hugs, lots of love ... I'll be thinking of you a lot...
I use Miralax and a stool softner and low residue foods before the 'official' prep stuff, it helps to ease the flow and cramping a lot. The Miralax I've started using now daily since my little...
:-) Hola everyone I'm finally back! I had eleven days in the hole (hospital) this time, but it seems to have worked out ok and now I'm back home. I think I told you all about the spreading a bit, we...
I'm in hosp still as well! We can be hosp buddies heheh. When bowels are tender I go with low residue liquids, then full liquids, then low residue soft foods until I can build back up to regular...
Congratulations and we are totally sharing in your happy dance :) :) Plus it's so good to hear some good news, big smiles from me in my hosp room this morning I'm SO thrilled for you! Imagine a big...
Healthgrades.com and Google other GI's in your area, both have been very helpful to me in finding a good local GI and also looking up what other patient's have had as experience with them. It's...
If anyone is on twitter my user name is @little_bytes, feel free to stop by and say hello! I put up a pic of kiddo and me on my first day of chemo, so ya'll can see me with some hair, I fully expect...
Hello again to all of you :) Bgstiggy keep in mind I've had crohns for over 15 years now, and this is the first time it's ever actually landed me in the hosp, much less morphed into something else...
Hi all! Last week I was pretty tired, so didn't post much or update this thread - my apologies. This week is going a lot better so far and HEY I actually haven't had to go back to the hospital YAY!...
Hi, The worst part of 'oscopy is the prep (cleaning out your colon). The 'oscopy itself won't hurt you, and you should not feel worse afterwards - really! They put you in a 'twilight sleep' during...
Hi, and we are glad you joined also :) Crohns is a bit different for us all but it does bring us all together! I take Pentasa, which is mesalamine as well, but it delivers specifically to the small...
Hello all! Waving at you from back in the hosp again, I'm getting to know the people up here in this wing pretty well :) Gumby, no worries - I have prednisone brain all the time now and forget what I...
My heart feels for you and your loss. You will be in my prayers Mom's are irreplaceable....
Wow these are some high numbers! My highest was 16 and my doc was pretty alarmed by that, heheh but nothing compared to some of these numbers. As mentioned, this is a non-specific indicator of...
Spray tan for the win? As another one who avoids the sun for many reasons including meds I'm all for looking/feeling as good as you can. But not with tanning beds...I grew up in So Cal and we...
Hi all, Checking back in after the port has been installed and let's see I've had 7 radiation treatments now and 1 round of chemo. The chemo was not hard to receive, and I actually felt ok that day...
I just had my first resection two weeks ago. I thought it would be terrible, but it wasn't. Turns out I'm actually feeling better in that area! It doesn't 'cure' anything, and it's not easy, but he...
Hi Tess, Welcome and no problem at all! It's a hard decision to make, there is a lot of competing information on biologics. I do know my GI was very relieved that he hadn't started me on Humira yet,...
Thank you all for the replies, it's very much appreciated. What's funny to me is the timing of it all, and I too suspect Imuran played a role in this. In January they could see a lymph node enlarged...
Deakin thanks for the link, I've been wanting to learn how to make my own tincture and vape juice. Vaping is definitely healthier than burning anything, as no carbons or tars are released while...
Thank you all for answering. You know how it is when you are staring at the walls and stuck inside your own head :) Veronica that is a long time for such swelling, how are you doing? Have you had a...
Thank you Veronica so glad to hear from someone :) I'm feeling you on the swollen glands neck and arm, its such an odd and uncomfortable feeling.. And nightsweats suck. >.< LOL I'm going to fight...
Hi, I'm a 46 yr old mom with one wonderful son who is 13 and a very wonderful husband who I married three years ago. I'm very blessed with that, but we are in a new state (in the south) and I know...
So sorry you are having to go through all of this. Hopefully he is getting his nutritional status improved while he is there. /sending healing thoughts & prayer...
Another single stall here, with really thin walls. AND it's in the middle of the building so our desk cubbies can hear everything inside. Awe - Some (haha) I straight up told my boss and co-workers...
Oregano oil for a fistula doesn't sound right to me either. As with many others, I try to control my diet, eat well, lower my stress ect and get on with life - but when it comes to abscesses,...
So sorry you are going through all of this. If you are still in hosp please don't forget to move around as much as possible. Wear out those hallways, movement helps your bowels shift things around...
That's ok, we are here for when you feel bad :) One of the first things I was told back in the days of being diagnosed with this stuff - some days will be better than others. That turned out to be...
Sorry - Anything that Dr. Oz recommends is not something I'd take seriously. Helps to do some research on him first....
Remember to say this to yourself: I am not a sick person, but sometimes I do get ill. How you think about things is really important! IBS and other IBDs like Crohns or Colitis are hard to figure out...
Hi, I'm just back on Pentasa and have had a lot of education about it lately so I thought I'd share some with you here. The thing about this med in particular is that its a delivery method more than...