Hello I had my 1st Boswell resection a year ago. After my surgery my doctor started me on Entyvio. I had to go off because of side effects. I haven't been on any medications for 3 months. (Bc of...
I had my 1st bowel resection in May '16 - since my surgery my pain is gone, thankfully. But my IBS is awful - I had a 6 mo post op colonoscopy and it showed I have bleeding ulcers at my anamatosis...
Thank you for your reply and also Thankful your son is doing well. I got two different answers. My GI said that my crohns is back - although my biopsies from my colonoscopy were negative - itbjust...
Thank you for all of your responses - I recently had my blood drawn and my HGB was up to 10.8 - not the best but its a start... I did have my second transfusion of Entyvio. I seemed to tolerate it...
Do you think this could be fixed without another surgery? When you say entocort is that a type of steroid. He told my husband he wanted to put me on entyvio is his 1st choice and stelara was his 2nd...
I have one anastomosis site - I'm just so very anxious. I am planning on calling my surgeon on Monday. I just have so many questions....
I was on humaria before but I had side effects that my doctor switched me to cimzia - yes I was on it before surgery, I stopped 4 or 6 weeks before surgery and started it 4 weeks after. 5 weeks post...
After my labs levels were off and I needed a blood transfusion my gi doctor sent me for a emergency colon/egd. I am almost 6mo out from having my 1st bowel resection due to my crohns. The findings of...
***update**** The findings of my colonoscopy / egd showed my anastomosis (sp) is where the bleed is. It's a very slow bleed - dr couldn't do anything to help it bc it goes all the way around. His...
****UPDATE**** I received two units of blood yesterday and am scheduled for a EGD and Colonoscopy tomorrow. My GI said he has a great concern that I could have a slow bleed... im so anxious! Im...
Yes I did have my terminal illium removed. you said it takes a while to respresent in hemoglobin??? I'm 6mo out from my surgery... how long does it typically take? Nope - only labs were CBC w and a...
I'll keep you all posted - I'm really anxious that something is wrong and I'll need another surgery - I always think the worst! Today I just had my standing order labs - CBC w and a hepatic(?) not...
Yes I am showing signs of anemia - I've had this horrible head cold the last two weeks so I was blaming that for the symptoms - I have had headaches, out of breath walking up stairs (im healthy...
I had my first bowel resection in may - theybremoved 12inches of my small bowel and 12" of my large - after surgery I was on a blood thinner as standard procedure. 1mth after surgery I was admitted...
I am 4 months post op - I had 1 foot of my small bowel and 1 foot of my large bowel removed. Wondering what you all experienced as far as your bowel movements after surgery? I would say 90% of the...
Dikid - I'm taking flagyl for the c-diff just started the pills today. I'm currently taking 2 iron pills a day by mouth. My gi is having me get iron infusions once a week until my levels get to a...
Thank you both for your reply. I did feel awful. I knew something was wrong when walking up the stairs I had to sit at the top step because I was so winded. I just started the antibiotic today for...
Well - I have had a lot of firsts this year - My first bowel obstruction lead to my first surgery ... They removed 1ft of my colon and 1ft of my small intestine. After surgery I came home and found...
I had a bowel resection 5 weeks ago - before my resection I was going to the gym 4 times a week and was very active. I'm a 33yo healthy (besides crohns) girl would is usually active... I'm now so...
Hi I'm almost 4 weeks post op and am having a hard time w fissures. Anyone else have this problem? It's so painful to go to the bathroom and I've been going 4-6 times a day. Went I had my follow up w...
I just had my 1st bowel resection 4 weeks ago and I am having the same issue :( on my good days I have 'form' for majority of he says it is awful! I'm going 6-7 times a day. Are you having issues...
I am 1 week post op and feeling pretty good. I feel so thankful for this board and for all the suport I received. They took 12inches of my smal bowel and 12inches of my colon. Dr was very pleased...
So nervous for my 1st bowel resection surgery that is scheduled for Monday! Question about weight loss... Did you lose weight? Was it significant amount???...
Im scheduled to have my 1st bowel resection on Monday, May 9. My surgeon took me off of cimzia because of surgery and since Im having horrible joint pain. Joint pain always go hand and hand with my...
