Hi Mathias. I've been DX for 12 years now. During that time I've had years were I was not on any medication and was able to deal with my symptoms on my own by watching what I ate. But that's all I...
I'm sorry you're not feeling well and I hope the Pred helps you soon. I'm currently in the hospital right now myself so I know how frustrating it can be. Sometimes it's what you have to do though to...
For those who have had a stricture or partial obstruction...what did it feel like and how was it diagnosed?...
I take Bentyl also 4 times a day...can't really say if it's helping but I keep taking it just in case as the meds they're willing to prescribe me are fairly limited since I'm pregnant....
Thanks. I go to my regular doctor tomorrow as a follow up so I plan to discuss my predicament with him :) I've been able to reduce my Dilaudid a great deal and Im hoping tomorrow Ill be able to stop...
Thanks everyone! I had the reversal nephrostomy yesterday and they were able to internalize the ureter stent. It went great and they discharged me a few hrs later! Im now home and feeling fantastic....
Not really IBD related but I thought I'd update: I had posted last week after experiencing extreme left flank pain. The culpret ended up being a completly blocked ureter, caused by a stone that had...
straydog, thanks for your help. to answer your questions: right now i have no idea when i'll be discharged. they have been saying "tomorrow" since last friday. but my white blood cell count keeps...
prednisone for me (at 60-30mg) help almost immediately with urgency, diarrhea, and fatigue. it causes a lot of insomnia, but despite lack or rest i have more energy while on it than non on it and...
Well I was not too impressed. He only asked me where my pain was (Left flank) and what I've used for pain in the past during kidney problems/post op (vicodin, Norco, or percocet). He was like ok well...
What should I expect from the pain managment dr? I'm currently in the hospital and being treated for ureter obstruction caused by a stone/and or scar tissue from numberous procedures recently. (I've...
Thanks everyone for your insight. Im still in the hospital focusing on my kidneys and awaiting the 3rd surgery for this hospitalization (it'll be surgery #5 in the past 2 1/2 weeks!). Im now on 30mg...
Does anyone have a nephrostomy? I had one put yesterday due to ureter obstruction/kidney stone. It hurts so bad I cant get comfortable laying down do to the pressure on the tubing. Not to mention I...
Thanks! Im in the hospital right now for kidney stone/ureter stricture so here in the hospital they switched it to one does in the am. Still am not sleeping but I've also had two surgeries the past...
Tsitodawg- thanks for your reply :) sry to hear u r goin through something similar. I had the nephrostomy today. They were able to put a stent in through the kidney so I have a stent in my ureter to...
Has anyone had a nephrotomy or ureter repair for a structure? Im currently in the hospital and being treated for kidney stones and a blocked ureter. The stone embedded in scar tissue in the ureter...
Thx mtgman...the ureteroscopy today was unsuccessful :( my ureter is so obstructed from scar tissue they were unable to put anything through it to put a stent in or remove the stone (2mm...so small...
Update: my white blood count spiked at 22000 so they decided they needed to do a ct after all. Turns out I have a stone in the ureter (how I don't know since he got it out just a week and a half...
Thanks so much everyone. I told them my fear of having another Ct so they did ultrasound and plain xray. Which showed the kidney was im flammed. My white blood cell count if very high so he wants to...
Thx went to dr who saw blood im urine so not ruling out kidney problem but sent me to ER since not having a bm was concerning....
Thank u. The pain is similar to what nanners described...i did just throw up which tasted like bile and was orange (granted I only ate a few crackers when I took my pred). I haven't had a bm since...
Thank u. I some how drifted off to sleep for a short ten minutes only to be woken up in pain. I had two Ureteroscopies/hospital stay a little over a week ago so there isnt a stone on my left. I did...
Starting last night I woke up in extreme pain on my left side. The pain is a constant pain in my back that wraps around to the front on the left side just above/level to my navel. It varies in...
I can understand your frustration to an extent. I have a similar sort of diagnosis ;) I was dx with IBD undetermined type and my blood marker test came back beg for both UC & Crohns. I at times have...
I don't think you're paranoid. I remember countless times going to the dr as a child and him suggesting taking Advil...my mom would then explain how Advil would get me sick for a week after just one...
Thanks very much. I began including my symptoms, the foods I ate that day, prednisone dosage, and pain level. I figured that would be a good start. I appreciate your input and I think I'll do what...
I generally have followed a low residue diet since my original diagnosis. I just cant tolerate milk products, raw fruits and veggies, whole grains, etc. I do eat primarily well cooked veggies, meats,...
I sure struggle with this. In my case I feel chronically tired all the time which makes my motivation to do the daily grime things go way down hill. I usually procrastinate a looot or when my husband...
Sounds similar to something my husband had before he deployed. It started as a pimple looking thing, then kinda a possible ingrown hair, and a few days later kinda looked like a spider bite. It...
Thx...nanners can ask y the drs prescribe a split dose esp if they know it causes such insomnia? Im Leary of changing my schedule to other than what's prescribed (goody to-shoes like that?) because I...
Hammonsma since you replied to an older post (which I myself found helpful) I wanted to reply to you. Im new to the boards myself so am no expert. I struggle with understanding my own diagnosis most...
I just wanted to send happy thoughts your way. I hope that your son is able to find what will work for him in this particular flare. Im a 23 yr old college student (female) and I will say that I...
In the midst of a flare I began writing down my symptoms, number/type of d, dose of prednisone, etc. In the past I would do this from time to time to try to find correlations to my symptoms and other...
I have had a rather interesting kidney stone experience to finally find out that I have calcium oxalate stones known as Randall's Plaque disease. I was told to emilinate tea, green leafy veggies,...
I know these posts are a few weeks old but I felt the need to respond anyway just in case :) AuburnByrd - I have IBD too (undetermined type but I believe it to be Crohns) and calcium oxalate stones...
First of all, I want to let you know I understand your frustration and am sorry that you are going through this. The pain felt from kidney stones is one that is by far one of worst pains....and the...
Thanks for ur help. The instructions he gave me for the prednisone was splitting the doses in half so initially 3 10mg in the am & 3 10mg in the pm. ..eventually getting down to just 10mg in the am....
Thanks songlady. I apologize for my post format im on my phone so that's y im unable to properly do paragraphs and sometimes autocorrect as a field day and the wording maybe wrong. I apologize! I...
Thanks for your help. To answer your questions, I have posted in the crohns forum as like u guys feel my ibd resembles crohns rather than strictly uc. I have not been on maintence drugs during the...
Hi *waves* im new and wanted to ask a question for u guys. My question is is it possible to have both uc and cd? Has anyone had trouble getting a proper uc vs crogns diagnosis? I feel kinda alone and...
History: dx with ibd undermined at she 12, now 23. Had multiple flares requiring prednisone but once feeling better I always opt for the no drug route. Now after undergoing several surgeries for...
Aw ur story almost made me cry. Maybe thats the prednisone mood swings talking or just that it hits home. There have been so many countless times where I've had to cancel plans or leave early because...
I've had a similar battle with the uc vs crohns battle my first diagnosis was at age 12 when I was diagnosed after a major flare leaving me in the hospital for a few months (colonoscopy/endoscopy...
Thanks! I went to the dr and he took blood work, wrote a script for prednisone and a referral to the gi I really hate prednisone...it makes me gain weight and have a bloated face but it def does help...
Let me introduce myself...I am a 23 yr old female. I have been suffering from tummy issues my whole life. My diagnosis was at age 12 as Inflammatory Bowel Disease Undetermined....because at the time...