Many years ago I had a temporary loop ileostomy. To be honest, I don't remember ever having any issues with my loop. I NEVER had issue with output, pouching or leaking. I had that for about 3 months...
Elena...I just want to put something out there. I know a young woman who had the same issues as you for a long time. She would go extreme long periods of time without having to go to the...
Yes....everything done at same time....
Hi Christine. Sorry I was not around to see your post yesterday. I will answer your questions... LOL...yes my BD is 8/12. I know so many people who have that birthday....now I am adding you to that...
Mean't to ask you if there are any stoma nurses available at the hospital where you will be??...
Hi Woogy, I met with a stoma nurse before my surgery. Placement of the ostomy depends on several variables. She marked me according to how and where I wear my clothing. She was particularly mindful...
Hi Christine. I would never opt for surgical intervention either. Hope all goes well with your biopsy....
Christine....Sorry you are having trouble getting access to the medscape article. At least you now know about such a condition...and you can start a dialogue with your Dr. Hope your appointment goes...
Hi Christine. When you google Horizontal Vagina Syndrome you will get some good sites to go to. Click on the NCBI article and also the medscape article. The medscape article talks about Inflamatory...
I know you said you are a vegetarian....I am not sure if you eat wheat products? If you do...possibly that could be the cause. My daughter always struggled with horrific bloating and pain. Her DR....
Songlady, so sorry you are having such a hard time. You are only 9 days out since your stoma was formed and it will continuosly get smaller till that levels off at about 6 weeks. Because of this it...
Maybe a suggestion for the use of the protective ring would be to apply it to the wafer so yes it is up to the edge...but also maybe flatten it down so more surface area is in contact with the actual...
Hi Kanva, Has your ostomy changed much in appearance? Has it become retracted where it has sunken in more and has become more flush with the skin?? These changes can cause the output to get under the...
HI Christine. So glad you saw this thread. I hope I have helped others too. I know you have been dealing with your discharge issue for quite a while now. All my specialty gynocologists never even...
HI NSSG. I have read of a certain surgery called the Kylberg operation. It sounds VERY aggressive....a major surgery. Given my history of many, many surgeries leading up to my total proctocolectomy...
Hi all. It has been a long time since my last post. First I am wishing all merry Christmas and a happy and hopefully HEALTHY holiday season :) There is a condition known as Horizontal Vagina...
I am using the coloplast 1 piece Mio which I really love. I get great wear times and the filters are really working for me.I remember that early on after my ostomy I tended to have much more gas. As...
Welcome Red. First let me say you are not alone. This forum has always been a lifeline for me and it will be for you too. It helped me get through the worst of my flares with Crohns disease and it...
kiptyn, First thing I would tell you is to take a deep breath. I know, as do many members of this forum know that getting a finding of dysplasia can be a bitter pill to swallow Once this diagnosis...
So glad things seem to be coming along in your healing process Pjb. Today I did see the stoma nurse and she marked the area for the stoma...we will see if this is where it will end up. Hopefully it...
Hi Pjb! My surgery will not be postponed. I am very relieved that I will be moving forward for Friday. Yes stoma shape is important. I already told my surgeon I wanted a well budded stoma ( as per a...
Thanks BBUC and gospelady. Seems we are all a go for the scheduled surgery date...3 days to go. I will definitely look into getting a sampling of supplies. I will look into the United Ostomy...
Wow Pjb...thanks for your wealth of knowledge & thanks for sharing!!All your points are well taken. I know it will be trial and error for the most part what works best for me. It is true that...
PJB thanks so much for all the advice! So glad you have come so far in a short period of time. You are an inspiration to me! My surgery is in 4 days. ....I am a bit anxious. I know this is normal. I...
Thanks for your honest input johnlamb. I agree some people sugar coat the reality of it all. My feeling is I rather know things ahead of time. I hope you are feeling better every day....
So glad you are home!! Seems like there were no setbacks for you while in the hospital.....am I correct you had no setbacks such as infection etc? Yes there are many wonderful and caring nurses out...
HI johnlamb. By now you are out of your surgery.Take one day at a time....wishing you all the best!!...
Thanks K-del for your input! I already spoke to the ostomy nurse & she did tell me to ask the surgeon for a well budded stoma...as it will give more options with the wafers & systems to wear Glad you...
Thanks Bukowski! I can certainly do the warm/hot showers to the area. I imagine It might also help the wound heal.Love that quote at the end of your post :) Very true & inspirational. Thanks for...
Thank you BBUC!...
Thank you MMOM for your post. I will definitely look into that waffle cushion. I will definitely order now so I will have it when I need it. I am very confident in my surgeon so for that I am at...
wow!!Thank you all for your posts!!! ALL of your replies and input actually put a smile on my face!! I am feeling..YES I CAN GET THROUGH THIS!!!! NSSG best of luck with your upcoming surgery. We all...
Thanks so much for your post NSSG! I think I remember you from the other forums. I did have a temporary loop ileostomy about 17 years ago...but it was reversed. The products used for ostomies today...
Hi all. I am new to this forum. I have crohns. I was diagnosed about 20 years ago. This past year has been a particularly difficult year....I have spent a lot of time on the crohns forum. Fast...
Hi pmedic! Thanks so much for your prayers and well wishes! Unfortunately I will not be able to be reconnected back. When there is dyplasia in a colon of a person with Inflammatory bowel disease, it...
Thank you pb4....
Thanks so much Nice Cup.! I know from all your posts you yourself have been through a lot. Thanks for your wishes & sending you well wishes too....
Hi all. A lot happened since my last post. First I want to thank all of my fellow crohnnies on this forum. This past year has taken me on a winding and tortuous journey. This forum has been a...
HI pmedic. Sending prayers and best wishes for your speedy recovery!...
Thanks Gumby! You are probably correct!...
Thanks Rose*flo for your reply. It seems florastor helps a lot of people on this forum. The PA in the doctor's office instructed me to take it 2xday..but not at the same time as the antibiotics. She...
Thanks again for all your replies. Once I speak with my Dr. I will know the next step.......
Scifigal &Homeboy,how long after the FMT did you actually see a change in your stools? I will certainly discuss this option with my Dr. Also was wondering if anyone had adverse effects using...
Thanks Pmedic. Really don't know anything about LDN..Is that Naltrexone? I will certainly look into that thanks....
Thanks Gumby. Yes you are probably correct that this continuation of symptoms could be crohns roaring its ugly head... I have been on Uceris concurrently.... From what I understand I will probably...
Hi all. It has been a while since my last post. Just to give a brief summary of what has been going on ....I have been on entyvio for my crohns since about October. I have been doing so much better...
Hi Hexe. We here at the forum hear you and know too well the pain and anguish that this disease causes to patients and also to the loved ones around us. Just know and believe that things can and will...
Thanks again so much for all your replies. My Dr. did write me a script for Zofran. Still so not sure about this next step..... It seems that the consensus is that it does cause extreme nausea, loss...
Thanks so much for your replies!! My Dr. will also be putting me on folic acid. I wonder why my Dr. spoke only about injecting this med. He didn't even mention the oral form of it. Jen are you still...
Hi all. It has been quite a while since I last posted. I am currently week 14 on Entyvio. Initially it really helped me as I was in a horrific flare that started this past August. I saw a great...