Hi All, Doc says my iron is low and I need to start taking iron pills. I have the most sensitive stomach and looking for suggestions. Doc says to take low dose iron to help w/side effects? What do...
Hi everyone, Just had crohn's blood work done yesterday and it came back that all was well except for chronic anemia? /community/emoticons/mad.gif What can I do to fix the anemia?? Tks so much ~...
Hi Everyone, A strange symptom? I seem to have a pain on my outer my right thigh and it's not been getting better. Been like this for a week. I had painful #2 about a week ago. Then my right buttox...
thank you everyone. my gi and I have been discussing endocort for a long time. he was going to switch me to 6mp 4 months ago but I was doing well so he changed his mind. we both know it's time to...
Pentasa ...did NOTHING for me. started on that and had DDDDDDD all the time!!! do i want to go to 6mp???...
seeing the doc early Dec to determine next set of meds.....very nervous! what's next in line if my symptoms are minor???...
Hi All, I was diagnosed w/crohn's in 2010 in my ileum. Today, I'm doing well. Take 1 or 2 entocort daily. However, last week had a terrible bout of flu? (or ate the wrong thing?) w/pain and stomach...
thank you for your post. it seems when i take antibiotics, i attract c-diff?? big ug? but when my cheek is swelling fast, i have no choice but to start antibiotic! bee propolis caps 500mg one cap...
calling gi now...tks!...
tks so much...doc ordering 3-day z pak and seeing her in the morning to determine the cause. i've been on budesonide since 2010. doc wants me on 6 mp but i've been stalling as i do not want to deal...
Hello cronies ~ I was diagnosed w/crohn's in 2010. I am doing well and on 2 pills of budesonide. my teeth, my teeth, my teeth....?? i have a very infected tooth or it's the gum under my bridge. my...
thank you so much for your reply! another hiccup -- had a bladder polyp removed last summery that was a bad boy? that's the other reason i'm leary going on 6mp? my bladder doc said we need to wait...
got put onto 6MP... you are exactly who I'm looking for. my gi wants to put me on 6 mp. had an mri a month ago and it's showing active crohn's. the budesonide is not working. besides it's giving me...
Hello everyone ~ In my 3rd year of crohn's and learning to manage it. Certainly much better than in the beginning? I ate 2 coconut macaroons Sunday nite (made from scratch) and it took 3 days to...
hello everyone ~ My doc wants to wean me off busesonide (giving me osteopenia)and start me on 6mp. however, i had a bacel cell removed 2 yrs ago and cancer bladder polyp removed this summer. should i...
Well...mistakenly, I forgot to take my 3 pills of budesonide Fri morning? Woke up at 5:30 am Sat morning and ran downstairs to take them. 2 days later I am now having pain to the right of my belly...
Hi everyone ~ Over the last month, I've been having issues at least once at week when I need to take 2 immodium. My drug of choice. I feel great when on it. After 2/3 days, the plug comes out. But...
tks... interestingly enough, the CT scan showed no mass. could have been inflamation due to crohn's. however, they did find a polyp in my bladder? getting that checked next week. always something ;-)...
Hi everyone ~ Background...Sept 2011 I fell against my bathroom sink after tripping on a cord. I was stunned? Went to ER thinking I broke a rib. Did not. Badly bruised. 3 days later had back spasms...
hi everyone ~ For the last month I've been getting weekly cramping episodes that are followed by muddy "D". if i take 2 immodium i don't go for 3 days. actually, feel great on immodium. have been...
Sorry but I don't know that answer. You'll need to check with your doctor. be well ~...
both times I had c-diff was after taking antibiotics and this was a year apart. 1st time 2 weeks after getting out of hospital, 2nd time after taking anti fungal meds. when our immune system is...
depending on how severe your c-diff, use Dificid pills (2xday) for 14 days and it worked. was the 2nd time i had c-diff in 12 months. yes, it is treatable. prior i used vancomyacin. this past time...
