Thanks for the response. I will talk about the iron transfusion. I've had one before when I dropped to 7.3. along with 2 units of packed cells. That was a week before my hemicolectomy....
Well folks I've been away for a while. For the past 6 mo. I've been fighting infections and new conditions from the Crohn's and Humira. Since the last week of Dec. I developed and infection which...
Well, I was taken off the prednisone by the Rheumatologist, with no anti inflammatory. Within two days I was in a flare, with hands double their normal size in pain. Taking 1 5mg vicodin every six...
Thanks for your reply. This morning I have a regular doctors appt. We'll see what he has to say. He is the one who prescribes my pain meds. The pain is bad this morning, but the Vicodin and 2.5 mg of...
Thanks so much for the info. I have to get clearance from my insurance company, you know don't do anything until we tell you ok or it's your bill. I know the Cleveland Clinic in on my plan. The...
Thanks for the info. You have similar problems resulting multi problems. My age doesn't help. 65 now and feeling 75. Your right about the advil. It does help but can't take it more than once a day...
Thanks for the response. Hot showers help but short lived. fortunately I have good insurance through my wife. Humira manufacturer has helped tremendously. I can only pass on that if you have...
Thanks for the info. I'll discuss it with the dr....
I am seeing a Rheumatologist and he performed a lot of expensive tests, some at the U of M. He has concluded that the arthralgia is caused by the active Crohn's. This GI guy is new on the case. He...
Thanks for your response. In 2004 I had a new GP and she let me bleed all summer long. She told me she would get me into a GI guy and I said I was leaving her office for the E.R. My Hemaglobin was...
/community/emoticons/sad.gif One year ago I developed an inflammatory arthritic condition in which I still have had very little relief. I took some ibuprofen and experienced the best relief in the...
I didn't even think about it until someone said something. I am not bothered very much because I've been on prednisone for the last 6 mo. The Rheumatologist has been trying to get me off of it. Down...
I get it a few days after I take Humira. I get it around the site of the injection and a new area somewhere else on my body. Not really the same site twice in a row. It lasts 2 to 3 days then slowly...
I'm now on Pred and Humira, by the Rheumatologist, thru the GI guy. Pred for the past 5 months or so, was off the Humira, now back on the Humira with the 7.5 mg pred. Will see the Rheum. on the 30th....
I'm going through the joint pain they now are calling inflammatory arthritis caused by the Crohn's. Got off the Humira for 4.5 months, now back on it. Have been on prednisone steady since January....
I stopped Humira in January, because of Crohn's Arthropathy. Been on predisone 10 mg daily to bring down the swelling and extreme pain in the joints, muscles and tendons. Still using the bath room...
It is my understanding of the drug, that it is not absorbed into the bloodstream, staying inside the bowel. Therefore, it should not, and has not raised my psa when I was taking it. Now I'm on a...
Glad to see you've recovered so well. Hopes and prayers go with you for a continued life of all or some sort of remission. Anyone who goes through this understands....
Thanks for the response, I can discuss it with the doc. He put me back on pred 10 mg until I see him next....
After my resection 13.1 is high for me. 10.3 is my lowest. Before my surgery, I was 7.3 and all my family doc wanted to do is get me an appointment with a GI guy. I bled all summer long. Of course I...
I now have swollen hands, no knuckles can bee seen, left foot more than right, both shoulders, with loss of strength and very painful muscles and tendons. Had joint pain before but this is different....
Thanks for the reply. I've been off the Humira for 5 wks now with no signs of the pain and swelling letting up. The prednisone has taken the tip off the pain with the reduction of alot of the...
Thanks for the reply. I went to the GI MD, he took one look at my hands and wrists, which were double the normal size and said you have an inflammatory arthritis or Crohn's arthritis. Or it could be...
In October, I started having extreme pain in the shoulders, wrist, hands fingers, hips and back. Call the GI guy, thinking it was a reaction to the Humira. I reacted to the Remacade after 3...
I have a Humira card, issued by Humira, thru my GI guy. It brings my $100 copay to $5 at the pharmacy.A financial assistance program from myHumira. Here is a phone number 1 877 827 2893. Give it a...
