The nurse said that is was completely normal! I asked at what point is it not normal, and only thing she said was if I was hemorraging would she be concerned. I see my surgeon next week and will be...
You are not moaning. I am there with you. Some days, I think I had to do this or my babies would grow up without their mother. But what good is their mother in the state I'm in! I keep saying if I...
You all know my story (complete colectomy and proctolectomy left with anal stump). This is new. For the first two weeks in hospital no pain in the rump. I had the drainage which I knew was normal....
I have to say I'll be glad when this is over. Had a really bad night last night. Laid on the couch in agony, this morning was in the bathroom, and it's starting again. ICK!...
ActiveUCer....I'm from KY. Having mine done at Christ in Cincinnati. I read some of your blog. I plan to start my own soon, or something....
Sorry ActiveUCer....I see now your surgery is the 30th. Where are you from?...
I'm pretty sure mine would stay if they didn't cut it off. . . lol. Summerstorm they told they'd use clear bags at the hospital when I met with my nurse yesterday. And I also know I WILL change to...
Happy Tattoo ActiveUCer! When is your surgery scheduled? The only thing I'm really not digging about all this is the two enemas I have to use! ACK! Like my rear's not raw and sore already....oh well....
Just thought I'd give an update....have to do 2 Fleets enemas (1 day before, 1 morning of)....like I don't have forceful watery bowel movements already.. ack! And then Neomycin and Flagyl day before....
I made the decision to have it all taken out. Got my tattoo today.....hurts just like a real one! But, as long as I can do everything you're talking about, I'll be good! I have a trip planned to DC...
Good news! I called the insurance and my ostomy supplies are covered! YAY! I'm doing a happy dance ;) I have to pay only 10% and there is no limit on how many or what I get. . .IS it silly to get...
Definitely interesting in all the different opinions (via drs of course). I see the surgeon again today. WIll keep you updated...
Thank you Cecilia. I actually purchased a pair of slippers just for the hospital that have a nonskid hard bottom. I'm sure I'm not the only one, but after suffering so long, I'm somewhat of a...
I took azulfidine (sulfazaline) early on in my disease. It worked great. Unfortunately I developed an allergy to all sulfa drugs. It's a good option and is cheaper than the newer drugs. It's been...
Thank you so much to everyone for your input, ideas, and mostly calming affect. I know through God's grace, I will be alright. Everything will be alright. I'll keep everyone updated....
mtgman, I have to say I am soooo sick of prednisone. Everytime I turn around I'm on it for some reason or another. When I was 19 I had a blood transfusion, and was on 80mg prednisone for a year! Did...
I am scheduled for surgery on the 24th. The instructions from the surgeon include being on a clear liquid diet, and nothing to eat the day before. Along with antibiotics. There are no instructions to...
do you shower with or without your pouch? Does it matter? Do I have to keep it dry (the bag) or dry it after the shower?...
I'm sure that I've met the out of pocket already too....kind of scary actually. And I'm reading in my plan book, and there is no mention of the ostomy supplies in the durable goods, however there...
Thank you everyone! My ultimate goal is to not feel like crap all the time! To be able to enjoy my kids, and live a long healthy life. I've never known what it felt like to feel "good"....this will...
I wish I knew why they wouldn't cover. I called my RX and they said no. The pharmacist said to call the PPO portion, and of course it was after 5. I looked in my plan documents, and they are listed...
$850 for supplies is NOT an option. And that really makes me worry even more. I have no idea what to do!...
Let me clarify, to just have a payout doesn't make sense. To make sure that your family can afford your funeral does. So many times I have seen families go bankrupt just trying to make sure their...
I have lived with Crohn's disease for 27 years (documented). I was five years old when my symptoms started. That was 1980. It took 4 years for any diagnosis, because then "kids didn't get Crohn's". I...
You do not have to be married with wife or kids or even have a mortgage to get life insurance. Life insurance is not a luxury, it is a necessity. Most life insurance companies though won't cover you...
It's generally a loss of fluids. It's not uncommon to lose 10-15 pounds because of prep. Make sure you rehydrate well....
As a long term Crohn's SURVIVOR, it is well worth you building your immune system. It took me a long time to learn, because the dr's didn't tell me, when you are on prednisone, be sure to replace Vit...
My mother has a history of diverticulitis and IBS. She does take acidophilus, and it does help. Doesn't really matter what brand. She chooses target's generic brand. Says it works great!...