Hi Ruthy, Sure sounds like you've been through the mill! Thank goodness you got to the hospital in time after the rupture! (For those of you who want to bypass all the drug therapies and go directly...
Hi Betty!!!!!...
Sorry you are having pain. Pred does suck, doesn't it? Why not call your gi and tell him that you've had no relief so far and see what he advises?...
I'm guessing he has ordered a small bowel series. With that, you drink barium and multiple xrays are taken to see how it moves through your system. You probably should call his office back and get...
"Suprep should not be used in patients who are allergic to any of the product ingredients, or patients with gastrointestinal obstruction, bowel perforation, gastric retention or ileus." If this is...
My symptoms were severe pain, nausea/vomiting, no gas/no stool. I'd recommend calling your doctor for guidance....
I have read that shingles is mostly contagious to people who have not had chickenpox and that you won't get shingles, but chickenpox if you come in contact with the rash/sores and fluid that is...
hmmmmm...ya think? LOL...
I had some discomfort from a bowel stricture that accompanied the fistula. Dr. gave me Rx'd pain meds because OTC drugs didn't touch it. I have never experienced immediate pain relief with pred....
Tell your son he's not alone. I was plagued with short term memory loss while on Pred. Writing notes is great ... if you can remember where you put them. ;)...
They postponed surgery for several months to see if the Remicade would work - which it didn't. The surgery was pretty routine but could not be done laproscopically, so I have a navel to pubic bone...
Hi Mikey, It took forever for my bladder fistula to be dx'd a few years back - took a trip to urologist and a charcoal slurry test to convince them I wasn't crazy and imaging 'stuff' in my urine. I...
What happens at night? Diarrhea? Have you tried immodium?...
H iVal, A wise man once said "What you think of me is none of my business." Any rudeness speaks volumes about their issues, not yours. They may be curious as well. Maybe you can take the opportunity...
Crohn's can go into "remission". It is not recommended that you stop taking medication though, despite lack of symptoms. Maintenance meds can help reduce the possibility of developing a 'flare'. A...
Positive, healing thoughts coming your way!!!!...
Fab news!!!!!...
My local donation center will not take blood from anyone with a dx of crohn's....
I agree that it was a relief to be able to put a name to this condition. Entocort is not as fast-acting as other steriods like Pred, but the side effects aren't supposed to be as bad either. I take...
Is this common in the states? If so, how do you get confirmation that you need it? Do you get it from your GP?...
Gail, If you find an answer, I'd love to know. I have fibro as well. Pretty much, if I'm not at work, I'm home asleep. I should probably have GP do a blood test for iron. Where do you get B12...
That's ridiculous. I'd say something to your manager and see if they can get the timer reset to a longer phase....
No suggestions for you....just sincere sympathy!...
Amy, That's great you are going to GP on Friday. Let us know how you get on. I agree, just getting the diagnosis can be a relief. Take Care!...
Your fear is understandable. However, a Crohn's diagnosis is not the end of the world. There are lots of us out here who have lived with CD for many years, so you won't be alone. The support and...
I would expect your doctor to put you on some type of meds for 'maintenance' even without symptoms. Allowing the disease to go untreated is, in my opinion and personal experience, asking for trouble....
All kinds of things can happen if you don't get treated...including emergency surgery. There is always a chance for misdiagnosis. There are people here that have gone without a diagnosis for quite...
Amy, Yes, you can be any age, but you are in the most common age for developing it, between 15 and 25. Medications will vary according to your diagnosis, location of the disease, and symptoms. They...
Sounds to me as if Crohn's is a possibility You may want to consult your GP for a referral to a GI. Good luck!...
FMLA is NOT available to employees of US companies with fewer than 50 employees. That means there are a lot of us out here who do not have access to this benefit and our employers can let us go for...
Congrats!...
Awesome news! Congrats!!!!...
Project manager at a mid-sized ad/marketing agency. So far, they've been understanding (out several days for tests) but I've not been really sick and this is my first flare while here. No problem...
Glad your MRI went well and sorry you have to wait for results so long! Do you have a product call Poo-pourri? It is a fragrance you can spray into the toilet bowl before going. It has a strong...
Have you tried Immodium (Loperamide) to help control the diarrhea? I'd also recommend you get an appointment with your GI doc asap....
Thanks for the good chuckle! Had a SBFT last Friday. The tech told me they had a new barium product. It smelled yummy, strawberry! But it tasted like the same old crap! I agree with all above - chug...
I imagine the cost varies from location to location. You might want to call area infusion centers and ask. Or check with your insurance company - they may be able to guide you....
I've taken Pred before (horror stories) and now I'm on Entocort EC. Personally, I'd pretty much avoid Pred at all costs. In fact, the GI tried to Rx pred this time and I asked for Entocort instead...
All these examples show that it is up to every patient, no matter what the disease or condition, to be his/her own strong advocate and to refuse to stop searching until the right DX is made....
Why not have him call Dr. office, speak with nurse and ask her to mention to Dr. beforehand. Then before scope, hubby should mention them if Dr. doesn't....
New here...what does SBS stand for here? Some of the acronyms are vague....Thanks!...
Shortly after I was diagnosed with CD (blockage treated with Pred), I started finding fecal matter in my urine. None of my doctors believed me - they thought I was 'wiping' incorrectly. Finally, I...
Don't know what horror stories you've been reading, but stop it right now!!!! LOL I've had six Remicade infusions and they were really easy. No drama at all. The vast majority of people go through it...
Becktoria said: i can't stomach broth so i am sick of gateraid and jello by the end of the day and crave salt as soon as i can eat again. Holy crap, don't you get enough sodium with the prep?...
I'm sure you are worth more than any amount of money to your family! The health insurance crisis and cost of care in the US is shameful. Just last night I picked up a new Rx for one month of Entocort...
I've had them for years, but mine never went away while in remission. GI never mentioned them and I just assumed that they were 'normal' hemorrhoids. Thanks for the new info! Glad I didn't seek...
Dinky Dee Poo-Pourri is a godsend! It's always been a bit embarrassing to leave a strong, lingering bathroom odor, especially when in public or at a friend's house (and you can't find any...
Let's start over, ok? I misunderstood your post. It appeared to me that you might have been complaining that no one responded to your odor post and you decided to throw in depression to see if that...
I read your post about odor, but didn't have anything to suggest other than consulting your doctor. If you are really depressed, it is understandable - it is very common with CD. Please consider...
VERY IMPORTANT!!!!!!!!!!! DO NOT EAT OR DRINK ANYTHING COLORED PURPLE, BLUE OR RED!!!!! The color interferes with being able to determine bleeding. All liquids/Jello/Jelly/Ices have to be "clear", no...