Thank you so much for responding - hearing people that have went through this helps relieve my stress ... sorry to here you are having inflammation - ive heard great things about entivio....
Thank you so much - I'm so anxious and scared....
Just had my colonoscopy following my SBO and am told I will need to have my 1st resection due to a stricture. I meet w the surgeon on the 20th. My GI said its likely I'll be able to have it...
thank gumby44 - well aware of the search bar and how to research online - I wanted support from people in this group. :)...
I have had issues with the same spot of my small bowel three different times. My last issue ended up being a small bowel obstruction and I was in the hospital for 5 days - thankfully I was able to...
I was discharged on 30mg of prednisone - my gi is having me cut back 5mg each week... If remicaid and imuran take that long to work I'll be done w prednisone before.... That's a great question. I'm...
I would do two shots every 4 weeks. I would rotate between belly and legs - I agree with letting it get room temp before administering. Also push it slow... It's pretty thick stuff Good luck to you!...
I was dx w crohns when I was 19 and now am 33. I have tried humaria and had a side effect of htn so I then went off treatment (had two babies :) then started cimzia. Last week I found out cimzia...
they did a ct in ED that confirmed a small bowel blockage... i did have two other xrays during my inpt stay that showed that is subsided. i meet with my gi on thursday... looking forward to getting...
I am on cimzia - this is my 1st hospital stay and 'major' flaire with my crohns... do you think this means the cimzia isnt working anymore? Also, do you think since i had this small bowel obstruction...
I was hospitalized with a crohns flaire and a small bowel obstruction last week. Since then, I've had a few days of loose stools and now, I haven't went in two days. This is normal for me but...
What are your Symptoms of a part obstruction? I'm just scared this is going to be an on going issue - dobyou think that I'm at an increase chance to have this happen again - and soon?!...
I was diagnosed with DC 19 years ago - I have been very blessed that I've been able to keep my CD under control. I started taking Cimia 7 mo ago and just had my 1st big flaire. I went into ER with...
Thank you Octobergirl! You've been so helpful! I just got off the phone w my gi dr & he is calling my OB to refer me to see at least consult w a high risk doctor. How early was your baby? I've never...
Has anyone been on entocort during pregnancy? I'm 7 mo preg & currently not on anything. Having a flair - dr wants to try entocort? Thought?...
Stef17 - I've been on humaria 2 different times... Each time my Bp would go crazy!!! With my 1st child I was on humaria & they just medicated my Bp... Ended up having him at 36 weeks due to Bp...
Octobergirl - thanks for sharing! My MRI is wo contrast but they said I would still have to drink stuff... Does that sound right?...
Kazbern - thank you, I didnt even think about the contrast, Ill look into that. We did go over the "long term plan" depending on the results of the MRI is what Im going to start on... his current...
Im 25 weeks pregnant and Im having a horrible time with my crohns; joint pain and belly pain. My OB ruled out anything is wrong with my pregnancy. I wasnt on any medication... my GI just put me on a...
Hello I have CD... Went off if humaria as it cause HTN.. Dr was going to start me on Cimzia... Was off meds for a couple mths Bp went down & I got pregnant! Currently 13 wks preg not wanting to start...
I have been feeling awful for the last few weeks; dizzy, my head tingles, I feel like I can't see straight and I just don't feel "on", cant sleep, always worried something terrible is going to...
eawilliams - did your GI support you when you went off your medications? Did you have High Blood pressure going into pregnancy? Thank you all for your comments... they really make me feel better...
I was on humira with my 1st pregnancy and stopped just before my 2nd trimester; babys kidneys were enlarged... ob said it was "common" and most likey wasnt cause from humira but I had a bit of blame...
Sparkleplenty - what are you taking now? What bio drugs did u take and what were ur side effects??? Thanks for all the encouragement and comments. I'm still scared and haven't started bio's yet....
I've suffered from anxiety in the past. Currently I'm not taking any meds. Wondering two things; 1. What do u feel like when u have anxiety? 2. Can you have high blood pressure from anxiety? I also...
Is anyone in denial about having CD? I was diagnosed almost 10 years ago and still have a hard time with it. My GI recently wanted to put me on Cimzia as I got HTN from humaria… I have had the...