Thank you blueglass! I've been reading a lot and i think it would make sense to take pentasa for now. I think 6mp is too aggressive for no current disease right now...right? He was on it before with...
Hi everyone! Hope you all are doing well. My husband just passed his one year anniversary since having his permanent ileostomy. And life is good!! We spend every weekend out and about with our...
What causes stenosing?...
It shouldn't be any problems with getting approval from insurance as long as your dr is on board. My hubby's crohns was in the large Colon and his entire large colon was taken out. The output is more...
Keep us updated! If you have any questions or need contact info, email me!!...
I agree with bdereh..it is so important to find a good surgeon that has done thus many many times and is caring enough to listen to their patients. UC Irvine Medical Center is a teaching hospital and...
We live in CA and my husband adores his surgeon. His surgeon is a colorectal surgeon at the UC Irvine Medical Center in Orange. His name is Steven Mills MD and he is unbelievablely compassionate and...
Yes..healthy people will never know how special it is to be able to do simple things in life like go to the grocery store with your baby! He says everyday how grateful he is to be able to bond with...
I guess it really depends on what your current quality of life is like...my husband has been dealing with Crohns for 18 years with the last 3 years being yell. He had surgery 10/11 and now has...
Hi keepfaith...my husband has CD and his CD was pretty much all through his large intestines and very severe rectal disease. He's tried all the mess and just kept getting worse. In his last...
Hi..I'm so sorry you're going through this...my husband has major rectal disease and he was in constant excruciating pain all the time. Could not sit, walk, etc...all the simple things in life. Well,...
Here is what my husband does if it helps any... He does shave the area around the stoma Dry off Pluck with tweezers any hairs he missed Skin barrier wipe Very little powder if needed Rewipe again...
Thanks...yeah you guys replied what I thought..so thanks! uc free- why did you have to get your stoma relocated?...
Hi all! I haven't posted in a while, but have been lurking in the posts! Hope you are all doing well. My hubby has adjusted well to his ileostomy which be got done 10/31/11. Had a few trips back to...
Wow cece!! Awesome picture! My husbands pain is gone! We took our 17 month old daughter to the petting zoo, rode the little choo choo train, and strolled around the park for a couple hours....it was...
Thanks for all your replies! He started feeling better yesterday and today's much better too! So, maybe it was the trapped gas... Thank God!...
He thought it was the trapped gas too...but the gas x isn't helping much. Can trapped gas last for a few days? Thanks for all your suggestions!!...
Hi guys! Hope you all are having a great start of the year. My husband has been doing really well. More energy than he's had in 6 years, happy and eating a ton! Hasn't tried veggies yet after...
Also is your GI worried about stopping and restarting Humira and building up antibodies?...
That's so interesting...I had just posted a few days ago about probiotics. My hubby is on Humira and his GI does not want him on any probiotics. Because of his suppressed immune system, there's...
Hi southpawcannon... Bless your heart for wanting to be supportive of her through this tough time. I do not have Crohns but my husband does. He had Crohns since he was 14-15 or so. He's now 34. When...
Wow thanks for all the feedback! Vixen- that totally does make sense. I guess its a cautionary measure my hubby's GI is taking. I talked to my husband about it and we're going to think about it and...
You can get a prescription for Vsl #3 and get it covered under insurance. Do you guys think eating kefir or yogurt everyday is as helpful as taking probiotics supplements?...
Right that's why I'm confused...hmmm Why do a lot of Crohnie's react badly to vsl#3..is it something special?...
Hi guys- so I'm trying to get a prescriptions for vsl #3 (probiotics) for my husband. And his GI said she doesn't want any of her patients that are on biologic meds taking vsl #3. Actually she...
Hi Christine- it might be a partial blockage. Try drinking grape juice and walk around the block. For nt husband, when he had a partial blockage he walked and moved around and that moved everything...
Oh also diet changes helped tremendously. We tried the Maker's diet (similar to scd diet but it allows some grains). The biggest benefit we saw was from cutting gluten and sugar. Once cutting it, he...
Hi whelp...I'm so truly sorry that your son is going through this and I cant imagine how you must be feeling as a mother. My husband has Crohns and the last few years have been extremely bad and...
Ostomy secrets has a swim belt coverup for men that's cheaper than the stealth belt...
Surgery is such a hard decision. My husband decided surgery when meds were all exhausted and his quality of life was pretty much a zero. He fought surgery for a very long time. He had his ileostomy...
Hi Lovely...Congrats! Are you still on Humira? And do you still have active CD? What kind of surgery did you have?...
Wow! Is the Humira working for your CD? My husband is actually the one with CD. He recently had surgery and now will live with an ostomy...which he is loving life right now! It's been 5 weeks since...
Hi...has anyone had success with Humira healing their fistulas? If WP, how long did it take?...
Had follow up appt with GI and surgeon today. GI said to continue Humira until fistulas are healed. Then we can look at more non aggressive medication. Good news is it looks like fistulas are getting...
Thank you flchurchlady! It doesn't change the way I see my husband or love him any less...probably more because I see how strong he has tried to be through all his sickness. That's why I think you...
Blueglass, sounds the the same as my hubby...he went through all those meds too. Strangely, when he tried Asacol several years back, he got so sick. Another IC Wife, that's wonderful! It's hard being...
Hi guys! My hubby is 5 weeks post op and doing great. He has an ileostomy and says he has no regrets. So, he has his a follow up appt with his GI this coming Friday. His small intestines are clear of...
Hi...my husbands has had fistulas forever and this past year it git really bad because his Crohns was at its worst flare continuously. He kept getting fevers, abcesess, etc. Then 8/2010, he got 6...
If you have a personal policy (not through the government) you should put in the claim. You will want to speak with your Dr to support your claim of not being able to work. Is your policy an own...
Hi Jon, It makes me so sad reading your post.. I dont have Crohns, but my husband does and I know how your gf feels. It's hard seeing your loved one suffering..but I know its hard for you to know...
My hubby just came home from the hospital last week from a blockage. He hated the ng tube more than anything. He said the most helpful thing was walking a ton to get everything moving. Since then he...
I'm thankful for having my husband be healthy after his surgery on 10/31/11 and my beautiful baby daughter. I'm thankful that there is medical procedures available to give my husband back his life....
BTW, he's 33 years old...so not as young as you, but fairly young and will have a bag for the rest of his life. But after only 3 weeks, he's getting used to it and seems pretty content with results....
Hi Casey- It's a hard decision..one that you only start thinking of when you are at a point in your life where quality if life is pretty bad. My husband has had Crohns since 15 yrs old. We've been...
Hi blueglass! I got the tube top from amazon!...
Hi guys...sorry to update so late. My hubby got admitted to the hospital yesterday because they believed he had a blockage. He got a ng tube put in and he was miserable. He said he rather be in...
So pains were so bad again this evening. Then he just vomited right now. But he's output. Could it be a blockage?...
Oh thank God! This morning his bag was filling with gas like crazy! It still is quite uncomfortable, but better than yesterday. Thanks for the feedback....I was going crazy worrying last night. :)...
Thanks Blueglass..you always have great advice. I didn't think to check his temp..will do now!...
He's been doing so well the last few days. Today, he fell asleep and went too long without a pain pill and also went a few hours went about 5 hours in between eating. When he woke Jo from nap, he was...