Depending on how long you were on Pred and Entocort, you might want to see an Endocrinologist to get your adrenal functioning tested. I believe that low cortisol from steroid overuse can cause...
My first major flare (freshman in college), I learned how to play the guitar while I recovered. It took lots of time, was so absorbing that it distracted me from my pain, and it gave me an artistic...
Shannabanana-I did not have blood or mucus in my stool or an abnormal white blood count. I did have low iron, some general abdominal pain, and fatigue. The doc did an upper GI w/ small bowel...
Before my first operation for Crohn's, my bowel movements were normal--no diarrhea or constipation at all. I've had more D since the operation, but it is not a defining Crohn's symptom for me. Pain,...
Hi marmar. Being burned out/stressed seems to make my Crohn's symptoms worse, but stress and/or dehydration will not cause 15cm of blockage on their own--that's the Crohn's disease doing its thing....
I was diagnosed from an upper GI with small bowel follow-through test. Basically, you drink a barium solution and have a series of x-rays taken as it goes through your system. This will uncover areas...
Hi Yamilka. Are you saying that you've been in pain for 7 months since your operation, or that you felt okay for those 7 months and are now having Crohn's related pain? When I had my ostomy reversed,...
As I understand it, entocort shouldn't have long-term effects on your body (liver, bones, etc.) unless a larger amount of it is absorbed into your bloodstream, in which case you'd show symptoms of...
Just saw your later posts--yes, if you're having side effects, get off of Entocort. I believe that it's best to taper off of it rather than quit cold turkey. No Dr should disagree with cutting back...
I was on Entocort for about 6 years without any side effects. I had a flare in 2010 and was on prednisone, so I stopped Entocort and didn’t start it back up after tapering pred. I’m back on it after...
It's hard to say what will happen if you just stop taking meds when you feel well, but I do know that Crohn's is a lifelong disease, and that eventually you will have another flare up. When I had my...
Hi Gillian, Maybe I am a bit too conservative when it comes to drugs, but my take on this is that, if you feel well, then I wouldn't change anything about your treatment. Every scope I've had in the...
Are you getting regular bloodwork done? I know that too much Azathiorprine can cause all sorts of side effects, so your dr should be checking your blood every week or two, especially when you change...
I have never heard that before. I once took 6mp, and it made me very sick, but I did not have a fistula at the time. You could suggest trying 6mp instead of Imuran--they are essentially the same...
I have the exact same symptoms! If I'm busy and engaged at work, I'm great. If I have downtime, I'm moody, foggy-headed, etc. It can't be the weather, because I'm in (mostly) sunny southern...