Hi Kate, thank you for sharing your story. I'm sorry to hear that the doctors treated you like that :( About the off label usage, unfortunately there's more than goes into it than them not wanting to...
Are there any preventative measures a person can take to reduce their chances of developing Crohn's or IBD? I know that with some inherited diseases you are more prone to the disease but it's not a...
Oh, I forgot to say this, but if you would like to keep posting here even though my project is completed, I would like to know how things are going for you all in terms of your health or if you would...
Hi again cleanfreak. About the scoliosis, I have it as well and I understand what you feel about the guilt and worry of them inheriting it as well as them inheriting Crohn's, but if they do inherit...
Thank you cleanfreak, your post helped alot actually :) I really appreciate everyone's help who posted. I hadn't asked anyone else about how it has affected their relationships with others, and what...
Happy Early Birthday from me too, Mommyof2little1's :) For having the same disease, I've noticed how very different all of your stories and experiences are. No two patients are the same. Also, it...
Good morning :) I hope you all slept well. To everyone who has commented, I wanted to let you know that for my class I need to show these forum posts to my teacher who is a patient advocate for a...
Thank you for sharing all of that with me. I can't even imagine what you went through, but I do understand the fear and worry of not knowing what's going on in your body and being constantly...
If this is alright to ask, how long have you had Crohn's Disease or IBD (either when you first noticed your symptoms or when you were diagnosed)? What was the diagnostic process like for you and what...
Thank you pb4 for your post. You mentioned that not enough is known about this disease, and since the disease can vary from person to person the best treatment plan for one patient may not work for...
Those are very wise words. One of the main concepts that we had been discussing in class (since most of the class are future health-care providers) is to remember that the patients have their own...
Thank you so much for sharing your story, stereofidelic89. If a patient was newly diagnosed with Crohn's disease, what advice would you give to him or her? Also, if you had the chance to tell the...
Thank you for your reply. If it's alright to ask, how did you feel after receiving the diagnosis? I'm sorry to hear that you had to endure so much before they diagnosed you :(...
Good Evening. My name is Emily Campbell and I am a student at Daemen College currently studying Natural Science. I'm enrolled in a rare diseases course and as part of the class I was asked to speak...