My son has the moon face. He is sure hoping it will go away. This is his first time on steriods.The steriods have made him gain about 20 pounds. He is a little shorty like me so you see every pound...
When Kota was in the hospital and they finally found out he had crohns he had a horrible breath. But it wasnt just his breath. His urine and poop all smelled the same as his breath. I know that...
Not very many places you can go and feel comfortable talking about poop. I have a quick question. Is it normal for Ko to poop lots of times in one day and them to be real watery. Then the next day...
Thanks so much...
Here are the results March 5 2012 GGT 30 3-22 High CBC W/DIFF White blood Cell Count 13.2 4.5-13.5 Norm Red Blood Cell Count 4.79 4.00-5.00 Norm Hemoglobin 12.6 11.5-15.5 Norm...
I meant can tell me sorry didnt mean call...
<!-- / icon and title --><!-- message --> Okay I finally recieved the lab reports that I have been asking for the last month to see. I have them now but I dont know how to read them. I...
Soph I am sorry I am not going to have alot of advice for you becasue we are also just being faced with Crohns. We were told my son Kota had Crohns a little over a month ago which was a few weeks...
Okay as some of you know I have not been really impressed with the GI doctor that Kota is using at this time. I am not real sure of any other ones. I have been trying to search and find one that...
We go to see a cardiologist next Thursday. Kota's heart rate is staying really high 125-149 thats sitting still. I am sure for some that may not be to high but his usually stays 40-52. Last night was...
I am so sorry you are going through all this pain. I hope your GI will be able to help you and make you feel better. You are in my thoughts and prayers. Keep us posted on how you are feeling...
Thanks everyone! Keepinfaith what is Noritriptyline? Is it like Amitriptyline? They wanted to put him on Topamax (sp) but he already had so many of the side effects they we decided not to start it....
Thanks everyone its nice to know I have people who will listen and dont think I have totally lost my mind. When we got up this morning and he took his medicine his heart rate was still high. I...
Well today we took Kota to get allergy shot. Then went to hospital and had urine test done and Lab was suppose to have standing orders for all the lab work that is suppose to be done weekly. Well...
Hi! We were also told about 3 weeks ago that my son had crohn's. He is on Prednisone down to 30mg now. But he says it makes him so tired and weak feeling.That has been his major complaint. It makes...
I am so glad the surgery went well. I am so sorry you had to go through all this and have been in so much pain. I pray this is a new start and you will heal quickly and soon be pain free. Take Care...
This is all so new to me. And I know first hand how hard it is to okay medicines when there are so many bad side effects. Its hard to understand taking a medicine that may cause more harm then good....
I am so sorry you have found this out. I found out less then a month ago my son has Crohn's. He turned 12 on the 6th of this month. He has been in pain for a long time. So I dont want to say it was a...
We went to the store to get last minute birthday cake stuff. We were there for a few minutes and Kota said his feet and up to his knees were starting to feel numb. By the the time we got to checkout...
I noticed you were on Amitriptyline at one time. Did you ever have any trouble with this medicine. Kota was on it and they told us to take him off of it today. When he had to be taken to the...
Honey I am sorry I am of no help. All this is new to me and I am trying so hard to learn about this horrible disease. I just wanted to let you know I am thinking and praying for you. I am sending...
Well we are home from the hospital. Thank you God for watching over Kota. They took him straight back his heart rate was 134 when we got there. Which is way to high. For sure when he is use to 40-52...
gdispce- Yes my son is such a little sweetie. Today is his birthday and he wanted to go to the park. Since he is homeschooled we decided to go after lunch. We were there about 10 minutues and he said...
Okay sorry I feel like a real dummy. I have tried to read so much over the last 2 weeks my eyes feel like they are going to fall out. My brain cant hold alot more :( I tried reading the link and...
Thanks everyone. We got the okay for his kidney doctor today that he can start a multi vitamin as long as its not high doses. He says he still just aches mostly his shoulders and back of neck. We did...
Well we went and met with the doctor today. We decided to go ahead and start Ko on 6mp. In one week we go and have blood work taken. I knew he had to be one meds but I am just worried about which...
Thanks everyone. We go today to talk to the doctor and different medicines. We have been watching alot of what he eats. No fried foods, dairy, or raw fruits and veggies. He has started having alot of...
My son is 11 and we were just told a couple of days ago that he has Crohns. He is on Pred, Pentasa, Nexum, Culturelle,Norco and Amitriptyline. They wanted to start 6mp but I am not sure if we are...
I am new to the board so I hope I am doing this right. I know this is going to get really long so please bear with me. My son has been having issues with his stomach forever. He actually had his...