I have been on entyvio for at least six months now. I know it can take months for entyvio to work, and it always makes me tired up to a day after infusion. Are you on b12 shots? That could really...
That's great news, cupcake! I'm glad to hear it. I have had my ostomy for six months now, but its temporary. I want to make it permanent, but I am also dealing with pyoderma gangrenosum around my...
I have a rectovaginal fistula. It was created after having a bartholin gland excision. The gynecologist that performed the surgery is notorious for being a bad surgeon. Unfortunately, I didn't know...
Thank you, bania! I see you are on entyvio. I have used entyvio for the past six months now. Has it made any difference for you? Do you have small bowel crohns?...
The last time I got sick I had cheese and crackers. It could possibly be cheese and/or triscuits. The time before that was granola. It is always severe pain in my stomach area before I start throwing...
I have crohns disease. I have had an ileostomy bag for six months now. For the past month, I have had extreme diarrhea and vomiting about once or twice every week or two. I finally went to the ER the...
I have had an ileostomy for six months now, and the fistula I have is still open and not closing at all. Its not as irritated as it used to be,obviously, but it will not close on its own. I know how...
I hate to know that it doesn't seem to work for very long. A few good months go by fast. I'd like to share a little of my experience so far though. I started it about six months ago, but ended up...
I have an Update for those in similar situations. After seeing my surgeon again, I have learned that I have pyoderma gangrenosum. Pyoderma is a skin manifestation of crohns disease. Fortunately, it's...
I thank you all for the input. After seeing my pcp, I was told that I have a pseudomonamous infection. She prescribed cipro and gave me some betadyne swabs to clean with. It is still sore and...
So if the blisters open up and start to look more like ulcers, would it still be OK to put maalox on it?...
Thank you for that info! Unfortunately, I am two hours away from a stoma nurse. I was told to make an appointment with my primary Doctor. Hopefully she will be able to get something done because it...
I have had my ostomy for seven weeks now. I thought my problems would be over by now, but I've been slow to heal and have had some leaks. I'm using a two piece Hollister bag with a barrier ring now,...
After three years of trying to get into remission, I decided to undergo ileostomy surgery. Now that I have it, I'm wondering when I'll ever feel normal again. Just a few questions for those of you...
I am going to be asking my Dr if I can have my colon removed since I have failed all medications. If I were to have my colon and rectum removed I wonder if there is any way they could do a...
My Dr doesn't think remicade will do any better than the humira. I keep wondering if I should get a second opinion, but he has been my Dr for so long and is supposed to be the best one in my city....
Has anyone tried kefir? I think I may have c. diff, but won't know til tomorrow. I've been feeling less cramps since I started drinking the kefir. I only drink it in little sips throughout the day....
I usually have more yellowish stool. Yellow to green and greasy b.m. most days. I know I'm probably not absorbing food properly. I've wondered if I'm gluten intolerant, but If I were to get tested...
Instantcoffee...What do you get to eat? So far, Flagyl and cipro are the only two medications that really help control the diarrhea....
What other medications are you taking? Did you feel better when you had an ostomy? Do you have disability or fmla? I hope it all slows down soon. Frequent diarrhea is exhausting. I hope you're able...
Do you have crohns disease? How long have you had c diff and what are the side effects of it? I've never had a prometheus test, but I am on Flagyl. Whenever I stop taking Flagyl my D gets worse. If...
Has your Dr put you on any other kind of biologic? I'm surprised that surgery wouldn't help. Having the diseased portion of bowel cut out can help. I'm also on humira, I take it once a week and it...
I have been flaring for three years now. I have already had all but ten inches of my colon removed, so I know I am going to go to the bathroom more often than most, but after having a sigmoidoscopy...
I appreciate the advice. I will definitely Keep asking my doctor why I can't just try remicaid first....
I have been on humira once a week and prednisone for two years. I still have a lot of inflammation in my colon. I have D several times a day and at night. Medicaid is no longer wanting to cover the...
Best of luck to you. It's hard to go through all that with the tubes and stuff, but you will get through it!! What doesn't kill us makes us stronger....
I had my ileostomy reversed last friday and have been in a lot of pain since. The pain is mainly around the incision where my stoma used to be. I'm concerned because the pain is located in one area...
http://loudwire.com/ozzy-osbourne-free-colonoscopy/ just found this on a different crohn's support site..no joke.....
Unfortunately with this disease remission never lasts forever. I'm sorry your going through all of it again. It's hard, but just stay strong. You should eat soft, easy foods for a while and maybe you...
I'm sorry that I cant help, but you should keep trying to research that and maybe try some other forums. My doctor wants to put me on imuran after surgery..Now after reading things about imuran I'm...
I've been told for a while now to get on medicaid before my insurance runs out. Have you tried that? It takes a long time to get approved though. :( I am unemployed because I quit my job after...
If it's a clear liquid diet that he suggested, then all you can really have is chicken broth and clear juice. If you can go on whatever liquids then you could try v8, all kinds of soup (without...
I'm sorry to hear about your troubles. I hope you re-post and let us know how your doing now. I've only had crohn's for five years now, but I had surgery back in October for two full blockages. I was...
I am about to go through the same thing. I'm getting reconnected on the 27th and I'm scared to death! I hope you get better soon! I really hate to hear how difficult it is. I was hoping to return to...
There are so many posts on here that I will have to continually look back and refer to it later. I am having my ileostomy reversed in two weeks. January 27th to be exact. I have nine inches of colon...
Thank you, I'll check it out. :)...
I know this may not help heal your hurt feelings, but on the bright side i suppose it would be worse if she was a teen that was addicted to drugs and smoking..That always increases the possibility of...
I was always bad about taking my medications as a teen, and I am still not fond of the suppositories. I recently tried to convince a friend with crohn's that she needed to take her medication. Now,...
I Was wondering if anyone had any advice on how I could gain weight. I am five ft three, petite, and one hundred and five pounds. Every time I have a flare-up I lose at least ten pounds. Since my...