Thank you notsosicklygirly...
Thank you Joey's dad for the information, it is nice to have other family support. My daughter is 16. Take care and I hope all is well with Joey. Christine...
Is there any support groups in the il that any one uses. My daughter was finally dignose and just wondering what kind of support is out there for this disease. Thank you :)...
I was wondering if any one can tell me if this medation is expensive. We do have insurance but would like an idea what we might have to pay out of pocket. I know it might be different for everyone...