Many thanks for your good wishes! I send mine to you...
Hi everyone - have not been on lately but thought would give you an update. Anyone who has read my posts will know how stressed out and hopeless I had been feeling. My son was transferred to...
Thanks Nora - I have struggled to hold on to the faith I had and the comfort I usually find from it. I've been unable to go into my church for months, I know I've been neglecting myself totally while...
Many thanks Nora and Countrydad. Yesterday, I could see a huge difference in his appearance, and in fact he looks better than he has for years, and he has put on 4 pounds in weight! Although he is...
Hi Nora - well he has a little infection at the site of his wound and is having antibiotics for it. The thing I'm most worried about at the moment is his weight, he's down to 8.25 stone from over 10...
Hi Nora - I went in last night and spoke to them about it. I got lots of apologies. I also told them I was concerned about infection with him being in a ward with others at the moment. They are going...
Hi Nora - he had a terrible night as accident with stoma and no-one on duty who could help re-fit it properly for him so spent the night laying in a mess. Just not good enough!!! and very upsetting...
Hi Dingleeire Am in UK so under NHS and the doctors have to get funding for some drugs. A funny system as if you live in one area you may get it, but in another you may not. Prior to his operation...
Thank you so much for your response, 2 weeks ago we were very scared that we were going to lose him and to see him so much better since his op on Tuesday is amazing. The mental strain has been...
Thank you so much for your kind words and I'm so pleased your son is doing well. I am worried that the Humira will be withdrawn because of the funding issues but will fight to get him kept on it....
Many thanks for your help, it seems that is vital to educate yourself and to make sure everyone is working together. I have been trusting in the consultants but there seem to be 5 or 6 different ones...
Hi - thanks for your reply - below are the treatments he has received up until recent op Was diagnosed with Crohns Disease in July 2013 after suffering 10 years plus of bouts of agonising pain Had an...
Hi all - I wrote on here a few weeks ago as had been worried sick about my son. He had severe blockages, had been vomiting daily for months and had severe weight loss. He has had a 2nd major...
My son was eventually diagnosed with CD April 2014 after suffering 10 years of bouts of agonising pain, vomiting, and crippling depression. He then had a breakdown which I now believe was a direct...