Hi All, I am 8 weeks post surgery for permanent ileostomy where I had both my Anus and Rectum removed. I had been on Entyvio for a year but it did not work for me, along with many other infusions...
Hi there, I am 3 weeks post op for permanent ileiostomy and had my stitches removed yesterday from my bottom> my question is that i am recovering well from the whole surgery except this constant pain...
I was reading your post and it was like i was was talking about myself! i too am going through exactly the same as you on 5th November, having my Colon and Rectum removed and a little of the small...
Hi there, Sorry to hear about your issues on Entyvio. I too have been having this infusion for 14 months and in that time have developed 2 fistulas, and am due to have surgery in November to remove...
Hi All, I just thought I would give an update on my experience of Entyvio. I started on 28th August and had the initial 3 doses and the first of 8 weekly maintenance so am around 10 weeks in. Just...
I am currently on no other meds as I managed to come off Imuran, I was previously on Tysabri and Remicade. I don't plan on stopping the Entyvio as I have waited so long for it. Just losing some...
Hello, I have had two infusions of Entyvio and my third is due in a couple of weeks. I was just wondering if anyone else was experiencing a very sore throat almost as if swallowing razor blades and...
Hey, I also have just be approved for Entyvio and get my first infusion next week. I have been on Tysabri for just over a year and the last couple of months it stopped working for me. I was always...
I have been married now for 17 happy years to a man I have known for about 21 years. We have 3 children age 12, 15 & 19. One of our first dates was with him visiting me in hospital to cheer me up...
I was due to have my Tysabri yesterday and was feeling unwell with a cough on Monday. By yesterday morning I couldn't stop coughing and my chest felt like it had been hit by a truck. My husband took...
I felt this was a good time to respond as I too have had these warts since I have been on Imuran. On Monday I had treatment to try get rid of them again. They are mainly on my hands, arms, legs and a...
I was taking Imuran for 8 years alongside Remicade. It gave me 8 years of remission, my problem was the Remicade stopped working so I stopped both these drugs and opted for Tysabri. My problems with...
Hi JakeB, I have been on Tysabri since February and it has turned my life around. I was having a tough time after Remicade stopped working after 6 years. I tested positive to JC Virus but decided to...
Hi There, I have been on Tysabri since February and have been off Imuran since then. I have no aches and pains which i believe came from Imuran and I have felt the best i ever felt in years. I tested...
For the first time in many years I am really feeling good. I just had my 5th Tysabri Infusion this morning and it is really helping me. I am feeling more energy and I actually work out now on a...
I actually look upon having a colonoscopy as my 2 day detox! i think of all the things i will eat when it's done but whenever i come out I am so sleepy that i still don't get to eat for the rest of...
Try not be too hard on yourself, you are dealing with so many things all at once, try to just prioritize what needs to come first. Your health for one because if your not feeling well you wont make...
Hi There, I completely understand where you are coming from and I have had this horrible Disease for 30 years now. i was a teenager when diagnosed and at that time couldn't get my head around it....
Hello JustK2 I have just had my 3rd Tysabri Infusion this morning. I started a couple of months ago and it wasnt an easy decision as I proved positive for the JC Virus. To be honest my quality of...
Gillian Sorry to hear things not too good for you right now. I relate to you in some ways I was on Imuran for 8 years up until a month ago together with Remicade. After a scope it seemed nothing was...
CrohnieToo, I had to giggle at your post even though it's not funny because I was born in England, left in 2003 and emigrated to Canada, left left 18 months ago and moved to the states. So I have...
Hello Minou, I have been on Remicade for 8 years and I also have had issues with bleeding gums to the point where I had 2 gum surgeries under local anasthestic to take gum from the roof of my mouth...
I finally have my Tysabri infusion date for 8th February 2013and am told it will be every 4 weeks. I will keep you updated as to progress good and bad. I am very nervous about starting this course of...
I had it bought into every 5 weeks and dosage increased together with full dose of Imuran but it has stopped working for me now. I am due to start new infuse meds in February. I wish you well and...
Hello jack2011 I am sorry to hear of the problems you are experiencing, i have learned that living with Crohn's myself for 30 years (I am 43), anything can happen. I was interested in your post...
Lyndyloo, Sorry to hear your not doing so good, I am also new to this site and if it's any consolation, anything you are to afraid say to your doctor or family or friends is normally because you...
Thank you, I will keep you updated. I got almost 7 years out of Remicade so I guess all good things come to and end but I try to stay optimistic and know with my GI doctor I am in good hands. I did...
I was on here back in November asking if anyone had tried Tysabri as I was in a dilemma as to whether it was right for me. Well i saw my GI doctor (who is amazing) and very approachable with...
I am sorry to hear your about your daughter. It reminds me of what my parents went through with me when I was younger. I was 15 when diagnosed with Crohn's and I am now 43. I only had steroids to...
Hi, I for one would be very interested to see how it works for you as I too have reached the end where Remicade is concerned and I also want off the Imuran. I posted here last week to see if anyone...
Hi HMJ, I have been on Imuran for many years but I always get the flu shot each year. It does not effect me in any way, however if you are on any infusions like Remicade or Humira (I am on Remicade)...
Hi Melissa, Thank you for your reply, I was surprised that with all the topics talked about on here, and the medications that people are on, that there wasn't much response. I have looked through a...
I am new to this website but a pro with Crohn's. Had this disease since 13 years old, now 43. My question is that after spending the last 7 years on Remicade (bought in to every 5 weeks)and Imuran...