I get pains like yours all the time, except mine is limited to the right side. I know that mine is not muscle pain; it is definitely internal and exacerbated by food triggers. I think it's probably...
Whatever you do, stay away from Dr. Jean Fox at the Mayo Clinic. She is absolutely terrible. Also, if you go to the Mayo Clinic, demand that you actually see the gastroenterologist that you want....
jdiane, I'm sorry to hear what happened with you. I had an Infectious Disease specialist following me when I was in the hospital with sepsis, but not since then. On a positive note, my fever has...
Wow, 13 years is quite a long time. How is your liver? Any problems? My doctors are always telling me how dangerous TPN is for the liver and because of infections. I definitely would like to get rid...
I was originally supposed to see Dr. Bret Lashner, but he ended up having hospital duty during the week I was scheduled. So the nurse called and said she could get me in with Bo Shen, who is the best...
I saw Bo Shen as well. I asked him a few questions via email after my visit, and never heard from him again. Everyone raves about how great he is, but he didn't treat me very well at all. I also got...
Yes, the PICC line is for IV Nutrition, also known as TPN. A PICC line is a type of central line, but instead of being in the chest, it's placed in the arm. It stands for Peripherally Inserted...
Thanks, and wow, that had to have been frightening being packed in ice because the fever was so high. I felt like I was becoming delirious at 104.3, so I can't imagine what you felt like. I'm sorry...
I don't have any other symptoms besides the fever and worse D than usual. That's why I don't think it's a bug. When I went into the hospital last time, they never checked for an abscess or anything...
I saw my GP today for a follow up visit. They checked my temperature and I was running a low fever. It went up a little as the day went on, but not high enough to cause alarm. I think I've had this...
chronsmom, That's interesting, because I have never had an MRI on my intestines, and I've been wondering if it would be worthwhile for me to have done. After what you said in your post, I'm...
My TPN has been adjusted many times in terms of electrolytes and hydration. They can't put more potassium in without it becoming dangerous, because I already get above the maximum hourly dose. The...
Hey Everyone, I was wondering if any of you have problems maintaining your fluid and electrolyte levels. Dehydration and electrolyte imbalances have plagued me for years. I'm on TPN, and even with...
It could be a lot of things. I'm familiar with what you're going through because I have the same exact thing. The list of potential causes is long: Gallbladder Muscle Scoliosis Liver Biliary System...
Ima, I agree with you 100%. It's obviously pretty bad if I'm on TPN, so it's counterintuitive to try nothing. Unfortunately, doctors aren't always sensible. Or in my case, I think some of them think...
Ima, My inflammation was labeled as mild, but like you said, it causes a lot of pain; especially during the colonoscopy. That's what prevented the doctor from reaching my terminal ileum. I actually...
sodisheartened, I'm so sorry to hear that you're in the same situation as I am. The one thing that I've realized is that I'm definitely not alone in my frustration with the diagnostic process. I...
Mirowpl, How funny that your name is Brian as well. I have a pretty good internist as my GP. He tends to be kind of "hands off" when it comes to my GI issues, but he does manage my TPN for me, which...
Amen to that! I hope your son is doing better now. Keep me posted on your results from the pill cam. Take care, Brian...
Hi mirowpl, I'm actually surprised to hear that you had such a good experience with Dr. Plevy. I saw him about 2 years ago, and thought he was terrible. He wanted to diagnose me with IBS without...
Leebie, I'm so sorry to hear that you are in the same predicament as I am. It is so frustrating to have some tests show up as positive, but not the "right" ones for the doctor to diagnose you. It's...
Hi Leebie, Thanks for the reply. You're right, it is definitely serious for me to be on TPN. I had a PICC line infection that put me in the hospital for 5 days after I developed a fever of 104.3....
I had a colonoscopy on May 17, which showed rectal inflammation. The doctor told me that based on what he saw, he thought I either have Crohn's or UC. He wasn't able to reach to Terminal Ileum...
That's interesting. Thanks for letting me know!...
Kazbern, Thanks for the reply. My doctor explained what the low PTH meant, but I didn't know if it was related to Crohn's in any way. I found some medical journals which showed that serum PTH levels...
Hi Everyone, I've been waiting for my biopsy results since my colonoscopy on May 17th. My doctor suspects Crohn's or UC because I have a multitude of IBD symptoms, and my colonoscopy showed some...
I saw a GI at Western Mass Gastroenterology Associates as well. I was not happy with him at all. I had positive blood work for Celiac Disease, and he told me "you don't want Celiac Disease because...
I grew up in Westfield, and lived there until about 3 years ago. I saw a lot of gastroenterologists in MA when I lived there. The best GI in Western Massachusetts that I saw was Dr. David Desilets at...
I tried it...It didn't work at all for me. I do better with systemic antibiotics. I felt great after 10 days of IV Vancomycin, but I was only given that because I had sepsis....
If you have the money and the time, I would recommend going to the Cleveland Clinic. I was really happy with my recent visit. If you're interested, I can give you names of great gastroenterologists...
You may have had the "Notify me of reply postings by e-mail" box checked, which means that when someone replies after you, you are sent an email notification. Next time, if you'd rather not be...
That's what I take, Zyrtec. Benedryl works great for me, but it completely knocks me out. This had actually made me think that I should talk to my doctor about trying out something else. Maybe it'll...
Brooke, I am the same way..when the seasons change I am an absolute mess. It's good to know I'm not the only one. I take an antihistamine as well, but it doesn't do much for my symptoms. Do you know...
I've taken Trazodone for the past 13 years, and never experienced constipation. However, everyone is different. With Trazodone, your body takes a while to get used to it, and it sometimes takes a...
I've noticed that my intestinal symptoms worsen dramatically when the pollen counts are high, and also when it rains. When the pollen counts are high and I go outside, even for short periods of time,...
Thanks so much for the reply. I am very excited about the possibility of starting treatment and finally getting some relief after almost a decade of suffering. The Mayo debacle was really shocking to...
I have spent 8 years trying to get a diagnosis. Doctors kept telling me I have Post-Infectious IBS, which I knew was absolute nonsense. I had too many Red Flag symptoms, and my illness was too...
Hi My husband is suffering so bad. Pretty sure it is Crohn's. We are going to Clevland clinic but the DR we were going to see has hospital duty the week we are going. We already have plane tickets!...
Thanks for the replies. I really appreciate hearing from people who have some experience with Crohn's, as I am not very well-versed in all of its manifestations. I am much healthier now than I was...
I'm not really feeling well, as I still have a lot of problems, but I definitely feel better than I did prior to the TPN. I was wasting away, down to 105 pounds at 5'10". I would say as of right now,...
Hi Everyone, I was wondering, can resting the gut long-term affect test results for Crohn's? I have been on TPN for 5 years now, and I have not eaten much during that time. I know that the villous...
Hi Thanks for writing. We were in Rochester, MN. He did have lots of blood work and colonoscopy scheduled. Do not know any results yet. Why does it take so long to get this figured out? We just dont...
:rolleyes: Hello My fiance has every sign of Crohns. We just returned from Mayo and got stuff with a IBS doctor. We are suppose to go back for more testing. I have been reading about the Dr in...