Hello, I hope you are all doing the best that you can under the circumstances. I have not been on the site for a long time. I have been through many different medications for a long period of time,...
Hi, has anyone had muscle and rib pain on your right side. I have spasms when trying to go to the bathroom, thinking this may be causing the pain. Very painful. Not able to do much around the house...
Scifigal2k and Meshice, thank you both for your posts. I have been on the Ostomy site forum. I find it very helpful, as I will be having the surgery after Christmas. Always,...
Ironmum, thank you for your note. I am in the process of gathering info and asking questions about my upcoming surgery. Also, will be visiting my GP to see if he will refer me to the surgeon who will...
Bootstrap, Thank you for your note. My GI only mentioned to me this last visit on October 31, that I had Ulcerative Colitis. All along he mentioned he was treating me for Crohns. That is why a couple...
B'Dereh, thank you for your last post, as well for the site on Dysplasia. I have read a lot of the information already. Very helpful. I will read and talk to others that have gone through the...
Thinking of you and glad to hear you are on the mend and looking forward to your Christmas meal with your family. Also, glad no one else with have to deal with the nurse that was fired for not being...
B'Dereh, - Thank you so much for your information and your time. I am very glad that things are working out more normal for you now. I will be very happy to be out of very hard pain when passing...
I am not familiar with the termonology - can someone please tell me what Take Down means? thank you....
Thank you mrsbugzy, I hope you are feeling much better after your surgery in January of 2012. I am not familiar with the proper terminology, so please forgive me. Again, thank you for your kindness....
Bootstrap, B'Dereh and Another UC wife. I would like to thank you all for commenting on my post. I truly appreciate your time. My Gi mentioned both the J-Poach and the complete removal with rectal...
2010 - diagnosed with sever ulcerative colitis. Meds and procedures up to date have been - prednisone, imuran, humira, remicade - 5 colonoscopies. Now for the last year only on Imuran and remicade....
Thank you for your reply. I will look into that site....
Hello, I have not been on the site for a very long time. I have been dealing with this crohns disease as all of you have. I was diagnosed in 2010. Today my GI tells me I have to have the surgery...
Thank you mirowpl, I hope they are able to find something that works for you. I feel we are ginny-pigs with all this medication, but hopefully something soon will work. Always,...
Thank you Steve, Yes, my GI said the methotrexate would be in injection form and would use it for 3 months to see if it helps me. If not, then he suggested Remicade. The only issue with me is I am 99...
Hello, I have not been on this site for a long time. I have been coasting along with my crohns condition as I know many of you are. My doctor has suggested to add Methotrexate as treatment along with...
Thank you all so very much for all your info on how you travelled with an ice pack with humira and meds. I got the larger blue ice pack, got a note from the pharmacy and I did not have an issue at...
Hello All, I will be flying by plane for 9 hours, and wait time 3 hours so total travel time 12 hours from start to finish with humira pen and how to keep it cool between 2deg and 8 dec. I have a...
Done anyone ever get a pain on the left side of your bellybutton. I call it the pit of my stomach. It is a sharp pain, and it stay for quite some time. Has any of your doctors said what it could be....
Unfortunately, I am a person who needs to gain weight. I am very scared with the amount I have lost and cannot get it back on, even while on 25mg of prednisone, and 100 imuran daily and 40 mg of...
Hi big betty, no I have not tried the creamy almond butter, or the rice cakes. I will get some tomorrow and try it. Yes, I sure would love to have a couple slices of pizza as well. Thank you. Hi...
Hello All, I have been away from posting on the site for awhile. This last visit with my GI spec I was down to 88 lbs from 93 lbs. I really thought I might have gained some weight, but did not. I was...
Thank you for your replies. I made home made spaghetti sauce on pasta for my husband last evening, I did not have any. But it looked so good, so I just tried a very little bit for my supper tonight....
Does anyone every have any stomach problems with tomato home made spaghetti sauce on pasta? O...
Suggestion: This seems to work for me. If I am wanting to clean the kitchen......I do not put things away at ramdom or just pick things up to put away.....no matter if there is alot of mess are just...
Thanks Ivy6 - for all your motivation. Always, O...
wow, thanks - never thought of low estrogen.... I will look more into that.....I have a lot of night sweats as well. Thanks O...
Thank you, I will take a look at the web site for VE. O...
Thank you Hof95 and jpnutritionfirst for your info. Where would I purchase the V E Enema? Thanks, O...
Hope things turn out so that he does not have to deal with that dreadful disease. O...
Prayers and thoughts for your baby and your whole family. Wondering how she is doing? O...
The little towels are very soft, and they are big enough for cleaning up an unexpected accident. I am sure you will all like them. Very compace and handy to carry in your bag with other items. If you...
I was to visit a friends who has ulcerative colitis and she showed me these little towtabs. She gave me a tube to carry with me. I did have to use it that day after rushing into a garage to use the...
Thank you all for your great advise. I will for sure take down notes of things to take with me and items to purchase before the rush is on and have a list of medical info and medical contact. Sure do...
Thank you Doreen and Mollie, so it is not uncommon. I have mentioned it to my GI but he never really comments on it. I will again mention it to him on Dec 8, when I see him again. I will ask him if...
I have to ask this questions. Does anyone one have (raw rectum irritation) not outside but inside the lower part of the rectum. Not sure if it is from crohns, or if it is proctitis, or if from so...
Snooper, yes you are right, it may be all the sugar and all the other stuff in it. I have not had any for 2 days now - still having some issues but I feel that is still last of nutrition and calories...
Wow, Rootsmith, Glad to hear that you had gained back some of the weight you lost. I sure hope that the Humira works to put the weight on me. I would love to gain about 15 lbs. That would make me so...
Yes, Becktoria, I do not know what I would do with out his love and support through all of this. He is so understanding. That is so sweet what your husband calls you. I am very happy for you that...
Thank you Ari12, Zanne and Cupcakespinkgal for all your additional information. I hope to go for groceries tomorrow and will pick up things like avacado and nut butters and knorr past sides, and more...
Thanks for all your replys. By the sounds of it, it is normal to have lost so much weight and difficult at time to put it back on. Even on Prednisone, and I cannot gain the weight back. I guess it is...
Do the majority of people with this disease have less than their normal weight? O...
Again, everyone thank you. Could you let me know what the following are so I can add to my list. ARI 12 - what is COQ10? Crohnielass - what is Pate? Nicecupoftea - thank you I will try the smoothie...
Thank you everyone for all of your information on what foods to try. I have made a list of everything and will introduce one of the new foods ever other day to see how it sits with me. It is so...
So glad to hear that someone if feeling great........it definately gives us hope. Hope it truly continue for you. O...
Thank you MMMNavy . I will try a bit more peanut butter on my toast for lunch. O...
I still find it very difficult to know what to eat that will not cause me stomach pain and nausea and more diarrhea. It is trial and error every day and a struggle. Couple of days good and the next 3...
Again, thank you for your input. It all sounded to go to be true. Although any type of relief that someone tells you there are testimonials from people and that I can talk to a Doctor who promotes...
Thank you Suzanne. I appreciate your information. I myself, found it so hard to believe, so I thought this would be the best place for me to see if anyone had ever heard of this chocolate or if...