Thanks! I feel like it could be a blockage too. Has anyone else had one and can describe what it’s been like for them? I will definitely speak to my dr and see about getting some tests done....
Hi all, I have Crohn’s disease. Had a bowel resection 5 years ago. Things have been pretty good since then now that I’m on Humira. HOWEVER, recently I have been having what I thought was gastro. It...
How rude!! That is the last thing you need when you're sick. I'd put in a complaint too!...
Hi all, I had a bowel resection 10 weeks ago, and had my temporary ileostomy closed 3 days ago. Had a lot of wind yesterday, started on solids today and spent a lot of the afternoon in and out of the...
So essentially, is there nothing that can be done about them? My surgeon took a look at mine and said they looked 'crohnsy' and wasn't sure he would want to operate on them as it could make things...
Hi Davis, 3 weeks post op and feeling great! Was feeling pretty good from about 1 week post surgery, just very tired. So for me, 2 weeks would definitely be doable! :)...
Aussie1971, what do you think you will do? Do you mind having your stoma? Is there. Chance you may not need any further resections? :)...
They removed 30cm and an abscess. It did seem like the stoma is a lot of a preventative measure to avoid infection and having to do an emergency surgery. I think if I wasn't on the pred it wouldn't...
I had the same surgery 2 days ago. So far I am recovering in hospital and I can tell you the recovery pain is far less than the pain I was experiencing from the crohns. I guess I will know in a few...
Hi Davis, I guess one of the main reasons was because I am on 20mg prednisone which does not promote healing and he wanted to avoid infection, especially seeing as there was a bit to remove,...
Thanks everyone! Pain is not too bad at all, I am pleasantly surprised! Managed a couple of laps up and down the corridor today. Still haven't seen stoma nurse, but getting used to the idea (only a...
Thanks for all your replies, it means a lot. So, the surgery went well. Not sure how much of TI was removed, will ask my surgeon tomorrow. I woke up in recovery feeling only a small amount of pain,...
Hi all, I go in tomorrow morning for my bowel resection. Had a colonoscopy today which showed things are a bit of a mess like we expected, apparently she couldn't get the scope all the way through...
Oh god you poor thing! And big ol' fat post partum flare here, after being in remission for a good 8 or so years! So let's cross our fingers we can both get things under control and have another nice...
Sorry to hear you feel so crap and are having such a rough run. I can somewhat relate! I am on my last few days of breastfeeding seeing as I have to wean my little boy before I go in for surgery, and...
I'm full of questions today! Was meant to ask my dr this yesterday, but I forgot. I am having terminal ileum removed next week. Does this mean I won't be able to absorb vitamin D now? What about B12?...
She just said soft, bland food. I am nervous to try much due to being in so much pain previously.. But I am also getting kind of hungry lol! You have some good suggestions there.....
Hi all, I have my bowel resection scheduled for next Wednesday, and I am counting down the days! Have been in so much pain lately, my stomach is extremely tender where the terminal ileum is (hurts to...
I don't think you were being unreasonable. Sorry to hear you had a crappy night, I hope they have everything sorted out for you now!...
Thanks for all your replies! I guess for me, I feel like I need more evidence that it works to want to commit to it. It's a very restrictive diet, and sure, if it was definitely going to work I'd be...
Glad you get your Dr back, sorry to hear you're back in hospital! Super cute pic of your little one btw :)...
Yeah I always find gluten seems to be something I can tolerate! Eg low fibre foods (pasta, rice, bread) are fine, but high fibre (broccoli, beans etc) are killer!...
Hi all, Who has tried the SCD diet? Has it worked, is it worth it? How long did you have to do it for? I've only had a bit of a look at it online, it does seem like it would be really difficult to...
Can I add, I had no trouble whatsoever after my first baby with the crohns, it stayed in remission and all was well. I think that's why I was caught off guard with my second baby and the big flare up!...
I have a bowel resection in 2 weeks, so can let you know then! My surgeon did say I would at least need a nap a day for a month after the surgery....
Personally, I didn't have any trouble conceiving or with either of my pregnancies. I did end up having a very bad post natal flare up though which resulted in a bowel perforation (just something to...
Thanks tingle bell! I never thought of that! And good idea, to get up and walk as soon as possible. Hopefully I can manage it quickly :)...
Hope you are feeling better soon Jake! Your quick recovery gives me hope that mine will be similar with 2 little boys to look after. Is there anything in particular you did/ are doing to promote a...
Thanks Myrne, I hope you are feeling better soon, that is great you are in remission :)...
Thanks for all your responses! I am so nervous about the surgery at the end of the month. My main fears are that I will end up with worse off symptoms than I have now. I really don't want to be...
Thanks for your replies. Dagger, that doesn't sound like much fun at all, but it's good to know what to expect. What do you mean by having digestion problems ever since? Do you have to avoid certain...
Thanks T, I really like hearing the positive stories! Definitely going to try and keep active. And yup, terminal ileum, that's the one :)...
Thanks for your replies. Apparently I should not need an ostomy, but I guess there is always a small chance I will need a temporary one, just trying to prepare myself for that just incase. I am...
I look forward to reading replies to this also.... :)...
Hi all, I saw the surgeon on Thursday who recommended a bowel resection due to my perforation (which has not fully healed!) within the next month. He is concerned it could happen again and also told...
Thanks Habs :)...
Honestly, you are super Mumma for continuing to pump through everything you have been through. I think you need to give yourself permission to be ok with easing up or stopping the pumping when you...
God I'm so clueless with this whole situation! I was just kind of thinking my perforation would just heal.. It was a small contained perforation apparently. I was feeling good in the hospital due to...
That's what I am thinking too!! I think I will speak to the surgeon, ask a LOT of questions and then put off the surgery for as long as possible and push a bit harder to figure out some drugs that...
Well, my dr has booked me in to see a surgeon this week, to see where we go from here. CT scan isn't until Monday now (long story!), she seems to think I NEED the surgery, that the small portion of...
Ahhh what a nightmare you poor thing! Breastfeeding is difficult enough without throwing Crohn's complications in the mix!...
P.s was yours a post natal flare also? Hope you are feeling better, 3 times in 2 months is rough, especially when looking after a little one!...
Thanks :) luckily when I was in the hospital I was able to have my baby in there with me! As for the fast taper, I may have been a little over eager to push that. My CRP was down to 7 and everything...
Hi all, I have been feeling really crap for the past couple of weeks (after being in the hospital last month with a perforated bowel due to flaring up after having a baby in Sept etc) so I called my...
Crohnielass- that sounds like it was great for those 15 years. It does worry me (and depress me to be honest!) that after having surgery, you can still need subsequent surgeries.. I wish it was a...
I obviously have lots of questions I still need to ask my dr! I am having an MRI scan next month to see how things are looking, so I'm not exactly sure what type of resection. There is also talk of...
Hi all, have had Crohns for about 8 years which has mostly been under control until last month. I had a baby in September which caused a flare up- bowel perforation etc which landed me in hospital on...
Hi all, It's been a while since I've been in here. I have noticed lately after eating dinner I am having ridiculous amount of bad smelling gas over night (poor Hubby!lol). Yes, this definitely...
Oooh, looking forward to hearning from anyone who has been on the Imuran during pregnancy. My doc does seem to think it is 100% safe, but has advised not to breast feed. We are not trying just yet,...
Hi all, I am wondering where ppl are getting the information that Imuran shouldn't be taken while pregnant? My specialist has 100% okayed the Imuran, and would prefer I stay on it whilst trying to...