Your symptomes sound a lot like my daughter's. She was diagnosed almost 2 years ago at 15 yrs old. She had constipation and daily belly pain. She was also always hungry and always tired. The blood...
Just bumping this back up in case someone who can offer some insight may have missed it. Thanks in advance if you have anything to share. Mary Grace...
I haven't posted in quite a while. My daughter is 15 yrs old, has down syndrome, cEliac disease Crohns, moyamoya(caused several strokes) and cronic constipation. Her constipation causes a lot of pain...
My daughter has had stomach pain for about a year. She's 15 and has Down syndorme and a history of strokes. We started tests last April and she tested positive for Celiac, it got better and her...
My daughter also has celiac (along with crohn's) so she is 100% gluten free. I have to pack her a lunch everyday. Some easy things that she loves are gluten free crackers or chips (there are tons of...
Thanks, I'm kind of relieved her GI Dr. is sending ehr to Boston Children's Hospital for testing. From what I've read they have the best GI clinic in the country. I just hope it doesn't take too long...
The magnesium citrate did not work. We finally took her to the ER Sunday and an XRay showed that her entire right side of intestines was still full of stool. They admitted her and gave her Golytely...
She drank the bottle of Magnesium citrate. I'm not so sure it actually cleaned ehr out completely. We'll see... I hope so we have a surprise party planned for her for Saturday and I want her to feel...
Thanks for the information everyone. I spoke with the Dr. and he said the xray showed lots of stool thoughout the bowels. So he ordered a "clean out". The typical miralax like before the colonoscopy...
I think I've metioned it before but my daughter has a big problem with constipation which causes her to have diarhea and lots of pain and bloating. She has been taking miralax daily and exlax 3 times...
Here's a great recipe for Gluten free cheesecake. be sure all ingredients are gluten free like the cornstarch and cream cheese. I'm not sure if all brands are so check. Cheese Cake Recipe 3 - 8 oz....
That was me that asked about the Asacol. My daughter takes Asacol everyday and the Dr. said she'd be on it as long as her liver function tests keep coming back OK and it's working for her. I hope...
Sounds like a good visit. Glad you asked about the Asacol, I found one in my daughter's stool. I'm glad it's nothing to worry aobut just watch to be sure it isn't happening regularly. Mary G...
So glad yourfeeling more confident. I hope you can get him healthy and ready for surgery. Also maybe get him on a regular diet that can help keep him healthier. Enjoy your time with your son and good...
My daughter had a intestinal virus aobut a year ago. Diarhea adn pain. From that day on her life was daily pain constipation diarhea sleeping all the time. Falling asleep just a couple hours after an...
My daughter was diagnosed in July with Celiac and in November with Crohns. she's only 14 and she ahs Down syndrome and ahs a history of strokes (from moyamoya disease). LOTS going on in her health....
Wow This sounds just like my daughter... She's 14 yrs old and was just diagnosed with celiac disease in July and then Crohn's disease in november. She has been constipated most of her life in that...
Glad you came here. It really is difficult to figure it all out. I'm really lucky my daughter is pretty easy going with her diet. She's had so many worse health issues in her 14 yrs that we actually...
OH NO I'm sorry you thought that's what I meant... I only added that I used canned chicken (which is labled gluten free) for convenience when I make her chicken salad and it's really pretty good. I...
Diane, My daughter has both Crohn's and celiac disease. She was jsut diagnosed in July with Celiac and November with Crhon's. We're pretty new to the Gluten free but I can tell you some easy and very...
I'll just keep my eye out to see if this is happening frequently or if it was a one time thing. It was definatly a whole pill untouched. The reason I saw it was she had an accident si ti was in the...
Has anyone who's taken Asacol found untouched pills in their stools? Mary G...
I actually find it more challenging to get fiber on the gluten free diet.ut as kazbern said you will be the best judge of how much is too much. Mary G...
Cindy's right there are a lot of "naturaly gluten free" foods. but you have to be careful because some things that are naturaly gluten free have added gluten like shredded cheeses not all are gluten...
My daughter was diagnosed with celiac in july then crohn's in November. She was feeling better after after about 2 weeks gluten free but not comppletely even when her numbers came down that how we...
He has not, maybe because it's mild and she's responding to the Asacol? I think he kind of based his diagnosis of perianal from all the skin tags she has. It really is a challenge, but I'm starting...
Sera, Thank you for your great input. I consider people who have been living with a certain disease to be the best resource for practical information so again, thank you. My daughter's GI said she...
My daughter is 15. she has many challenges, she was born with Down syndrome and has suffered several strokes from moyamoya disease as well as the celaic and crohn's. I do know that she will always be...
My daughter was jsut diagnosed in November. I assume that that's considered a "flare up". She's been taking Asacol and her colonoscopy showed that the inflamation is much better, in fact just about...
I googled Amitiza and motility of the bowles. It does sound a lot like my daughter and the Amitiza could possibly be an option. It was a bit confusing as to what exactly is considered a motility...
We saw Kathleen's GI Thursday and he was optomistic that we will get everything under control. So far the Crohns is mild and the Asacol is working. She will be on that indefinatly assuming her blood...
Another thing I will ask about is Omega 3 supplements. Anyone take these. It may be a concern for ehr because she tales asprin for stroke prevention (history of strokes) and Omega 3 can thin the...
Thanks I will look it up and ask her doc about it. I was also wondering if probiotics help others(something else I will ask at ehr appointment) Mary G...
Thanks for your quick responses. You mention senna, what exactly is this? She has an appointment with ehr GI Dr. Thursday so if anyone has any idea of questions I should be asking please let me know....
Wow that sounds exactly what happens with my daughter (14 yrs old Down syndrome, moyamoya disease celaic disease crohns disease and strokes) She ahs been constipated all ehr life. She will have no BM...
My daughter was diagnosed in November with crohns disease. she's 14 yrs old and also has celiac disease moyamoya disease(neurvascular disease that caused several strokes.) and Down syndrome. She's...