Yep, HIDA scan was clear. I just need to play some hardball with my GI Dr....
Yep, to no avail. I was gluten free for about a month and it didn't seem to change anything. Had a HIDA on Friday, we're waiting for results. If I'm lucky that will be it and they can just take out...
No worries, it's down to persistence now I think. It'll just take a bit of work to get the doctors to figure things out....
I haven't taken a long term dose of them ever. At most I've taken a single dose once a week. yea, they've cleared that 9 ways to Sunday. Biopsy, blood work (2x), Pill camera, all clear. With any...
I had one, but they didn't see or take any notice of the nodularity when I had the Colonoscopy which was about a year prior to the capsule....
Thank you all for the quick responses and all the help. To give a clear picture of what my GI is going off of, my procedure report findings read as follows; "limited evaluation of the stomach shows a...
I've been here more than a few times, and everyone has been so helpful. I hope that this can once again be the case. So the rundown, I've been suffering for about two years from Crohn's like...
I am actually familiar with the Hershey med center, but I didn't realize that they had a Crohns center there. I'll deffinetly be looking into them....
I hadn't looked into either one of them. Thanks for the suggestions!...
I'm as near as makes no difference to Philadelphia and I'm looking for a place that specializes in Crohn's. Does anyone here have experience with Hopkins or Penn? Any other place out this way is fine...
Well, the more I read through here the more I think it's getting farther and farther away from Crohn's. I can't really tell if the meds are doing anything or not. I actually felt worse when I started...
Here are the results of the Prometheus. I don't see anything near the edge of any of the levels. http://i49.tinypic.com/11jqbdw.jpg http://i49.tinypic.com/2iw14pe.jpg I'll type out the writeup from...
In Philadelphia here, No evac and haven't voted. We've pulled all of our deck furniture off, all plants in pots have come in, all bird feeders are in, and we've bought a generator in case of a power...
My endoscopy was clear, though it was done some time ago so perhaps it was missed, or wasn't developed by then? Also, as I'm sitting here talking with my S/O she reminded me that before I had the...
Quick update before I head off to work for the evening. I have no erosions anywhere other than my small bowel, the nurse however could not tell me the exact location. A copy of my Prometheus panel...
Wow, didn't expect such a response so quick! I go off to work and return to all kinds of information. I don't have a copy of the Prometheus panel, I'm sure I could get one (and probably will if I...
I've posted previously on my quest to get a dx for all of my GI problems and just now got a result other than "completely healthy" but I don't know what it means. The nurse called me with results...
I will get copies on my next visit to the office. Are there any extra tests you think I should ask for that might explain the other "stuff"?...
Next time I go in I'll request him to test my vitamin D then. Is there anything else that I should request to be tested? I feel like with all the blood they've taken it's hard for them to have not...
My first GI Dr. Said that the proctitis wouldn't cause my symptoms. My second GI is going to do a flex sig to confirm. I did do a gluten free diet for 3 weeks and it didn't appear to make a...
kazbern said... Perhaps you can share some of you issues here and we can brainstorm along with you on how to deal with what's going on. Currently I am dealing with stomach pain (slightly above the...
I guess this post was more out of frustration than anything. I've been a "perfectly healthy" for 2+ years now and I'm losing faith that they will ever figure it out. My family history certainly puts...
Nope, I had it today and because it apparently takes two weeks to get results. Because I am perhaps the most impatient person on earth, I'm slightly edgy and I'm trying to figure out if there is...
I've been through a lot of tests trying to diagnose my GI issues and recently had a GI small bowel follow through. It, along with my Prometheus panel, colonoscopy, and endoscopy were all clean. As a...
Kazbern- I did eliminate lactose and gluten but it didn't seem to do anything. I was tested for Celiac and gluten allergy but both came back clean (by biopsy and blood tests). I'll hopefully make...
Datawraith- Thanks for the link over to the other thread, that actually does help a lot! I don't know that a fatty liver is a problem, unless it was caused by medication. The new GI Dr. seemed really...
I've been reading the forums for a while and decided that I should finally post some of my questions. I apologize for the length but I think all the information would be asked for eventually. First,...
I can attest that the ADA definitely has you covered. I have a lot of experience with it and I know that there are a lot of places (schools and otherwise) that decide they are above it. I've found...
Also, is there any chance that since I hadn't eaten much of anything the week before my colonoscopy that the inflammation could have been reduced/not visible?...
I was told today by a doctor in my GI's office (not my usual GI) that I do not have proctitis or any other form of UC. Though my biopsy came back with signs of proctitis, he said it was just from the...
I called the office again and requested to speak to a nurse about my issues. I got a call back a few hours later saying that they wanted to see me before the week was out (not with my specific Dr....
I can live with them not doing anything right away but I guess my bigger issue is how they can say that it's "possible proctits". Shouldn't a biopsy give a clear yes or no?...
They don't have anything sooner with my doctor unfortunately, I told them that after I started eating real food again (after the cleansing for the colonoscopy) things started getting worse, but they...
Not as of yet, I have an appointment in 2 weeks, but until then I have no instructions....
Also, does Proctitis commonly cause nausea? That's one of my biggest symptoms and from what I've read it doesn't seem like Proctitis would cause it....
Well I just got the results of the biopsy. They said that it is "possible Proctitis". I don't know what that means exactly and the nurse that called wouldn't explain more. I was hoping for a...
InSoFla, They gave me heavy doses of steroids and pain meds when I went into the ER, since my tonsils had actually swollen to the point of touching, but that only lasted a couple days. After that...
InSoFla, I wasn't on any at that point in time or since really. I had a really bad case of mono in my junior year of HS. It took me over two months until I was able to go down a flight of stairs and...
They said the biopsies could take up to a week to get back. I did actually have something like that, about a year ago, before everything started when I could eat all that I wanted, I got a really...
Sorry if all of this has been covered previously throughout the forum, and sorry for the length, but with so many pages it's hard to read it all. I'm pretty new to all this and just really want to...