Grin, you have written everything i feel. I am proud to have crohn's disease. Of course my life is drastically different to what it 'should' have been BUT i am a better and stronger person for having...
Thanks for all the welcomes guys. NCOT - its good to hear your on infliximab. It would seem your clinically doing better but not physically, if you see what i mean? Nanners - I am doing better, i...
*waves* hi!!! Not too much happening my part of the world. Cant remember when i was last on so will try to recap from march! End of march got yanked back in to the hospital for a week cos my feacal...
Friday TLC * call and get my med pescription made up so i can get it on tuesday when i have my inflix * play with kitties I'm doing ok, although it wil be easier once we're in the new house! Kitties...
thursday TLC * go down to new house * paint last coat on utility room * maybe paint the skirting boards * bring bin in * walk back to old house * bath and scrub off the paint * hoover at old house *...
Monday TLC * go up to the new house and see what little jobs i can do to help * play with the kitties * keep resting * call hospital to check appt for inflix cos i was booked in for one day and i...
Friday TLC * Check in online for flights to holland - done * Collect keys to new house (FINALLY) * play with kitties * tablets * get cash out of bank to pay for riding lesson in the morning * maybe...
Er, not sure to be honest. Think we're heading into town shortly so might buy another new polish. i only have two colors, a navy blue and a purple. I can never tell when i need my b12 or when i've...
i am feeling abit better today, although i do have to trip out to the GP to have my b12 jab. Still so very tired but thats just the way of it! Monday TLC * b12 jab * tablets * bath * shave legs *...
Hi Blacky, the iron infusions was a syringe full of black liquid that was slowly injected through an IV. Its a quicker way of boosting your iron stores as i struggle to absorb oral iron. The whole...
rough day today, so curled up on my bed in my room. prety tired but am doing ok. love my furry hot water bottle. Ivy, big hugs and once you've done your garden layout, your welcome to do ours as...
Saturday TLC * riding lesson - done, super as always especially as i'm really starting to work the horse rather than just pootle round * nap * tablets * pay credit card - done, only £40 left on it...
no, not for my IBD camp. We have a lovely lovely house to stay in! i camp at horse trials every year cos its so much cheaper to see it if i camp. Previously i went with a mate but since she has...
next 'mab infusion is booked for the 23rd of this month. Is NCOT back? I'm glad. Friday TLC * change kitty litter * play with kitties * continue researching tents and equipment for camping * nap?...
Thursday TLC * rest Hospital appt yesterday was fine. We're going to retry the infliximab again. so fingers crossed it will go well. otherwise not sure what else we can do other than methotrexate and...
Ivy, its just an appt with my nurses and GI. Reckon they want me to continue with the infliximab but upping the anti-histamines. Which is fine for now. Till the next reaction at least! Yeah i am...
sorry your still struggling ivy, sending hugs your way x tuesday tlc * prep for hospital tomorrow * remember to take blood form tomorrow * nap? * sweep kitchen floor...
We had a BBQ yesterday and it was fab! lovely weather, and fingers crossed we shall have the same again today! Nothing much planned for today, just eating up the left over food from the BBQ. Ivy,...
Hugs Ivy, not feeling too amazing today myself. Got a random pain, in my belly. just in one spot. no swelling but it hurts when i cough, or go to the loo even if i press it, it hurts more when i let...
The support group isn't an actual support group, it just means that i dont have to go to 'work related interviews' now. They wont make anyone on this benefit get a job, BUT if your in the other group...
wednesday tlc * paid credit card * do dishes * change kitty litter * nap?...
Yeah, its not been a good run! 'Mab reaction wasnt as bad as it was the first time, but still had some chest pain, palpatations, harder to breathe, boiling hot and tingling in my cheeks. Luckily, it...
hey guys, things are ok with me. latest crp level is 81. lots has happened! * readmitted end of march for 6 days. IV hydrocortisone for 5 days before my belly softened back up again. (crp normal) *...
hey guys, i saw my doc yesterday. Its ok news i guess! Basically if we dont get hold of the crohn's now i'll be back in surgery in 5 years. We have gotten it to damped down alot compared to where it...
