....
With my crohn's (as everything else in my life) I am the opposite of normal. I don't fight to keep weight on - I fight to lose it. I have had people tell me everything from - it is the medicine to I...
I stopped doing it in my abdomen because I though I read you weren't supposed to do it around any scarring? Did I make that up? Maybe I will try there next time. I think it just scares me. Sometimes...
I have been on Humira for about three years now. I do the injections every other week and I notice that two or three days before I am due for my shot my symptoms get worse. I have noticed that since...
Good luck to you! I hope it works out in your favor. It's not enough to have this disease and feel miserable most of the time but to stress about money too is like a double whammy! I hope you get the...
JasonCPhT, I have the Humira assistance plan and I use the Accredo Pharmacy as well. As I recall when I signed up for the assistance plan you were eligible as long as you only had one insurance plan...
I hate this diesease. I feel like I have lost control. After I initially got sick and had my resection, I was able to stay in some kind of control. I learned what I could and couldn't eat and knew...
Does anyone else ever experience a sharp stabbing pain in their feet or toes. I used to only get it every once in a while, but in the last week I have probably had a sharp stabbing pain in one of my...
I was diagnosed in May of 2008 and had surgery in November of 2008. They removed 18 inchest of my small intestine. I believe it was one of the best choices I made. Not having had Crohns very long, I...
I am not sure about the fistuals. As far as taking it out of the fridge - it is supposed to help the injection to not burn so bad. I usually leave mine out for 30 minutes. While it is sitting out I...
It is very frustrating and I feel for you. I gained weight after my resection as well and what was frustrating is that I didn't feel any better. The only thing that was gone was the untolerable pain....
Yes - I did tell her that I was on Humira - she asked for my medical history (bet she was sorry for that). I know most of you know this, but when you work and are married and have kids and feel like...
Just saw a post from a few years ago about strep throat and it frightened me a little. I was diagnosed with Strep on Monday evening. Finally broke down and went to a take care clinic in Walgreens. I...
MMMNAVY, There is nothing worse than having someone tell you that - especially a doctor. I am so sorry. Try no to let it get you down. I am dealing with the same problems and as if we arent' hard...
I feel your pain and wish I had a magical answer. I joke all the time that the one side effect of this darn disease I wished I had gotten was the weight loss. For about the last three weeks I have...
Salad used to be my favorite food. I ate it everyday, sometimes twice a day. Not so much anymore. Somtimes it is no worse than anything else and sometimes it is really bad. The two things I have...
I figured people in the same position as I am are the only ones who would find humor in this. So last night I get a call from the specialty pharmacy that sends me my Humira. For whatever reason, this...
jas - I don't know if it hurts any worse with the ice pack or just numbs it up a bit. I put it on 1/2 hour before I do the shot and then immediately put it back on after I do the injection. Still...
drake I can sympathize with you. I have four kids 13, 9, 6 and 4. The other day they were wanting to do something before they headed back to school and I told them I was tired and my oldest muttered...
mdf34, I am 36. I don't drink hot drinks - not a coffee or hot tea fan. I guess I will just chalk it up to another miserable thing to deal with from this horrible disease. To put a little light on...
Does anyone else have issues with sweating? Mine is always on my face and it is to the point where it is embarrassing. I don't even have to be that hot when it happens. Sometimes when I am getting...
It is not just you. I actually just did my injection last night and it burns worse I think as time goes on. I do mine in my leg because I once read that you were not supposed to do it too close to...
I don't have an answer for you, only to tell you you are not alone and it is terribly frustrating. I have had a form of an eating disorder since I was 16, I am not 36. I have never been so miserable....
I have recently noticed tingling in my fingers/hands/arms. It feels like if they have fallen asleep on me. I sometimes wake up in the middle of the night feeling this way and other times it just...
Not Creative, What if eating healthy and exercise still doesn't work? I had a doctor tell me that based on what I was eating and the amount of exercise I was doing, he honestly could not explain to...
Jaman 79, Where is this doctor's office at? I have heard several good things about him. I previously saw a doctor from Wash U and hated him. I am currently seeing just a general GI doctor, but feel...
I was off the Humira for about 6 weeks. I had surgery at the end of May to repair a surgical hernia and the surgeon had said that I needed to stop the medicine 2 weeks before my surgery and then wait...
I have been on the Entocort for almost a year now. I have had a few days where for some reason or other I forgot to take it and I could really tell a difference. Don't get me wrong - still have pain...
I am just curious to know what it means to be in "remission"? My mom is so worried about me all the time. After my resection surgery I think she thought I would be "normal" again. I am starting to...
Is he in practice with anyone else? I live in St. Charles County. Saw a Wash U doctor and hated him. In the 8 months that I was his patient I was him one time. Was in the hospital twice for 8 days...
If it makes you feel better, once after having just started the injections I was so nervous I guess I wasn't paying attention and had the shot facing the wrong way. I ended up shooting it into my...
PainNdaGut, Did your endo give you any information as to anything that may help?...