So I started my daughter on transdermal LDN Monday night and this morning she woke up complaining of severe dizziness and nausea. I started her on half the dose, 2.25mg, just to make sure she...
Hello. I am so sorry to hear about your diagnosis. My daughter also has CD and was diagnosed with thyroid cancer while being treated with Humira (at age 15). She also successfully underwent treatment...
Thanks InSoFla! Actually Dr. Skip recommended the transdermal LDN, since Liv does have active disease and some inflammation. I hope she does well. One of our GI's just phoned with lab results and I...
Thank You InSoFla, I will keep updating! And @ 73monte, Thank You for your well wishes, it has been tough for the past 6 months. It is so difficult to watch your children suffer and to try to make...
@ InSoFla, I just called Skip's Pharmacy and spoke with Dr. Skip himself! He referred me to a Dr. in NYC-he is not a GI,but he uses LDN in his practice. I am having a phone consult with the Dr. on...
It's been awhile since my last post...just to update everyone-my 16 yo daughter has had CD since age 9. She had been treated with 6mp for maintenance for 6 years. At age 13, she had a small bowel...
/community/emoticons/smile.gif Hello Sarah! I tried several times to contact you via private e-mail, but my message kept getting kicked back to me?? My daughter recently had a thyroidectomy for...
Thank You so much for all the wonderful support..I am very comforted by everyones kind words and encouragement. I enjoy reading this forum and I learn something new each time from others experiences....
Thank you all for the support....@ Roni..The surgeon told us that if they find cancer cells in the adjacent lymph nodes, that they will treat her with radioactive iodine, and that usually kills all...
Hello Everyone! I have not posted in awhile, as things have been stable around here, and my two teenagers with CD have been enjoying remission since April! But the past 2 weeks have been horrible and...
I would just like to Thank everyone for your advice and support. I feel much more confident with the decision that my husband and I had to make. My son is scheduled to get his Remicade infusion next...
My 17 year old son has been on 100mg of 6mp recently, has been on it since Sept., but his liver enzymes are elevated and he is still having pain. A capsule endoscopy was done last week and shows...
My 17 year old son was diagnosed with CD in Sep. 10' and has been on Entocort and 6MP since. Recently we have been weaning the steroid and have been increasing the dose of 6MP, but he is complaining...
Thank you everybody for all of your very informative replies; I learn so much from this forum!!! We will wait on lab results in about 2 weeks and hopefully the levels will be therapeutic. If not, I...
So sorry to hear about your little guy Maria. It does seem so unfair that our precious children should have to endure this.... hang in there, kids are resilient and bounce back, it's us parents that...
My 17 year old son was diagnosed in Sep. 2010 with CD and was put on 75mg of 6MP, which he has been tolerating very well. Recent labwork has shown that his levels are slightly below therapeutic range...
To rlsnights, Thanks so much for recommending that link to IBD parents forum. I will check it out ASAP!...
I am so sorry to hear about your little one having this disease, I too, am a Mom to 2 teens that hve CD. My son was recently diagnosed (17 yo) and my daughter was diagnosed at age 10 (now 15yo). My...
Thank you all for your informative advice and welcomes-it feels great to be able to vent and speak to others who know how difficult this illness can be, especially as a parent of 2 kids with CD. My...
Hello! Yes, it is def. blood and not red dye-that did happen once before when my children ate red licorice and had red/maroon colored BM's. My daughter has 4 bloody stools in the last 10-12...
I have 2 children with Crohn's-a 15 year old girl (diagnosed at age 10) and a 17 year old boy (diagnosed Sept. 2010). Both kids ate fast-food pizza last evening and both have been eating lots of...