Sorry for all the typos, im on my phone...
Oh ive also taken prednisone which worked but after 10 days gve me anaphylactic response in the hospital (throat closed and tongue swelled). I feel lime I have to beg them to help and they still wont...
Hi monte and nicecupoftea, omg yes I couldnt agree with you more!!!! My gi office also heads the research and clinical trials for western canada and they still do t give a sh*t!!! They say yes your...
I have tried the same as you, sadly spending over 500 month just in supplemets and probiotics.... scd can work depending on severity.... the greens are good for u, vsl100 probiotics etc and digestive...
Hi julia, yes I take immodium...usually about 14 a day :( tbat iis what keeps me around 15 or 20 bathroom trips :( thx for the reply tho. Ive also trid cholestyramine for d .....
Just wondering how common this is, if at all... Some history: Crohns of terminal ileum. Tried entocort, azathiaprine, methotrexate, humira (which gave me onset of pml), now on stelera (like humira...
Thx guy.. I appreciate the input! Does ur father get the nausea and vomiting from it? All I can find are horror stories on it on the internet, although I know they are biased.. as for other tests I...
Hey everyone, I am really in a situation and not sure what to do.... ive had crohns for many years and ive taken budesonide, prednisone, humira and imuran. Im allergic to pred, and humira gave me pml...
Hi twins! Yes I feel your pain, literally lol. Yes my joint pain would be excruciating before when I was flaring. It was my hips for the most part..they would throb and I felt like I was 100 yrs old....
Also, thk u matthew sawrie..I read ur post the otherday and ive already started researching it! Way to go for making it back into remissionz!!!...
Thank you so very much everyone!!! To be honest I am a little creeped out over the worm transplants but I will even look into it lol!! I forgot to mention, I have tried scd and paleo for about 6...
Hi everyone... I am in need of some of your wisdom :) I am not trying to be a debby downer but ill give you a little bit of my history. Im a 29 year old gal and mother of an amazing 5 yr old girl. I...
Hi there!! Has anyone heard of any results / side effects from this yet? I know it is very new but I have just been offered to be a part of the study in Vancouver, as I have run out of treatment...
I don't see why not? I had a resection on June 7/13 and my surgeon and GI say to eat whatever my body is comfortable with. I do super healthy smoothies for brkfst too (protein powder, fruit, milk,...
JP - thank you for your honest outlook on SCD. I too, have mixed feelings but I am willing to give it a try. I am going to a naturopath soon - have you tried that? I just had surgery and I hope that...
Thx everyone - I am starting SCD on Monday :) jpnutritionfirst- I assume you do not know what PML is/does... once activated (by being on immunosuppressants) it will kill you within 6-12 months. I...
PS - When my Crohn's flares bad my joints are extremely painful (mainly my hips)... has anyone heard of any natural remedies for this ... glucosamine???...
Hi everyone! Thank you from the bottom of my heart for all your thoughts and advice. Just to clarify some points... I live in Canada so Mayo Clinic etc is out of the question unfortunately :( ... I...
Hang in there hun... I am in the same boat... I work in healthcare but do not get healthcare coverage because I am a casual employee ... I am on medical employment insurance benefits which you only...
ok, I need you guys here...I had a hemicolectomy june 7 and I am still somewhat flaring. Here is the background info: I was taking Humira and Imuran together for around 9 months, developed numbing of...
I just got bumped forma csection :(...
Hi everyone! I'm in the hospital (bad crohns and colitis and started bleeding 8 days ago) and I am going to be having a subtotal colectomy with ileostomy tues night..my very first surgery ever for...
Hi everyone! I am still in the hospital and going for surgery Tuesday night..they are doing a Subtotal colectomy with diverting loop ileostomy... They did a mri andccolonoscopy and sais this is my...
Well I am here and they admitted me Ct tmrw......
Hi there, not to scare anyone but i got PML from taking Humira. I started with numbness and tingling in my right leg and then spread throughout the whole right side of my body within 1 month. Luckily...
