Ok, does everyone know that you DON'T have to drink all the prep. This goes for any prep. You just need to drink it until your bm's are clear of any solid waste. I found this out when my Mother had...
I have been on Humira for over a year now. It controls my Crohn's pretty good but the shot is hard to do still. I have found that if you leave the pen out for about 10 minutes and let the med get a...
Your pyloris (the connection between the stomach and the small intestine) may be swollen shut. I have that same issue and have had to have the pyloris stretched 4 times last year at least. I know it...
You can get Crohn's anywhere in your digestive tract, not just in your intestines, although that is usually where it starts. I can understand your fear. I was 20 when I found out I had it and I had...
Hey there, You shouldn't have stopped the prednisone cold turkey....it HAS to be tapered off. It pretty much dissolves when it is going down so I doubt you were throwing it back up. I had to take...
Hey there, I had my first surgery / resection when I was 24, I am 40 now. I know all about it. LOL. The main thing is to remember to try to avoid things with seeds or peelings (like tomatoes that are...
Hey that was fine hun, I don't mind reading. I am glad to know that there are people who understand what it is like for us. I am the only one in my family with Crohn's. It sucks cause when the pain...
Wow that is a story and a half Dawg. Thanks for sharing it. I have actually tried Demorol for the Crohn's pain but it didn't help. I used to be on Methadone when the avascular neucrosis was in my...
Thanks for the welcome Dawg. I am currently experiencing a flare of Crohn's. I have excruciating pain and pain meds don't work. Do pain meds work for you?...
Thanks Vicki! I am here to help and I hope I can....
ROFL wow that is funny!...
Congrats on your return to work!!...
Hi Juliet, I have the same problems with my Crohn's sometimes BUT my doctor's know that if I say I am sick, then they better pay attention. I have been right every time my symptoms start and they...
ok so a seton is just a drainage tube then?...
OMG I am so glad I saw this thread!! I am dealing with this right now!! The corners of my mouth are cracked / split and get scabs, well the scabs don't help cause as soon as I open my mouth wide, pop...
ok i am gonna sound stupid here.....but why is everyone going gluten free??? and what does it have to do with Crohn's??? I am just curious......not trying to be a smarty. :)...
Thanks orngie, I hope it is too! LOL....
Thanks conmire. I appreciate it....
Thanks Gumby, I have enjoyed it so far. I feel not so alone now. I am the only one in my family that has Crohn's everyone else has Diverticulitis....
Thanks I appreciate it. :)...
I am on disability because my Crohn's is so severe. I have to keep track of all my doctor's appointments because every 3 years they re-evaluate my disability. It sucks especially since there is no...
Yeah I had all of my colon and part of my small intestine removed in my first surgery. That was in 1995. Then in 97 my rectum ruptured and I had to have the ostomy. Then in about 2001 I had to have...
Thanks for the warm welcome everyone. I have been reading the most recent posts and responded to the ones I could relate to. I hope I helped someone. :)...
There is no cure for Crohn's as has been pointed out. It is not just confined to the colon and small intestine either. I have an ileostomy and my Crohn's has been active since a year after I got the...
I am glad he is so optomistic about the surgery. I have an ileostomy. I have to tell you it will still change your life. I had to have mine because my rectum ruptured. The surgeon said have it or...
Hey there, I had a peristomal hernia a few years ago and the only option at the time was to move the ostomy to another area and fix the hernia. Well that worked but it left behind scar tissue and the...
Hey there, I had 3 or 4 fistulas down there and when I had mine, they took me to the OR and cleaned them out and then took gauze and packed it. The gauze would come out a little at a time and I would...
OK even with Medicare, you should get a reimbursement check for part of the amount. I did when I first had to get my supplies. You need to talk to his supplier and tell them to file it with Medicare....
Yes you can take Humira or Remicade. Humira you can give shots to yourself but the Remicade you have to get it at the doctor's office. I am on Humira and it worked for me. It takes a bit to get the...
I had the doctors at one hospital tell me it was all in my head and I was making myself throw up by putting my fingers down my throat. Well less than a week later I was on my death bed (literally)...
I know I am new here but I know how you feel. I wish you good luck and sending you good thoughts!...
I have been lucky with the eye problems I guess. My Crohn's has been mostly active for the past 20 years so I would have thought that I would have had this happen. I am glad it hasn't. I am sorry for...
Hello everyone! My name is Beverly, I am 40 years old and have had Crohn's for 20 years. I was just googling other info about meds and came across this site. I liked it so joined. LOL. I am post...