Sunday TLC * do my charity walk today * HAVE FUN! Ivy, just sending you hugs cos you havent been on for awhile so i'm guessing you're swamped with appts or your struggling at the moment. Stay cool...
oh no u have found some online pet shops. i REFUSE to look, although i might go mad online then just leave without paying! I'm watching the keira knightly p&p movie so i'm doing TLC!! My pads arrived...
big hugs ivy! I lvoe going to pet shops, theres a good one in the town where we're going to move, so i've already told everyone i can't go in till i have spare cash. I love spoiling the grusome...
its the tena flex maxi belted all in one pads in the disposable section. I also ordered some wipes as they are pretty cheap for 100! along with some odour destroyer sprays. I know that transport help...
http://www.allaboutincontinence.co.uk/catalogue/detail.php?product_ID=383 Thats what i've ordered, i'll elt you know what they are like once they arrive. My lesson was amazing. I rode a cob called...
just swingin on by wth a little update, i'm curled up in bed with my best best buddy... my pink furry hot water bottle. got abit crampy after my last BM so am going to get it whilst its still...
hey ivy, i'm ok, just alittle tired which isnt unusual for me! i will think about the transport, although i suspect i wont be eligable purely as i am technically 1 mile outside the york PCT borders....
* chemist to pick up mum's pescription - done * hoover living room - done * clean cooker hood - done * dishes - done * sweep/hoover kitchen floor? - done * prep for remicaide tomorrow * call hospital...
Thursday TLC's * chemist to pick up mum's pescription * hoover living room * clean cooker hood * dishes * sweep/hoover kitchen floor? * prep for remicaide tomorrow * call hospital and check that...
tlc's for me.....i play with the cats, i cook, i watch tv and i have my riding lesson on sunday! i do have uber long bubble baths as well, although our boiler is now busted so no hot water currently....
Guys, your all having a rough time of it! ivy i'm going to package up some of our sunshine and send it to you! Sniper, i really hope the floods wont hit you too hard, and if i was down the road i'd...
well i called them this morning. my appt for the remicaide vanished! so they didnt call cos they didnt know they were supposed to! I'm rebooked in for friday and the nurse i spoke to apologised for...
sigh, i just remembered that the hospital is meant to call me to confirm i'm feeling ok before they order the remicaide. guess what??? no phonecall. geuss i'll be phoning them in the morning to...
argh! panic panic panic! just got a form through to fill in about my crohn's for my benefit. its review time and the government have just changed everything about the rules so its all new and rubbish...
ah well i have my riding gear, then i have my horse stuff. my riding gear is at mum's partners place ready for my lesson. my horse gear i'm just packing up so i can reclaim the top of my wardrobe and...
i had a slightly momentous day yesterday. i took my last pred tablet! yippee!! Today i have to * go to post office to collect parcel (its new cat toys) * go to chemist and get pescription * dishes *...
my only TLC was to walk to the nearest stables and book a riding lesson for next week. This i have done. I am riding for 30 minutes next sunday at 9.30am! i'm totally psyched to have booked in....
Hey guys, Got a long day today really. Psyc appt at 2.30pm but cos i'm heading in on public transport, i'll have to leave at 11.30! i also need to call and rearrange a dietician appt thats next week...
no real plans for today, got the study cleared yesterday. it was mostly picking stuff up and putting it away. whats left is down to mum to sort out. found out an old friend got engaged, so i'm...
oh no! i hate public transport too! I'm sending you all my biggest hugs and kicks for stupid people who wont/cant help you. today i am going to face my demons and start sorting out the study. its a...
Home again! got the kitchen sorted out again and all the food put away. i made my lunch for tomorrow AND i have pork chops defrosting for tomorrow's dinner. I do need some tips and ideas from you all...
i use factor 30 and i live in the uk. i was at badminton horse trials over the last weekend in the unbelievable sun and i barely burnt at all. It should be fine, just remember to keep reapplying!...
Hey guys! I got slammed with a mini migraine yesterday. nothing was taking that sucker down! ended up just chilling out in my room, then going to bed. took more painkillers at 4am and was pondering...
yeah, thing is i've barely reacted since that day. i havent even been angry, even now i'm just 'whatever' about it all. Maybe i'm just numb. i dont know or maybe i just expected her to do this. thing...
aw, Ivy i'm so glad you got to go out and you enjoyed yourself!! the bbq was great, and my fairycakes went down a storm. 27 cakes were gone in about 20 minutes! i did manage to keep back a few for...
Friday TLC * frost and decorate fairy cakes - done * wash up dishes - done * pack up laundry * turn back bedding to air * pack up my stuff to take away Wasn't the best start to the day, i had another...