Your posts have given me lots to think about, many thanks!...
Thanks all for your kind words, I am happy to say he has woken up a different boy this morning! I am sure it takes a lot longer for the 6MP to leave your system and the side effects to stop but he is...
You are in my thoughts, it is heartbreaking to look at your children suffering from crohn's as there is no logic to it's progression and it certainly has a destructive mind of it's own. I think as a...
Thanks to you both for your replies, in my experience with crohn's to date supplements have not been recommended only medications which I feel is a shame. My son is on a benzoate, E210 to E219 and...
I noticed a lot of people take supplements for crohn's, my father, son have crohn's and I have been recently diagnosed but no-one here in Ireland has advised supplements, can you please tell me which...
Thanks Lesley, it is heartbreaking as he was diagnosed with oral crohns and mild inflamation of bowel when he was 7 and has thankfully been very well up until now, he lives for his sport and does...
Many thanks for your reply, thankfully his doctor agreed this evening to him stopping 6MP and to revisit it after Christmas, I know it is not the long term solution but will give him a lift hopefully...
My 13 year old son starting 6MP two and a half weeks ago and has been feeling unwell, very tired and experiencing chest pains that also go under his arms. He had two episodes where he had severe...
We got to the hospital at 9.00am and for some reason did not match his blood type until 5.00pm so his transfusion wasn't finished until after 10.00pm, we left the hospital to travel home (1.5 hours)...
Thanks Vicky...
Yes he has been passing blood but in the last few months it had gotten abit heavy, yet he still played all sports and didnt moan or complain. I will keep you posted about the BT. Its my intention to...
Thanks for your reply, my husband sent the first message being on night shift and the great dad he is, i am sending a quick reply before I fall into the land of nod and hijacking his post -...
Could somebody give me some advise as two what the reaction will be to the BT. My son has been on a strong steroid for the past two weeks. He has a low blood count of 7.6 hence the transfusion. Its...