are you in the TO area? just wondering if our doctors are the same... or if you are, who you see now??...
oh poor you.. i have low iron so i know how that feels and to have everything on top of that? hang in, and hopefully with the right mix of meds you can get things under control. this thing seems to...
hey- a fellow canuck! i hope it manages to go down.. i guess the rate can vary quite a bit.. since you're around my age i do feel better about it-- thanks!! are you having lots of issues now? are you...
thanks ides. is the type of arthritis you're referring to ankyolsing spondylitis? seems my back is flaring but not my Crohn's. however, having a GI virus has probably thrown off my test results. my...
all other blood tests appear normal... but my crp is 23.. range is 4-10 normal. just wondering if anyone else got results this high. this was tested while seeing my rheumatologist. it was my initial...
thanks kazbern- i am gong to ask for a MRI too. at least just to rule stuff out. at this point i am wondering... i am still open to Crohn's and honestly at this point it would be nice to be sure...
or could my immune system be attacking my back dics, joints etc.. and not my intestine/digestive track? or is that considered more like arthritis?...
ok- i will ask for that.. thanks. maybe even my rhumey can request it. but can i have CD with no symptoms except for back pain? if my guts were inflamed wouldn't they bother me occasionally??...
the main symptom that has been going on has been lower back pain.. however i did have some digestive issues but they seem to be resolved. i see a PT and she's also an osteopath.. she's awesome. she...
so things have been pretty good lately. To update everyone, I was diagnosed in May 2012. I never had loose BMs but was prone to constipation. I gave up wheat and improved my diet. Things slowly...
wow- keep us posted with the results.. it's nice to hear that studies are ongoing all the time......
thanks again.. i'd love to keep in touch and would love to hear more of your stories and how you're doing day to day... also if you tried any alternative approaches and if they worked. my pain flares...
happy birthday and i hope you get to celebrate soon!! birthdays never turn out exactly how we plan eh? and yours really went sour- i'm sorry that you're down.. i would be too. hopefully you can...
thanks snowbomb63! your description sounds like mine and i looked up 'enthesitis' and it's excatly what i have. why didn't any dr. tell me this? i have mentioned numerous times that it feels like my...
I dunno- I really don't. I have inflmation-- that I know and I can feel it but I don't seem to have anything affecting my guts. I don't (or rarely) get stomach cramps, I don't get pains after...
hi all, i do get joint pain.. but sometimes what i get more is muscle strain or tendon strain. this could be after being activie and sometimes it just seems to come out of the blue. i am wondering if...
i have some lumps under my arm and they're cysts.. they come and go.. flare now and then. they're small.. like marble sized.. i have 3 or 4 of them. i use to get pain in my chest on the left side.. i...
wow- that is a lot of soda.. way to go for cutting down.. cutting out completely is hopefully your next step. all the sugar isn't helping!!...
Thanks everyone.. i'm going to go to my GP and ask for another dr....
i had thick hair too.. the hair dresser use to thin it out.. now when i go they don't say anything about it anymore. recently i can see a lot more skin on my hairline.. almost like bald patches.. it...
i have some in my fridge too.. it's the whole leaf like and is like gel. i water it down or have put it in smoothies.. but when it's buried in the fridge i usually forget about it. i have read that...
it all sounds like pretty healthy foods and doesn't seem like you're starving. going off dairy and gluten could be a good thing for crohns. i would double check the supplements.. make sure you're...
did they give you a reason why your hair is falling out? mine is too.. and the doctors don't seem concerned. I am!! I'm starting to look like a troll and I'd like it to stop!! :(...
really? wow.. honestly, i don't really click with the guy and was thinking i should get a second opinion anywho. but aren't people who are in remission go off meds? not everyone is on meds all the...
I am new to this but I am pretty sure I am in a flare. I just saw my GI earlier in the week and I was feeling great. He agreed that I don't need to take meds if I am feeling well. However, I must...