Thanks for the kick in the @ss guys! i promise i am going tomorrow morning.. i wanted to spend today just with my daughter before going... but you are all right - i cannot take it anymore and waiting...
PS - PLUOT, I checked out your blog <3 !! Fantastic!...
Thank you all so very much! I have tears rolling down my face bc of everyones thoughfullness and willingness to take a couple minutes and write so much wonderful, valuable information for me. I am...
Thank you so much Nice Cup of Tea and Jen77! NCOT - I really appreciate all the tips and advice! I was trying to figure out if they place the stoma at the bottom area of your ribs or more of at your...
Hi everyone, I am here bc im scared and this forum has taught, guided me, reassured me and made me feel 'a part of' during my whole Crohn's journey. I need some help tonight please. My Crohn's is...
Thank you so so so much everyone! Nice Cup of Tea - I truly appreciate allll of your advise! Am I correct in remembering seeing a post from you that you went for surgery a couple months ago? I...
Hi there, by no means do i want to scare anyone, but I took Humira for just about 1 year and it worked great - but out of nowhere the whole right side of my body went numb... i went to ER and i saw...
Hi everyone,I am here bc im scared and this forum has taught, guided me, reassured me and made me feel 'a part of' during my whole Crohn's journey. I need some help tonight please. My Crohn's is...
Hi Mojo - I know the feeling and I am in it too..... it sucks doesn't it. I feel the same 'blah' as you. I've just started flaring again (only 6 months in remission) and it just feels so depressing...
Hi there, I am so sorry to hear about your daughter, she sounds like a wonderful young lady! Although I do not have a daughter with this nasty disease, I myself have it. I am 28 and they figure I've...
Thanks everyone! That is good to know a little more history on it. In Canada (I live in BC) it is relatively new and my GI office is apparently the only one that will run/order it (lol are we behind...
Hi everyone,Has anyone heard of the moderately new stool test called 'Calprotectin'. It measures the white cells in your stool, which would be brought on by inflammation in the intestine only mainly....
Thank you so much Cindy!!! It's so nice to hear of someone in a similar boat! I have started applying to specialists offices as I still want to use my education, but I like you (I also work in ER at...
Hi Susie! I have been on Humira for 1 year in June. I was also scared reading all the warnings and scary posts / websites etc. I was very against it and put it off until I couldn't walk or eat any...
Also NCOT - Thank you! I agree and I just want to get the surgery over and done with now before my CRP gets back up to 220 and I can't walk or eat/drink lol! I have heard alot of success about going...
Thank you everyone for the replys :) I appreciate all of them!!!! Kazbern - this is a very good point and why I am confused, when I started Humira last year I asked if it was still ok to continue...
Hi everyone, could someone / anyone please help me or at least tell me I am not crazy to feel the way I feel....I have Crohn's, Coloitis and IBS.... During my last hospitalization I was put on Humira...
Hi there, Sorry to hear you have these painful bumps as well. I have had Crohn's for over 12 years now (only diagnosed 2 yrs ago) and I also get those painful bumps on top of my tendons mostly....
Hi Gumby! Thanks for the reply! I just had a CT 2 months ago (while in hosp) and they said my colon and TI looked pretty nasty and TI was close to a blockage... When I was in the hosp. my CRP was at...
I just wanted to say I GET your situation.... I have a 3 1/2 year old daughter and husband and sometimes it takes all my might and energy to keep going - but i do it for them... I am in a similar...
HI everyone! I have read a lot on going Gluten free to help with Crohn's... Does anyone find this has made a drastic change in their symptoms? Is it hard to stick to? Favorite GF foods? Are there...
Hi there! I just wanted to say I feel your pain when it comes to joint pain and Crohn's.... I am still waiting for remission / a med that will work / a solution ... all the advice I can give is to...
Hi everyone.... I am new to this forum and Crohn's Disease in general and would really appreciate some advice and suggestions on my situation...History: I am a 27yr female who was just diagnosed with...