skofbengsk - This may sound stupid, but is IgG testing the stool testing for gluten, etc.? I just sent Katie's stool sample to test for gluten/dairy sensitivity. We just started working w/a...
Hi Gumby - Thank you for the useful advice. I have been on that sight before, but I guess I need to revisit it again. I just hate the thought of my baby on such yucky meds! Take care~...
Dear Dingleeire - Thank you for your response. Yes, Katie did have a colonoscopy/endoscopy back in Nov. When we started weaning her off of pred. and had 2-3 weeks of 6mp under her belt, we saw new...
We just were at the pediatrician tonight because Katie has been complaining of throat/earache, etc. along w/stomachaches/headaches, etc. I just wanted to rule out strep/ear infection. Then I asked...
Dear Sparkleplenty - Thank you very much for your reply and advice. I do need to talk to my daughter's doc. I noticed that you have tried quite a few Crohn's meds. Did 6MP not work for you? Good luck...
Hi - My 9 yo daugher dx /Crohn's Nov 2012 (mild/mod.case). After on pred. for 7 wks.) doc rx 6MP. Why such a potent drug as a first choice? w/such nasty warnings on the label. Told by GI that all...
Thank you to all of you for posting your responses on Jini Patel. It was very helpful and you saved me a lot of money. :)...
Hi! Just wondering if anyone has ordered Jini Patel's book Listen to your Gut. And/or followed her diet/health tips for Crohn's and found success?...
Thank you so much, Canada Mark and Scifigirl2K. Your "experienced" words really helped calm my nerves. Thank you for taking the time to reply to my post. We really appreciate it!...
My daughter, age 9, dx w/ CD Nov. 2012 has complained quite frequently of bad headaches behind her eyes. Her face at night is bright red and hot...like having a hot flash, usually accompanied by a...
Hello CarolinAlaska - My daughter, age 9, was diagnosed w/CD this past Thanksgiving. We are finally tapering her off of Prednisone after being on it for 7 weeks. We've started her on 6 MP and it took...
misspriss88 - Thank you for your note on 6MP. Why did you go off 6MP? How long were you in remission and how do you tell the difference between a flare up / not being in remission? Or do they mean...
Sparkleplenty - You mentioned a naturopath doc. Do you see one now in treating your Crohn's? If so,can you please explain your treatment plan and if it's been successful. Are you still taking RX...
THank you, Teddtlove, for your kind words and information. I will talk to my doc about rectal meds as well. Also, thanks to 73monte for your "grounding" advice. Has 6MP worked for your daughter?...
Yes she is on probiotics, folic acid, pred,D3, multi-vit complete w/iron, iron supp, omega-3. It's most active in her Lg. intestines....
My daughte, age 9, is supposed to start 6MP tomorrow, but after reading the cautionary statement on the RX handout, I think we'll wait and talk to doc about it. I did ask doc yesterday if I should be...
My 9 year old daughter dx w/CD Nov. 2012 has been on Pred. since 12/1/12 and doc wants to wean her off Pred. as we start 6MP. After reading RX cautions, I'm scared to death to start her on this med....