Thanks to all those who have posted! I so appreciate the support. Sometimes I feel so alone on this journey as a parent and it's reassuring to come on here and know Ill get the guidance I need. No...
Well, took DD on a two hour drive to her doctor yesterday. Her doctor was concerned she could have a brain infection..she doesnt. She looks good, has gained some weight. We talked about vitamins and...
My teen is very tired lately and her doctor stresses that Remicade shouldnt make you tired. Doesnt mean she's right, in my opinion. I just know what I see!...
My goodness...sending well wishes from NH....Im so sorry to hear that this has happened to your husband. This must be a difficult time for you. Right now where he is so ill, you are his best...
Hi..that crp test was done last jan also. The most recent one from a few months ago was fine,Im told. Ill get more bloodwork done tomorrow,and vit tests to see if she is deficient and the normal labs...
Im happy it went well for you. It is a bit uneventful for my daughter...she zonks out. They give her drinks and snacks. We even get a tv/vcr to watch tapes, but we never get that far because the...
I like your screen name, describes my demeanor at this time...lol Do you have other symptoms like bleeding, cramping and all that? Im so new to this. Can someone have inflammation even if they don't...
My daughter is on Vit D3, 50000 IU...from Biotech. Im told to give it to her once a month. I have no idea what her levels are but will request tests tomorrow....
Oh, Patricia, I did have her tested for Celiac, but that was back in Jan. The tests came back negative.But her CRP was through the roof....
Thank you all so much for the pointers and advice and suggestions. I need to hear all of this. There was a few months where i didnt call the doctor at all..mainly when she was on the 6mp. This is all...
Ok, Ive only posted a thousand times this week..Thank god for all of you folks! So, dear teen daughter has been exhausted with severe headaches. On Remicade, no other symptoms. Well, my daughter...
For Endeavor, thank you so much for that link. Im sure Im a nag to my teen. Every day Im asking how her tummy feels. I guess I feel like Im failing her in some way, which is ridiculous. But I get...
Thank you for the wonderful reply tsitodawg! You are so right on so many things! However, I have complete faith in her doctor. She works out of Dartmouth Hitchcock out of Lebanon NH. I think she was...
Oh boy. Vitamins now? Like a daily one? Centrum? or something like that? She thinks she might be depressed. Can't get a straight answer from her. BUT, I did cut up an apple and she had some. And...
Thank you to everyone who has replied to my previous postings. Im starting to get overwhelmed with doing what's best for my daughter, who is 15. She has been extremely exhausted lately..last nite she...
Hi..thanks again! My teen is 15, just dx in Jan after about 3 or 4 months of symptoms. No constipation, reflux or anything at this time. In fact, she has more colorectal crohn's..before DX, she had...
Thank you for the quick reply....I appreciate it. Goodness. Well. I got her Biotech Vit d3, 50000IU...now, my teen is very stubborn when taking meds, so I figured that taking the one pill a month...
My teen girl has crohns throughout her intestine, with perinanal issues. Ive been reading up on the disease and curious to know about strictures. The doctor who did her colonoscopy last year was a...
My daughter was put on Vit D, 50000units a month(I got the kind where she only has to take one a month). Also Calcium, and New Chapter probiotics for the colon. I know there is a relation between Vit...
As far as we could see, my daughter had no side effects from 6mp. I think the worst of it was trying to get her to take her pill everyday! Alas, the 6mp wasn't cooperating and now she is on Remi....
Welcome. You have come to the right place for support. You will find a plethora of information AND compassion on these forums. I dont have Crohn's but my daughter does, and even at the tender age of...
I wish It could be me and not my teen daughter, for sure. To be a teen, going D all the time, raising hand to leave class, crying on the toilet and tubes down the throat...no child should have to go...
My daughter was feeling better within a day or two, it seems. Almost seems like a miracle drug. Her skin tags healed over to the point where it didnt hurt to go to the BR, after about a week....
Your welcome for the info. Glad I and others could help. My daughter only had to go to Lebanon one time when she was very ill. Now her doctor comes to Manchester twice a month so we have an easier...
My teen is currently on Remicade after Mercaptopurine did not work as it was supposed too. About 4-5 weeks after her infusion, she becomes restless, and extremely tired. This tiredness keeps her in...
Hi. My teen sees Dr. Edwards who primarily works out of Dartmouth Hitchcock in Lebanon, NH. We live on the Seacoast of NH, and my daughter gets her remicade infusions at Dartmouth in Manchester NH. I...