Hi, So I'm just wondering if anyone has ever had a mass in their colon that was NOT cancer? I have Crohn's, have had it for 22 years. Ran out of medication options and in a drug study now. Keep...
I'm not on the west coast but I used to get my Remi at a doctor's office. He is a rheumatologist and does drug trials and that's where I got mine. But I'm in Ontario... I think you should be ok,...
I get rashes with my Crohns.... they've now diagnosed it as Follicular Occlusion Triad. I get a rash in my scalp, weird cystic acne on my face and another rash on my chest. It's almost like cankers...
Have him tested for Crohn's. I had abcesses before they diagnosed my Crohns. Does he have other symptoms that could be Crohns' or Colitis?...
I get arthritis, Erythema Nodosum, eye inflammation, cankers... you name it. My non-Crohn's issues are sometimes worse than the belly issues. But, mine do come and go with the flare ups... so...
I live in Canada- Ontario to be exact, so if I can help by checking out pharmacies, please let me know. We have a few chains that are reputable: SHoppers Drug Mart Pharmaplus Rexall Those are all...
Hi Camy, Remicade can work on fistulas as long as they haven't been there for too long. I have one that I'd had for years before Remicade. The surgeon told me it was too established and had been...
I am in the same boat.... I actually decided to start a clinical trial for MLN0002. Had my first infusion 10 days ago. Infusion #2 this coming Wed. It's a double blind randomized trial so I may or...
Agree with Nanners.... clear fluids helps me... helps to give things a rest which can be helpful. But I'd also get in to see your doc asap.... Good luck!...
Horses work for me too! Don't know if it's the distraction, the relaxation... but any chance I get to hang with my friends and their ponies.... helps me big time, even if only temporarily....
Well said, Willow! Docs don't make money on us being well. Period. I am learning very quickly that I have to be the advocate for my own health. I have the right to questions decisions and ask for 2nd...
Well, I must say that although I do trust my doctors (partially), there is a part of me that now questions my doctors' motives more than ever. Right now I'm in a drug trial. These docs are being paid...
Stages. Hmm. Good tip. Didn't get that from anything I'd read yet so thanks again Dave! I'll dig into that more. Very much appreciate all the info...
Hi Xycron.... I know exactly what you're talking about! I was put on pred by my doc for "Follicular occlusion Triad"... I had folliculitis in my hair, on my chest, groin, butt ... you name it! And...
HI all, so a few of you were kind enough to introduce me to the SCD Diet... I bought the book and read it cover to cover. I have to say, that for 2 days, I've cut out all grains, sugars, sweetners...
Thanks for the feedback. I did go look up the SCD Diet and bought the book on the weekend. It seems like alot of work but if it helps, I'm game! I had a horrible Sat and Sunday.... then last night...
Thanks all for the advice and feedback. I was thinking the same thing- these setons are supposed to make life better, not worse. I see the surgeon for follow up soon. His receptionist said he'd...
Thnak you!!! I was hoping that this wasn't as good as it gets... but when you don't know, you don't know, right? It was fine before.... was sore for 4 weeks post surgery... then I hardly knew it was...
Hi ... looking to get some feedback from anyone who has had their large bowel removed.... would you do it again? How was the experience... any first hand experience would be hugely appreciated. I am...
One think I'm learning after 17 years with this nasty disease is... trust your gut! Literally. If you feel that it's something more than just the Crohn's, push till you get an answer. I didn't, and...
I would agree with kazbern... might be worth a 2nd opinion... if it's "mild", might want to see about starting something with less side effects.... it's hard to go backwards in treatment.... lots to...
Hello... just looking to find out if anyone else had setons placed for fistulas. I had 2 placed in February. These aren't the cutting type. Just the drainage type. Where they are "tied off" on the...