3 months after my hemicolectomy I developed gangrene of the gallbladder. They said it was due to the Crohn's....
Make sure you put it in a ziplock bag. keep the moisture out....
Thanks, my wife is an RN called and talked to the GI's nurse, trying to get me in earlier. Will probably find out tomorrow. They are subsiding a little, but can still hardly talk....
Anyone get throat ulcers, from the back of the throat to the stomach? I had to crush percocets to a powder and drink them down. Couldn't eat. Two week, lost 17 lbs. Abdomen feels good, can hardly...
I take 81 mg aspirin with Plavix for my heart. My Hbn is 10.5, should be 15 to 17. But I've had a colectomy, with the CD coming back in the Ileum. I'm still bleeding, but I deal with it....
Welcome, I had problems in 6 mo. being on Remicade. Joints swelling, then skin peeling off. Very painful joints and tendons. I went to a Rheumatologist and he really could not find anything wrong...
Welcome, short and sweet, glad you could join us. I hope you get as much out of it as I have....
I had a bad A/O valve and was admitted in an emergency with chest pains, etc. Found out I also had a 6.5 cm Asending Aortic Aneurism. I was already taking aspirin and Plavix. Had a 16 day hospital...
I'm taking Humira every other week. Box of two injectors are $1680. I have a $100 co-pay for the drug. I have 20 other drugs. Humira helps with the co-pay and brings it down to $5.00. I'm from Ohio...
Thanks, I usually treat one then the other the best I can. My weight goes up and down so much, I feel like a YoYo. For the past month, my CD has been getting better, but my sugars have climbed....
1 1/2yrs ago I had my valve replaced, one bipass and a 6.5 cm Thoracic Aortic Aneurysm repaired and now I'm doing fine....
When I have a flare, I go on Prednisone and insulin for the rise in my sugar level. Without the insulin, it can go wild. I was taking 60 mg of pred. Gotta do something....
I have a friend who has been taking prednisolone for about 25 yrs. until her body developed antibodies against it. She was being treated for ITP, Idiopathic throbocypetic purpura. A blood platelet...
Thanks for the response Harleyguy. When I go on steroids, I've hit a 500 sugar. I have to go on Insulin along with the other meds. Doctors really have a hard time answering my questions when it comes...
I have type II diabetes, and was wondering how well everyone else who has these diseases is managing them. When my Crohn's is good, my sugar is high and vise versa. Bad Crohn's good sugar. Taking...
I was on Remicade for 6 mo. and developed antibodies from the mouse protein used in it. Infusion every 8 wks in the doctors office, about 3hrs. They charged 10K, but I don't think the insurance paid...
I've been on Humira for 2 yrs now. I the last couple of months Ive been getting scaly patches on my skin, looks like psoriasis when you pick off the scale, fungal infections in the groin and axillary...
Glad to have you join. I'm fairly new myself....
I had 4 out of 5 doctors betting that I had cancer. The 5th doc was my doc. He said NO WAY. I did have a Hemicolectomy. 14" of my colon and terminal end of the ileum removed. That's when they knew I...
I take Plavix and aspirin. I'm bleeding now, but don't feel it's a flare. Terrible pain to the joints. Had open heart 1 1/2 yrs ago. Aortic Aneurysm, Aortic Valve replaced and 1 bipass. Taking a...
I guess we can only try to be knowledgeable as much as we can. It is still up to the director of our healthcare, the GI doc. We can go with him/her or we can seek someone else, but they are the ones...
I was having a small bowel series and was sitting in the waiting room with some other guys. They separated us into two groups, one for upper and the second for lower. They called this guy in our...
Don't wait, call the GI guy. I tried a Rheumatologist which was a waste of time and money. Your GI guy will know what to do. He's seen it and treated enough....
The GI doc says I'm doing good. I have the blood in my BM's 1 out 3 days. I made a mistake once by thinking a full belly of lean meat, may tighten up my BM. Big mistake! I though I was dying. Almost...
With my heart condition, I'm taking Bumex 1 mg. It makes me drink more fluids or I'll get dehydrated. Getting dehydrated is not good for me because it causes stones. So, I go to the rest room 15-17...