Ok, I've been feeling well...until Last nite I ate a turkey off the bone sandwich w/honey ham (very little). Within 2 hours had cramping and when I went to the bathroom I had formed stool but the end...
fyi... cannot go back to entocort - penalty co-pay $248/mo! found out the active ingredients are the same, fillers & binders may differ. FDA only requires active ingredients be the same. what a...
tks... have been on entocort for a year. 3 mo's ago it went generic. that's when i started to flare...at least i think so. (not severe). felt great this summer, then bam? last 4 months... issues....
thanks all so much! you help more than my gi doc! yes...we're sticking to liquids today. my poor tummy ;) /community/emoticons/mad.gif tks for deleting the double post...not sure what happened there...
So...presently I'm in an 'active' flare. take 3 budesonide daily. 4000 fish oil and 150 probiotics daily. Just increased my fish oil yesterday, then ate a plain hamburger last nite. Woke up at 4 am...
tks for the book link...sent it to my doctor. how are you making your own yogert? what is SCD? i'm lactose intolerant and would love to make my own w/soy milk. Nancy...
Thank you for your response. With that said: how is it that patients w/Epilepsy must only take brand name drugs? if the FDA only requires the 'active' ingredients be the same, how come they cannot...
Thanks Dave for your reply. Any and all info is greatly appreciated. Nancy...
6mp, try either Azathioprine or Imuran thought 6mp was Imuran? Are they 2 different drugs? Azathioprine I think is in the same family as Pantesa, which I cannot take. So that one is out too. tks for...
Just got off the phone with my GI and a bit frustrated? I'm currently on generic Entocort the last 3 months, hence I'm now flaring. Side soreness to the right of my belly button. I want to know the...
I too have switched from brand Entocort to generic w/in the last 3 months and a recent MRI showed 'active' crohns - grrrr? /community/emoticons/mad.gif My benefits dept has denied to switch back to...
Well...I feel better already just reading your replies to my post ;-) There is such red tape when filling a script w/non-generic meds when a generic is available. price is thru the roof! have the...
My recent MRI test shows that I am in a flare. grrrrrrrrrrrr?? I started generic Entocort 3 months ago and feel this is what has caused the flare. In addition the z-pac that was necessary due to an...
Nanners...tks! ;)...
What is IMHO? I'll look into the colostrum. tks much!...
tks... yes we're doing the c-reative protein blood test 48 hrs prior to mri. tooth is fine. pain is in the bowels....
Yes, getting the name brand is our 1st course of action. Tks much!...
Hi Everyone, I've been having some right side pain and stool that is just plain weird. Long and soft, curling at the end, but not diarrhea. Doctor has ordered an MRI w/and w/o contract. Did some...
very funny post! we need the laughter ;) blacky said... I am the same way Zanne, how do you tolerate Ensure and Boost, I gag at the slightest smell of it. When I was in the hospital and they "made"...
The past month my poor bowels have been thru the ringer. Had oral thrush so was put on nystatin 4xday for 14 days. Taking last dose I started having painful liquid stools, c-diff positive. Put on...
thanks...I am taking 50,000 billion probiotics daily and finally found a lactose organic yogurt with low sugar. Gi said I can take imodium. That should jump start them back to normal. Hoping!...
A month ago, I had oral thrush. Was put on nystatin for 2 weeks/4xday. As I was taking my last dose, had bowel issues. Tested positive for c-diff. A week on vanco 4xday but then found Dificid and was...
teenw/cd said... I took pentas, for 6 months leaving me with more side affects than the disease itself.Terrible attacks bad diarreah if your experiencing something but the norm,this is not for you....
Nanners said... Pentasa gave me more diarrhea. I am now successfully maintained solely on Asacol and in remission. Good luck! Nanners, I'm stopping Pentasa today as I also believe it's giving me...
PV, Thank you so much for your kind comments. I was trying to comply and give ER a sample but I could not produce one :) I had gone in the morning and have had no appetite. Unfortunately, all...
thank Patricia....it's all good what you wrote. stay tuned ~...
Thanks Nanners....so helpful to learn from everyone here. Just sent my gi doc the question about probiotics? What calcium do you take. I had issues w/pain on it? Nancy...