Did you ever find out any information on this? I have been googling to see what I can find, which is how I found this lol. I always get my infusion at the bend of my elbow because it’s the easiest...
My first SMBF I couldn't stand the barium and I just couldn't get enough down or something because I was there for almost 3 hours waiting for it to move through me and they were getting pretty...
I'm wondering if the high heart rate could then also be from the 6mp? I'm on imuran and I started it with 40mg of Prednisone in late February, between then and now I went in to the ER and urgent care...
Also, I'm supposed to start remicade for the first time on the 11th... Would it make it worse if I had it, like should I wait until I know if there is any doubt, or will it be okay?...
I called them on Friday and still haven't heard anything back. I'm debating calling again or just going to the ER. Their office is so busy, and my doctor specifically is bouncing between his job here...
I've been on 50mg of imuran since February 28th, and lately I have been having pain under my left and sometimes my right ribcage sporadically. Usually after I eat and this morning after I had my...
I understand the distance thing. The nearest and my most used hospital to me is more like an urgent care that can do expensive testing, and I've found that PAs tend to give much better care than the...
My theory is, if it is worth it to me in the moment I decide to go, it's the right choice. Practically every time I go I have at least one person that makes me feel like I shouldn't have, but the way...
It's awful how horrible some doctors treat you! I hate going to the ER because you never know if you are going to get a doctor that actually cares or a doctor that doesn't believe you or see it as an...
I googled it, my problem is a lot of the time these symptoms and side effects of meds are the same as the symptoms of crohns haha. What ever is going on has me feeling like a hypochondriac! My hip...
The only medication I'm currently on is imuran 50mg, and according to the blood test we can't go up or down on the dose at all. But lately I've been having weird symptoms, starting a few days after I...
I know that all I can take is Tylenol, I can't have any NSAIDs right now according to my doctor. However in 2012 the same doctor prescribed tramadol, but this flare he said absolutely no NSAIDs. So...
The whole system is so messed up! I'm sorry you are dealing with that. I know how upsetting it was when I got diagnosed in 2012, due to the pain and depression of it all I lost my job and stopped...
Thank you! I've been waiting for them to call me anyways because I had the blood test to see how my body metabolizes the imuran last Friday, and also hep B and I thought TB, but my mom said TB isn't...
I've been on imuran for almost 2 months now, I just had the lab work to see how it metabolizes in my liver done Friday, but I haven't heard from my doctors office yet about the results. When I...
I haven't heard anything about pentasa and fertility, but I do understand where you are coming from. I am a 23 year old female and I am also terrified I won't be able to have kids when I am ready, I...
Thank you, it could probably be something else, I see my doctor on Friday so hopefully he will have some more answers. It is just frustrating to feel bad all the time. I will ask him for a lab slip...
It feels like my symptoms are getting worse but the Crohn's is getting better? So my last ER visit the doctor said my CRP was "high for me" which I am assuming means he compared it to the last lab I...
Thank you all, that eases my mind a lot. I bought some snacks today, goldfish and such to take, I am planning on drinking an ensure before I get to the airport and just snacking to hold me over so I...
I'm flying from Nevada to Ohio for a few days Thursday, and I'm wondering if anyone has any tips on traveling with Crohn's during a flare? I'm really stressed about it because this is my second flare...
I'm going to start looking for a PCP close to where I live today. I have been picky in wanting a female doctor, but closeness is more important to me. I will have to find a PCP before I can switch...
I am horrible at remembering if I took my pills or not, and daily pill boxes only work for me for about a week or two (I start putting off refilling them and end up where I started). I got a a...
And I don't know why he said no to tramadol then because when his nurse called me back she said no because he said no NSAIDs. I just think he doesn't like prescribing things, the prednisone has...
I like him as a doctor, but lately it feels like I am just supposed to suffer through. My last appointment I left feeling very confused and hopeless. I had that reaction to humira and I remember a...
He has given me tramadol before, but I asked for it about a month ago after an allergic reaction to pentasa, and he said absolutely no NSAIDs. It did make me nauseous, but I found if I take half, and...
Thank you! Hot showers are my saving grace lately! The fissure hasn't caused to much pain to this point but I have noticed a lot of redness in the area. The stomach and flank pain are the main...
I will have to talk to my GI about it, the ER doctor didn't seem to concerned with it. I am thinking my crohns is progressing to a more serious state, and that probably explains the increase in pain...
I am at the ER now, everything looks good, my crp is high, but everything else is good. I got 2 bags of fluids. The ER doctor is going to try and get ahold of my GI and see if he has any suggestions...
I didn't go in yesterday, I was hoping my GIs office would call me back this morning with some advice, but I am pretty miserable today and it is only 9:30 AM, so if I'm not feeling better tonight and...
He did say he would call, and he gave me the UA form and wrote my vitals on it to give them if I go. I just don't want another CT, even though that is what my doctor ordered, (I just had one done in...
That is exactly how I feel about going, and last time I went I thought I was dying and it was just sever anxiety from the prednisone so I'm still kind of embarrassed about that. My heart rate is a...
I did go to urgent care, the UA was completely negative, but my abdomen and kidneys were super tender during the exam, a lot more than they were Monday when I saw my GI. Also my heart rate was 120,...
I went to see my GI Monday, and I expressed to him that I had been having pain in what I think is my kidneys. He ordered a ct scan, I was told the imaging place will call and set up an appointment,...
I am right where you are, almost at the end of my 3rd week on imuran 50mg, but I started it at the same time I started prednisone, and I am trying to sort out symptoms which is from which, and...
Thank you! That is exactaly how I felt! And it still happens on and off! I feel like I have this looming feeling of doom, where I'm constantly scared there is something serious wrong even though...
They didn't do any blood work, they really just covered the basics for going in with chest pain and shortness of breathe, just the EKG and chest X-ray. I did have the routine blood work for imuran...
You are probably all right. I posted not long ago about issues with anxiety and prednisone. This felt different than the usual anxiety I experience. As crazy as it sounds I feel like I convinced...
Prednisone is kicking my butt this time around! I just tapered to 35mg after a week on 40mg. I woke up this morning feeling like I got hit by a truck, then it started getting hard to breathe and I...
Thank you all for the input! I'm not sure what's so different about this time on pred, but it almost feels like I'm not even on it minus the anxiety! The other times I have taken it I had loads of...
I am hoping his RN got ahold of him today or gets ahold of him tomorrow morning, and he gives her the go ahead to give me something for it. I hate asking for any kind of medication, and I know my...
Last month went to the ER with rectal pain, they did a ct and said I was having a flare and put me on prednisone (60 mg for 10 days, 30 for 2, 10 for 2 then I was off) and told me to go see my GI. I...