Hey all, I'm on SCD (2 years now) and quit rice and quinoa recently. I don't eat meat so it's hard for me to comply with the diet but I do for the most part. Just wondering how "bad" it is of me to...
I guess I am a little apprehensive after what happened last time I had a test done - "Surprise, you have a micro-perforation and blood clots in your lungs aaannnddd need surgery!" So I am a little...
Ugh embarrassing topic but I had a resection back in May and noticed I developed a super tiny and painless skin tag like growth on my anus, what does that mean? It's skin colored and very small....
Hey all, I accidentally ate gluten today – one small-ish piece of pizza. The waitress swears I didn’t order gluten free, but I did. Anyway, I avoid gluten at all costs – I’m wondering how ‘badly’...
Hey everyone, I had a resection done approx. 3 months ago at the end of may and I had a very traumatic experience in the hospital. Basically found out I had a micro-perforation (no symptoms) and also...
I had surgery at the end of may, an 'open surgery' (aka long incision) and I spent a week in hospital. My advice is make sure your pain is managed appropriately, don't be shy about asking for the...
Hey, I think it's really nice that you are committed to being there for her through the good and the bad. I have experienced both sides, I dated a guy for 6 years who wanted nothing to do with me...
Hey all, I'm wondering if any of you with Crohn's has tried Pentasa and if so has it worked for you as a maintenance therapy? I have been on budesonide and imuran before but my doctors never tried...
Thank you all very much for your responses. I'm taking it day by day and looking into diet options to try and help myself as much as I possibly can. I need to look forward to what's ahead instead of...
Hey all, I'm wondering. How many of you have been in remission post surgery, for how long and what type of diet do you eat? I am considering scd, or gluten free, or vegan but I'm a little lost and...
Hey all, I made it out of surgery (barely) despite every doc telling me how risky it was due to having blood clots in both lungs somehow. It has been a horribly difficult time in my life. I'm finding...
Thank you all so much your support means a lot to me. I am having surgery (and an IVC filter put in) this week, and I still don't know exactly which day. Either Weds, Thurs, or Friday. Waiting is so...
Hi all, thank you so much for your support. I currently have the clots, but my oxygen is good and they can't wait too long to operate. So regardless they would need to get this resection done while...
hey all, I'm currently in the hospital and I have been told I am getting surgery for sure next week. I'm terrified beyond all measure. I'm scared of surgery. Scared I won't wake up, absolutely...
Thank you, that helps. I'm currently on 9mg of budesonide a day and I think it's really affecting my moods. I get seriously sad and crazy mood swings. Maybe this is why I'm so worried about Humira...
Hi all, I am extremely terrified of Humira and it's associated cancer risks that I literally have been crying for two hours on the phone with my mom. Can any of you offer advice / reassurance /...
Thanks all, I should mention I had a CT done in hospital a month prior to this discovery, and apparently the micro perforation was there even when I had my CT but the docs somehow missed it. So if...
Hey all, Here's what's going on. I have 25cm of inflammation with a 4cm stricture. I have a micro perforated bowel they discovered the other day during a routine ultrasound with a surrounding...
Hey all, does anyone know if Humira is covered by Equitable Health or Manulife in Alberta Canada? My pharmacist just told me it's $4800 for 3 shots here. Heeeelllppppp....
Guysfeelsgood, I actually have been using myfitnesspal for months. It's awesome. I am going to be cutting out all sugar, carbs, and anything else 'not legal' according to scd. So hopefully it helps....
Sure I don't mind. I'm Vegetarian so I eat: -Quinoa -Veggie products (soy) / tofu -Vegetables including peppers, carrot, onion, mushroom, zucchini, etc. I don't eat cali or broccoli or kale (too...
Guyfeelsgood - I did read it, it is quite interesting. Further testing is something I will consider if SCD proves not to work for me. I will be doing scd and on imuran for 3 months, then have another...
Thank you all for your help and responses. I am definitely going to try the SCD diet. The reason why this is tough for me, is because I literally n e v e r experience any symptoms. It's difficult to...
Hey all, I was diagnosed when I was 21, 3 flares in my life and no surgery. I've been told I am lucky with this disease. Basically I have been almost medication free for over a year, however there is...