I've been on humira for 4 months. Pain has subsided but I still have loose bms. Doc says it's too soon to discuss uping the dosage. What do you guys think? I do an injection once every other week....
Here in Greece docs first try Humira and if it's not working then they are switching you to Remicade....
I started Humira 3 months ago, and I feel really tired all the time, I could sleep all day long! My blood tests are fine, Humira is starting to work I think (very slowly), it's the first time I'm...
Hi everybody, For those on humira: how long did it take to show the full effects? I'm on humira three months now, and I guess I thought it was the miracle drug... Should I wait it out more? Thanks,...
Thank you so much for your replies I think you confirmed what I already had in mind not to try Imuran. I'm just upset that inflammation still causes moe some pain after 15 days but I hope it just...
When I have this kind of pain, it's usually major inflammation going on inside there. And I'm usually doubled in pain. And I end up taking pred, cipro and flagyl for several days to make it go away....
Sorry, I meant 15 days not weeks! pred talking......
My doc is insisting in going forward to the next step of treatment, since I was hospitalized with major inflammation two weeks ago. He wants to try Imuran, because he says it has been out in the...
Being symptom free means you are in remission, but you still have to take some sort of medication in order to maintain it. I cannot give any advice on Imuran since I've never tried it, although my GI...
Thanks gumby44, lots of practice at work I guess......
Thanks so much for your replies. I'll ask my doctor if this medicine is available here in Greece. I really hope that this flare gets better, its so difficult sitting at the office for so many hours...
Well... After one and a half year I'm officially flaring. Soooo frustrated. It started 14 days ago. Almost normal bowel movements, but lots of pain in my right side. Doctor said it's from...
I know the feeling, and I'm so happy that you are feeling better. Unfortunately pred caused high blood pressure which is still a problem for me even though I quit pred almost a year ago, and I also...
So nice to know that there are ppl out there who really understand... Thanks for your replies, I'm in a better mood today, but I still hate Crohns :wink: Few days ago I had this dream, I was feeling...
I just hate the way Crohns is getting in the way. I have so many things to do, and sometimes it seems impossible. I hate that it is so unpredictable. I hate being just fine one day, and the next I'm...
@hld4good: My doctor said to avoid raw vegetables, fruits, nuts, seeds. He said I could try some apple as long as I peel them, but still, I'm so afraid......
ohhh... I'm in the same position, meaning I really can't work all these hours without it affecting my health... For me the ideal job would be 9-2. I would really like to be able to go home and have a...
Hope everyone is doing well, I have a stricture in the TI whichs during my last colonoscopy 9 months ago seemed to be better than they thought, meaning it's not so narrow. Anyway my question is does...
we have a 6 year old maltese, she always understands when I'm sick and she doesn't leave my side. She completed our family, so my husband and I always say that we have three daughters, not two! If...
So I'm taking 9mg of Entocort (Budenofalk is the brand name here in Greece) for quite a long time. Called my pharmasist this morning to order my medication since today I took the last three pills,...
7 years for me... started to think I'm crazy, but turned out I was not!...
So I'm trying to decide what to do.... I've been off pred last month after a visit to the hospital with severe headache which turned out to be high blood pressure. I'm now on meds for high blood...
Hi everyone, I usually post on the Crohns Disease since I have it the last 14 years... I'm suffering from migraines since I was about 25 years old, now I'm 39. Migraines for me is like a virus: if it...
Hi kix - don't worry, you are not alone in this. I was in the hospital 3 days on Christmas, this time due to a bad stomach bug I got from my daughter, which activated my Crohns. I was frustrated. I...
@Crohn'snme: what does "BOOP" mean? (sorry, I'm from Greece!) @NiceCupOfTea: I'm currently on 15 mg of pred, and Salofalk. I do have issues with the stricture, like bloating, pain etc. The GI's point...
