Oh, I'm so sorry you are feeling down. I don't have crohns, but my son does...and he is the smallest kid in his grade. Sometimes people make comments to him and it gets him kind of down but I tell...
What was his level? Our GI said it can take a while for it to come down once starting treatment, but as long as it keeps moving in the right direction, then it's ok (per our GI). My sons started at...
Eva Lou, he's doing ok on Pentasa, slightly loose stools, no blood, not many symptoms, although he's never really had many serious symptoms. At last appt, about 5 weeks ago, his blood work,...
Why is crohns associated with skin tags? My son got out of the shower last night and said a spot on his bottom seemed to get 'puffy' while in shower but nice he dried off, it went back down!? I took...
My 12 yo son was also diagnosed in sept/oct this year. I don't know of any kid specific forums...sorry. We are currently on Pentasa, going for second follow up week after Christmas, we shall see how...
So here's a quick update. Dr. Thinks Pentasa is working, so we stick with it for now. This is based on symptoms, growth, blood work and fecal calprotectin. I asked him about recent studies that show...
Thanks beave. Yes, the dr does not use blood work alone. He uses blood work, symptoms and growth...symptoms and growth have been positive, but not perfect as he still has loose stools...so need the...
Well, we had our follow up appt yesterday. Son has gained 2 lbs over past 6 weeks, which is great but loose stools continue. Waiting for blood work to determine if we stay with Pentasa or go to...
Thanks for the update worried4myson! We go back to dr. Next week, will let you know what he says......
My son gets the mouth sores all the time. Our GI said for sure it's crohns related....I've read elsewhere that it's not uncommon for crohns patients to get mouth and throat sores....
We see Dr. Flick also...my son will be 13 in feb and is 53.5 inches tall and about 65 lbs...hoping we see some growth soon too.......
Thank you. We also go to CHOP, do you mind if I ask what dr you saw there? And did CHOP suggest the Pentasa? Perhaps this is just their standard starting point for all 'mild' cases.......
Well the dr that wants Pentasa said he's mild. Other dr said moderate/severe but then changed to moderate after MRE. MRE showed little going on in small intestine that they could see. He also had...
Thanks all. A doctor from CHOP, Childrens Hospital of Philadelphia, which is a leader in IBD for kids, suggested the Pentasa. Our second opinion wanted to go with Remicade and methotrexate. Two diff...
Thanks, I guess we won't know if it works until we try it. He's only been taking it a week so far. He does have some inflamation in his sigmoid, and descending colon, along with his terminal ileum,...
I'm so sorry. Remember that just because somebody says something bad about you, that does not make it true. This is a problem with your parents, not you! You have done nothing wrong and you do not...
Hi all. My son was just diagnosed with crohns, mostly in colon and terminal,ileum. Dr has him on a Pentasa, nothing else besides some vitamins and 2 Boost drinks a day. Has anybody had success with...
Sorry, I'm new and ignorant about many topics here. Can you give me some more details about this treatment? How often? How is it done? How long does it take? How long to see results? Tell me...
So, IF my son is indeed diagnosed with crohns....what are chances his growth, which has basically stopped for the past 2 years, will start again and that he will make up for lost time? He's 12,...
Ok, got my sons appt moved up to this week. His initial visit. Other than the obvious, what other questions should I ask? We are bringing with us some past blood work, stool sample, list of symptoms....
Is a blood test enough to rule out celiac? Also, how is lactose intolerance generally ruled out? Is there any test or do you just need to see how your body responds to the foods?...
Thank you!! This is a great place for information, I will likely be posting more questions soon!...
In order to have a correct diagnosis, do you need both endoscopy and colonoscopy? Can you enlighten me...thank you! Also, what are your thoughts on the ensure and boost type drinks. Are they easy to...
He find have full blood work about a year ago. Vitamin D was low, but no markers for celiac. One of his growth hormones was low, but just outside the norm. It's his mouth sore that have me convinced...
I should also mention that he does have some pain, but only when passing stool. His D had been a darkish green with a speck or two of bright red blood. In the past, I recall him complaining that his...
My son has not been diagnosed with crohns yet, we've been searching for answers. He has been seeing Endicronologist for very slow growth over past two years with no answers. Crohns was never brought...