I am starting back to college next week (graduated hs 25 yrs ago) and I am wondering how people handle Crohns and college. Should I tell the teacher up front or wait and hope I don't have an issue. I...
I guess I was lucky. Mine started with a New Years resolution to loose weight. I started eating a bunch of salad and my bathroom trips became a lot more frequent. I chalked it up to the salads. After...
I just past the 3 year mark on Remicade. I saw some relief pretty quick but my dr started me (what I thought was aggressive) treatment. I had my second IV two weeks after the first then the third IV...
I was on Humira for over 6 months and it didn't help me much. The shots were very painful to me, even with the ice technique. I switched to Remicade, it will be 2 years in Nov. Since almost day 1,...
I have been on Remicade for about a year and a half. Felt better after the first IV. I hear it can last a few month to years, so I am just counting my blessings while it lasts. I am on no other meds...
by the way... I felt better within a day or two of the IV....
I had my first Remicade IV the end of Nov '09. I feel great. My energy is back and I have an appetite and can eat ANYTHING I want with NO issues. I went from 10-20 bathroom trips a day to 1-2,...
I was honest from the start. I tell people its like food poisioning from hell 24/7. It gets the point across without being too graphic...
I found that Tylenol Arthritis helped with the joint pain. I was on Humira 6 months and found no relief. Being the impatient person I am, I went back to the dr and asked to try something different....
I was on Humira for over 6 months and had little relief. After getting a fistula on the Humira I went to the dr and wanted to change to Remicade. Boy am I glad I did! I felt improvement almost...
I was wondering if anyone else has experienced this. Since my second infusion of Remicade I have had spotting. I've been on Depo Provera almost 3 years and have never had constant spotting like this....
I go for my third infusion next week and I am down to 1-4 a day, but most days it is just twice a day. This is a welcome relief from (at my worst) 10+ times a day. Before I started the Remicade I was...
I've had it on both legs and it started on my arms (between wrist and elbow) before I got the Crohn's under control. I have heard that it won't repeat a spot, which I hope is true because then I know...
I've been on the depo almost 3 years and was just diagnosed with CD in Feb of this year. So far the depo causes no issues with the CD and I have had no side effects from it. Good luck with your quest!...
I also take Pentasa along with different vitamins and a probiotic. I am on depo provera so I don't get a cycle anymore so there are no issues from mother nature. I am hoping the Remi will work since...
Thanks for the info. I was on Humira for over 6 months and it didn't do much for me. I actually had the arthritis pain on the Humira and haven't had any pain since being off of it (over a month now)....
Hi all, I recently started Remicade and heard a lot of positive things about it inducing Remission. I wanted to know how I know if I am remission? What can I look forward too? I've had 2 IV's so far...
I've been on Humira for six months and developed a fistula while on the Humira. Dr is starting my Remicade next week. I am hoping it does the trick since this fistula now has me on Prednisone, Flagyl...
I know for me it is more of a fear to eat. What don't go in can't come out. My daughter told me "Food is not your friend"...
The company that makes Remicade has a financial assistance program. If you like the way Remicade works, maybe you should check into that. You can find the info on their website. I have been on Humira...
i think the living with crohn's website is for remicade. i visited the site and then i got remicade info in the mail, which was ironic cuz i wanted to change from my humira and this was the dr's...
I've been on Humira for 6 months and haven't seen much improvement. While on the Humira I formed a fistula, so now I am back on the Prednisone and on two anitbiotics. Dr said that says the Humira...
That sounds great! I still have to get up in the night a couple of times cuz of the D so occasional would be a blessing!...
I think you are thinking about Cimzia. I have a friend that was on it but she didnt like the side effects so she went on Humira....
I've been on Humira since May 09 and havent had bad side effects. I also havent seen a lot of improvement so I was thinking about changing to remicade. I am tired of feeling so crappy!...
Hi all, I was hoping to get some input from my cronnie friends about Remicade. I have been on Humira since May and haven't seen a lot of improvement. I was thinking about switching to Remicade. Have...
My husband is disabled and on a fixed income. I have him on my insurance, but we just found out that his Lyrica co-pay will triple next year. He can barely afford the current co-pay so there is no...
My husband is disabled and on a fixed income. He is under my insurance but my employer made some changes to save costs. Now his co-pay will triple what is has been (he has been struggling to make the...
I was wondering if anyone here has used Slippery Elm and if they had positive results. I currently take a probiotic and heard this was good for the inflamation. Just looking for some relief!...
I'm on Humira and Pentasa. I haven't seen any bad side effects from either. I take the Humira in my leg. It hurts but only for a minute then it goes away. I figure a minute of pain is worth the...
I was diagnosed in Feb of this year and am looking forward to remission. I can honestly say things have calmed down a lot but I wouldn't say I was in remission yet....
I saw on an older post that Calmoseptine helps with the itching. It is OTC. Just a thought......
Thanks. I kinda figured that's what it was but I wanted to make sure since the color didn't match what some of these websites say it should be. I am sure the fat content is high which is why it is...
Well this does not float. I wonder what it is then?...
Sorry if this post is gross, but I would rather as you fellow cronnies than spend the time and money at my dr if I can get the answer here. When I pass gas, I have a "discharge" that I think is...
I've been on it since diagnosis (Feb 09) and I saw immediate changes when taking it. I am also now on Humira but I can say the Pentasa still works for me. When I was sick and missed a dose it...
I'm on Humira (similar to Cimzia) and my dr said the shot was ok cuz it doesn't have the live virus. He said the nasal one is the one with the live virus. He suggested I get a flu shot so I'm getting...
I'm on Depo Provera so I don't get my visitor and don't have monthly flare issues. :)...
When this happens in the grocery store, I usually have my daughter get me an un-sweet tea. I still have to sit down though....
Hi all It seems like since I've been diagnosed with Crohn's I have been super sensitive to heat. If I am in a store and it is warm in the store I will start to feel faint and will have to sit down....
I was always afraid of taking too much vit d. I use to take my multi that was 400 iu then two more just d at 400 iu each but stopped because I didnt want to OD on it. I have an issue with standing...
I have been on Humira for 6 months and things are finally starting to calm down. My doctor told me that it can take 9-12 months for it to completely kick in. I've been told to be patient so I am...
My doctor gave me a choce also and I went the Humira route because I didn't want to be tied to an IV for 3 hours. I've been told the Humira will/can induce remission but that can take up to a year. I...
I am interested in it too but the sites I saw, the prices were high for my budget and I doubt it is covered by insurance so I would like to find out if there is some research trial or something I can...
I see all of these adds about a certain grape juice that begins with a "W" about how its full of antioxidents and now fiber and how it's great for the immune system. Does anyone know if drinking this...
My Pred tapers started at 60mg and then decreased by 10mg every 6 days til I was off it. I have no food allergies that could have contributed to it. I will ask about the SSKI. It can't hurt!...
Thanks. I have been on Prednisone 3 times since Feb and my Dr doesn't want to keep me on it so he trying to think of other options. I guess without the Pred, I will just have to suffer through it...
I took Slow FE for 4 days and it stopped me up. I was feeling better, but the not being able to have a bowel movement was bad (who would think that I would not like that). I felt worse not being able...
I have been dealing with erythema nodosum on and off for a few months. My GI wants to send me to a Derm, but I have read others said all they got from a Derm was a cream that didn't work. Does anyone...
I was afraid the Metamucil would make the stools more loose so I never had the urge to try it. I have been having terrible cramping lately so maybe I will try the Metamucil route. How long does it...