I get pain in that spot- I also get constipation often too. I don't know much about the us health system since I am in Canada however, I think it is imperative to your health to try to figure out...
I get pretty bad pains too- and it is the same as you in that I feel like I overdid things. Going off gluten has really helped- I think a gluten free diet reduces inflmation as well as making...
oh and P.S- i have some muscle pains around the pelvis.. i have also read that a misaligned pelvis can cause 'irregular periods'. i am planning to get my pelvis checked out by an osteopath.. luckily...
i sort of have something similar... i notice that it now takes longer during the start of menstruation for the blood to come out.. also i seem to spot a lot towards the end of my period.. have a day...
I got some meds but haven't taken them- I have minimal stomach issues- and I am not sure if any are crohn's. It is very confusing since I don't have any common symptoms like D. It makes me think that...
Alrighty- so the world wants to keep me on edge these days. I feel that my CD is fairly undercontrol and since i experience few symptoms that is a guess-- but I have these lumps or cysts around my...
I can relate- my father 'doesn't believe' in crohn's and told me to eat more keifer-- at least I could hang up the phone on him ;) In all seriousness- I hope you can have a heart to heart talk with...
Thanks guys- it is just strange that this was one of my first symptoms-- first aches and pains in my sides, then si joint pains and now back-- it all started 2 yrs ago but that was right after having...
Ok so- my BMs have been pretty normal The past few days. ie. not constipated. I just don't get how everything seems okay with my digestion but my back is killing me- it seems to get warm and just...
My gosh- maybe this is what i have. This is the whole reason i got a colonscopy -- except they just saw inflammation at the TI and that is how I found i have CD. I have a dull pain that comes and...
my appetite is still not there and when i force myself to eat i fill up quick. i went to an urgent care walk-in today because i was getting some achy right sided pains near my hip last nite... i...
hey everyone, just wondering about mouth sores.. do they usually appear at the beginning of a flare, during or end? or anyway?? i had sores that seem to flare up for a few hours but eventually go...
hey all- just wanted to update that i had a scan of the rib area and nothing was picked up. my Primary doc also looked at it and thought it was just inflammation of the tissue around the ribs... the...
Just to update.. I finally got ahold of the sub GI Dr. today (he finally called after seeing patients I guess) and we're going to try to set up an ultrasound scan of my sore left rib area for...
nice- i will watch and rate this!!...
i filled my entocourt- something i had since late may but wanted to wait to make sure i was dealing with CD. i'm still not sure.. i did get a script for PPIs a while back when i was having obvious...
aha! the yucky feeling and fever has come over me about 1.5 hrs after eating.. this has to be a flare right?? i have my meds- it says to take them with meals.. oh the irony!...
Hmm never heard of it- thought I have heard of them all since I have been battling low iron for 5 yrs. I use a heme iron with pretty good results-- I was thinking of trying the shots-- is that the...
Thanks all- I am at the pharmacy as I type waiting for my meds to get filled-- lets hope this helps!!...
it's strange that it involves meat because i would have thought meat would be difficult to digest.. anywho, i'm just guessing because i haven't read the book *yet* the problem for me is that when i...
of course my GI doc is away this week but i'll see if i can find someone filling in for him... can reflux hurt like that? a lot?? i slept on my left side last night and it really hurt when i woke...
So- maybe I am in a flare. The only thing is that I feel most uncomfort in my upper GI. It almost feels like reflux- burning and constriction. I also have a fever and have just gotten a few mouth...
yes- i'm sure you're right as i think i am probably still flaring. just wondering if this pain can persist for 2 weeks... i think that is how long i have been feeling it.. or at least a week... i'm...
you know i did pass a lot of gas today and i haven't for a while.. however, this fever is now trowing me for a loop.. the rib pain still hurts to touch but not as bad.. i'll be calling the dr....
yes- i must second the 'don't google' advice.. i have learned that i cannot google.. it FREAKS me out. i will take all my complaints to my dr. and let them figure it out on my behalf.. or i get my...