After my son's second infusion, his liver enzymes came back elevated. (In the last week of Oct). BTW, his liver numbers were normal before that. Doctor re did the blood work in the second week of...
Update on my son... We got the second opinion from the University of Michigan and the the new doctor also recommended Remicade. The new doctor verified my son's diagnosis again (She got the tissue...
Thanks a lot cdinhyd....
My son's fecal calprotectin is 920. It's too high and our doctor is strongly considering Remicade. However, we are still thinking. I don't want to jump to Remicade. Somehow, my instinct is suggesting...
@cdinhyd: Our doctor is considering Remicade as my son's fecal calprotectin is 920 (too high). He isn't still in remission. My concern is.., we have no plans of staying in the USA. Husband came here...
Thanks Bloom93 for your suggestion. In fact the doctor has done the cdiff test couple of times already? I can ask him to test for cdiff again. Thanks Diane. The doctor is thinking of Remicade for...
kamakya: Bloom93 referred me to you. My son (8 year old) is recently diagnosed with Crohn's. We are from Southern part of India and vegetarians. I wanted some help regarding the diet as I'm finding...
Thanks cdinhyd for your opinion. In fact, we were also thinking of going to India this year for 3 months to see any improvements. But, with his current condition it's tough to travel. So, we are...
Thanks Ides. I'll definitely keep you guys posted. Thank you all. I respect each of your opinions. I am not against any diet. As I mentored above, my son loves to eat. He really enjoys the process of...
Thanks for your reply cdinhyd. I know, moving back to India is a huge decision. Especially when you aren't sure if it's gonna be worth. Crohn's is better understood here in the US. He's my only child....
Cdinhyd - thank you. He did have a lot of the side effects from the steroids. Thankfully, they are wearing off now. 73monte - Hopefully we'll find the right doctor soon. Thanks for your inputs....
Beave - We are planning to book an appointment with an IBD specialist at Ann Arbor. Hope to get an appointment soon....
cdinhyd - yes. His diagnosis was after the colonoscopy. I don't think his diet has changed. My son is a very clean eater. He didn't like eating cheese, fries, soda or any kind of junk. I think, the...
I'm one of the new members. My son (8 year old) is diagnosed with Crohn's in April'15. He has moderate to severe Crohn's affecting his colon. We are still in the process of achieving remission for...
Thank you Beave. We live in Michigan. I have some questions with Remicade though. Once he starts, does he have to be on it forever. How about the doctor trying 6mp or imuran before remicade? Isn't he...
Hi all, I'm the mom of an 8 year old boy who was diagnosed with Crohn's after 6 months of suffering. Let me give you a brief about his background. We are Indians who moved to USA in 2012. We are...