Hi everybody, I had my gastroscopy (sp?) and colonoscopy yesterday. Stomach is fine, bowels seem ok, and the weird thing is that last time I had a colonoscopy (6 years ago.. I know... I should have...
Thanks scifgal2k, I feel better already!...
I really need your opinion on this one: When you go for a job interview, do you tell them about your Crohns? I mean, is it necessary information? I have been to two interviews so far, and didn't tell...
CrohnieToo, what exactly is Beano???...
Hi lamb61!!! Yes things are rough in Greece now, but fortunately I don't have any problems whatsoever in getting my meds or seeing my doctors. The only problem is that the government has now decided...
Yes I'm on both pred and budesonide right now (called Budenofalk here in Greece don't know the trade name in other countries). But when I'm on budesonide only, it doesn't help much......
@kazbern: I know, you are probably right, but I really am sick of feeling sick. And with a full time job which I cannot afford to quit and a family to take care of, I have to stand on my feet...
I have been on pred for almost a year now, it seems as soon as I start reducing it, the symptoms return. My personal view is that I take it because it makes me feel better. I don't care what happens...
I feel miserable sitting at the office for so many hours, trapped gas is a huge problem... I haven't had d for at least 2 weeks, normal bms once or twice in the morning (which I'm glad for of...
Just woke up and saw everyone's replies, thank you so much for caring! My doctor's plan is to give me azathioprine (I don't know if I spell it correctly) and if that doesn't work, then he might...
Thank you so much kazbern for your reply. And I know you are right, but sometimes you just have to hear it from somebody else. I have some serious thinking to do over the weekend!!! All the best,...
Hello everybody, it's been a while since I visited the forum. That doesn't mean I was feeling fine. I have been battling this flare for months, and I think it's time to reach a decision... My GI is...
Hi Soph, First of all to reply to your question, yes, it will get better. There are many different kind of medication, and/or combination of medication, so I'm sure you will find something that...
Tara don't feel bad, I'm in the same situation... I work full time, have two kids 15 and 11 yrs old, have to take care of the house, cook dinner, help with homework when needed, wash, iron, mop the...
I am the first born, and the only one in the family that has CD. Sooooo lucky!!! Christina...
Jenna, First of all good luck with your surgery I hope you will have the longest remission ever! All I can tell you is that everytime I visit my GI and I think I'm having the worst symptoms ever,...
I work 40 hrs a week as well, in the insurance field. Have been working for the same company 18 years. I have missed work 3 times (3 hospital stays), and occasionally 1-2 days when I'm not feeling...
Nanners: Thanks for your reply, I do take something to calm my nerves but lately they aren't working so well..... Anyway, I hope you are doing good after your last flare, you are an inspiration (sp?)...
Well, haven't been doing so great lately, so I decided to follow homeopathy to see if it helps. That doesn't mean I'm not taking my "regular" medication, just adding the homeopathy meds as well. I...
You are all so kind, thanks so much for your replies! Can you eat things like cornflakes or porridge when you have narrowing in the TI? I would love some cornflakes for breakfast, I ate them everyday...
I know the feeling it's very uncomfortable. I have it all the time. It's like you want to put aneedle in your stomach and burst it like a balloon! I try some positions in bed, bending, putting my...
Hi everyone, hope you are doing ok! Just wondering what do you have for breakfast? My main problem is coffee, I love it, but it seems to be bothering me lately... I tried decaf, filter coffee....no...
Don't feel guilty, we just want to feel normal sometimes! I hope you enjoyed it! Last night I dreamt I was eating a salad with fresh lettuce, onions and a nice dressing on top!! I still have the...
So I haven't started my anti-depressants yet (Valdoxan) ....too scared of the side effects.... but my Crohns symptoms cannot improve when I'm depressed. Yesterday we had a consultation meeting with...
Thanks pb4, Actually I open the capsules so I don't swallow the gelatin...anyway I'll give it a couple more days and see... thanks so much for googling and finding all this information for me, I...