Just read your last post and saw about the specialty pharmacy. That is true, mine is shipped to my work. Always remember to have the medication shipped somewhere where you can immediately put it into...
I was on Humira in the past, had to come off of it due to insurance reasons, and am now back on it thankfully! My first appointment with my Dr. to start Humira I received 4 shots. That is normal for...
I was on Imuran in the past. It made my hair fall out. All of it. I had thick, really thick, long hair down to my waist and by the time Imuran had taken it's toll I had straw that fell out when...
I'm completely stressing out. I've been on Cimzia for a few months now and I've had nothing but issues. Injection site reactions, extreme pain during injection, daily headaches, severe joint pains,...
Not sure which doctor to go to for my hip and back pain. :confused: I wanted to look some up in my area yesterday as I had the day off work but some dingdong hit my car and I wound up spending the...
LOL Sniper. I think I have that problem myself, except I'm the cook and I have a family to cook for so it's not like I can starve them in order to lose weight myself. And if I slave over the hot...
tsitodawg - I tried everything to get Humira and even with their help it would still cost me $800 out of pocket a month due to it's cost, my copayment, and that the Humira patient assistant program...
I'm at 159 now after Prednisone for a few months. I've been as low as 90 pounds and as high as 230 pounds. My average the last 5 years has been 145 and I'd like to get back to that point because all...
Yes, I'm on Cimzia and my insurance changed to a very high deductible and out of pocket cost which is why I had to stop Humira. Even with the Humira plan (copay assistance) and my insurance it would...
Yes! Long live stubbornness for sure! =)...
My crohns did awesome with Humira and I wish I could still be on it but my insurance prescription plan changed and they no longer will cover it nor will they allow a 3 month supply and they are...
I'd have to agree with FunGuy about feeling better after the scope. Although I do tend to get gassy as soon as I eat anything after a scope too. I know that they use a lot of air while doing them so...
Thank you! I wouldn't have even known who to see! I never talked to my GI doctor about my other issues because I guess I am used to "not complaining" about things and figured he was just for my...
tsitodawg - hit it right on the head with his statement! Our bodies do hoard! As much as I am aware of this it still drives me crazy because although I'm not extremely heavy I've gained almost 20...
Oh yes, I'm actually happy for you that you received the Miralax prep and not the golytely (which I have always referred to as go-ALOT-ly) because that one and it's smaller version of halflytely are...
During my last hospital stay the doctor told me I most likely have arthritis and that usually Crohn's patients develop arthritis in time. But do I talk to my GI doctor about that or my primary care...
I can't be sure. But what I do know is that I went gluten free 2 weeks before I was hospitalized and my Crohns was worse than it has been in 11 years according to my GI doctor (who has been my GI...
I can not handle Prednisone at all. I was recently on it for 4 months and have gained a ton of weight. I'm not bone thin anyway and luckily caught this flare up before I got extremely sick and lost a...
Chrisnsteph - Technically they say that if you do inject it into a blood vessel then you are supposed to discard the syringe and start again with a fresh syringe. But the chances that you will hit a...
Roni - I don't know, I never thought of bowel spasms. I go from being fine to doubled over in pain and it's a pain that I know right then and there that I have to go to the bathroom. I never get the...
montana yoda - Thank you for replying! Yes I reported the reaction the first time to my doctor and the Cimzia nurse line. The Cimzia nurse line filed a report of the reaction and made this huge deal...
Is anyone else here on Cimzia? I have no problem injecting the medication as I was on Humira previously but the injection sites seem to have weird reactions for me. The first time it left a hard...
Would a CT Scan or Colonoscopy show strictures because I've had both within the last year. I either have constipation or diarrhea usually, there isn't much of a happy medium with me. And I know about...
Thank you Ivy! I agree with you about the Doctors, maybe they should follow us around for a few days and see what it's really like! Thank you again for responding, I've been going through this for...
Whenever I have to go to the bathroom (a BM), it is a sudden and very painful feeling. I am literally hunched over in pain and have to walk that way because I can't even stand up straight. Sometimes...
GSD1234 - Let me look for it. I know I saved it but just not sure where right off hand. I will definitely give a look for it for you though! It's a pretty bland diet, I'll give you that much. But...
Serenitee: I have a question and don't know how to reply directly to you or email outside of this thread so I apologize. But I read your surgeries listing under your name in the post above and my...
Hello GSD1234, I'm sorry to hear of your recent diagnoses and also welcome to Healingwell. When I was first diagnosed I was given a list of foods to avoid as well as the very bland options to choose...
I was on Imuran when I was 23 for my Crohn's and the doctor said he wasn't concerned about hair loss because my hair was thick and healthy. I was completely freaked out when I realized my hair was...
My Crohn's had been under control for 3 years with Humira. I could actually eat whatever I wanted except dairy and had no issues. In January my insurance changed and I could no longer afford Humira...
Thank you for the replies. Yesterday was an interesting day. I called Cimzia about the reaction I was having to my injections and their reaction was slightly frightening. They filed a report with the...
I signed up for this site and didn't realize it, or forgot I had signed up. So I'm not sure if I've already done an initial post before. I found the site again while looking up injection site...
[color=green>Actually] it and understood. [b][color=#008000>This] to start taking time off already. I don't know about anyone else but I'm the only one supporting me. No parents, no husband, no...
[color=green>Oh] Oh goodness, that makes me nervous now... I just want the pain to go away. I can deal with the every day pain, even the every day symptoms and having to watch everything I take...
[color=green>Thank] Thank you all for the welcome, that was kind. [b][color=#008000>As] I just ended my job as a group home supervisor, but can work there whenever I want to help out or train. I am...
Hello] Also I'm planning on moving (my doctor doesn't know this yet), but it will be across the country and I'm nervous about finding a new doctor. I stuck with the doctor that diagnosed me and I...