Sorry for taking so long to get back to all the responses. I posted something last night but it seems to have disappeared. For the last few days the stomach pain has been getting less and less in...
I have had Crohn's for about 7 years now and my symptoms have mainly been stomach pain and joint pain. I was on Remicade for about a year but had to quit because I built up anti bodies. GI started me...
Not sure if everyone knows about this prep called Suprep. It was a first for me and compared to the old stuff (sorry but I do not remember the name but it came in a big plastic jug with a packet of...
Has anyone experienced a strong chemical taste in your mouth from taking Cimzia? I have been having this problem for the last week. I can brush my teeth and it disappears but returns in a few...
Sorry for taking so long to get back to you but I have been paying more attention to my eyes burning. It starts just a few hours after taking Methotrexate and then gradually gets better but never...
I am no expert either but I do have experience with anti-bodies. I was on Humira for nine months when it suddenly stopped working (joint pain,stomach pain, and fatigue returned). They found out I had...
Wednesday77 it's been four days since my last Methotrexate and the burning sensation has almost stopped. I'll let you know if it returns after my next dose on Wedneday....
I am having a similar experience. I have been on methotrexate for 5 weeks now. After the first dose I had a major headache, the second dose was a little better and after that not much of any side...
I was on Humira for nine months and started building anti bodies so had to switched to Remicade. The Remicade worked great for one year then suddenly stopped working, once again I had built up anti...
I know what you mean. Ice cream is one thing that really bothers me when I eat it. Most of the time I can walk away from it but every once in a while I give in to the temptation knowing that I will...
Ides. A quick question. When you were having the muscle pain did you ever take another dose of Remicade and if you did, did that make the pain go away for awhile?...
Thanks for the inputs. I'll let you know how this turns out....
I have been on Remicade for 13 months and as far as my Crohns goes it has been working great, no inflammation on last colonoscopy. I was on Humira previous to that and developed fairly severe muscle...
Sorry you are going through this, but try not to worry about the colonoscopy. I have had nine of them and for me the procedure itself is a piece of cake, they knock you out and you don't remember a...
I have been on Remicade for a year now and have not change my eating habits at all. Maybe I wash my hands a little more than before but that's about the only precaution I have taken and i have not...
I have Crohn's and have been on Remicade for a year now and while it is working (no inflammation found on my last colonoscopy) it is starting to cause muscle aches mainly in my legs. I experienced...
I was on Humira for nine months and never had a cold or infection, it just did not work for me. Not sure where you are taking your injections but for my first four the nurse insisted I get them in my...
Thanks for the responses. Clo; If I understand my doctor correctly she is putting me on the 6 week schedule vs 8 weeks to try to get the antibodies lower. I was wanting to go to 6 weeks because I...
Two months ago I had a colonoscopy which showed all inflammation in my ileum to be gone thanks to being on Remicade for the last 10 months and I had been feeling fairly good. Last week some of my old...
My Nurse explained it this way, seems like the "older" doctors were brought up using the "bottom up" approach. Use the weakest, safest drugs first then if that does not work go to the next stronger...
I was on Humira for nine months and it did nothing for me. Have been on Remicade for six months now and it seems to be working. I still have some symptoms (stomach pain, fatigue, and joint pain) but...
After my third infusion of Remicade I had a bad reaction where I got extremely weak, had rapid short breathing, rapid heart beat, and very low blood pressure after I got home. Talked to my doctor and...
There are certainly people here who have way more knowledge and experience than I do but I would suggest giving Remicade a try. I was on Humira for nine months and it did nothing for me. Have been on...
Scifigal2k Thanks for the info. I think I will bring up getting that Promethus test to my doctor. Seems to make the most sense....
Thanks for the replies. My main symptoms are extreme fatigue, joint pain and leg muscle ache. Like I mention before I went through this on about week five of my previous dose also. Every day the...
Does anyone notice Remicade wearing off after about five weeks? I am on my second cycle of Remicade very eight weeks and am feeling like crap right now and I still have eighteen days to go before the...
I've only had four infusions so far. During the first two the only reaction I had was being tired for the rest of the day and then the next few days felt great with lots of energy. After the third...
I have been off Humira for about six months and I never had any kind of temperature indicator shipped with it so can not comment on that but I did have one shipment that was three days late in the...
My experience sounds somewhat like yours. I had extreme stomach pain and vomiting one night and ended up in the emergency room. Spent a day in the hospital doing all sorts of test and came up with...
I was on Humira for nine months and had to come off it due to severe muscle ache and fatigue. Just had my fourth infusion of Remicade and I feel better now than I have for years. I started noticing...
I can relate to the fatigue issue. After my first dose of Remicade I had lots of energy for about one week then it went away. I figured my energy level would increase again right after my second...
I was on Humira for nine months. For the first three or four injections I felt like I had a mild case of the flu for a few days . After that I had no side effects until about the eight month mark,...
I've just completed my second dose of Remicade and have experienced a side effect that I also had after the first one but forgot to mention when the Dr. called the next day to see how I was doing....
Ides, Thanks for the response, that gives me encouragement....
Has anyone had any luck getting Tri-Care to cover Remicade? I have been on Humira for nine months and GI just determined it is not working and they want to switch me to Remicade. Only problem is...
Thanks for the responses. I was not aware that Entyvio could take up to six months to start working. I'll go with whichever my GI decides on. Big problem is getting my insurance company to approve...
I've been on Humira for 8 months now and started having problems with extreme fatigue and muscle aches mainly in my legs so had an office visit with my Nurse Practitioner. She ordered a colonoscopy...
Thanks for the response, It definitely makes walking not too much fun!...
I have been on Humira for about six months now. About a week ago I noticed the muscles in my legs were starting to hurt a little but contributed it to riding a bicycle for the first time since last...
I have Tri-Care current ran by Unitedhealth and they will not cover any of the infusion drugs. My doctor fought with them so several months and they would not budge. Had to go with Humira....
That's strange, I had my injection yesterday and like you I have had only have a little red dot of blood but this time I had a two inch stream. Guess it's OK....
Today was our first really warm sunny day we have had since I started taking Humira (December of last year). I know there is a warning about using sunblock, but I was only in the sun about 15 minutes...
I am going through that right now! I usually get bouts of fatigue once every two or three months that lasts for maybe a week, but this current one has lasted about six weeks and no matter what I do...
I have been in the same situation as you are. Diagnosed with Crohn's, took some meds, all symptoms disappeared so stopped taking them. I felt fine for about three years then the symptoms came back...
I was in Viet Nam but did not get diagnoised until 41 years later, too bad Crohn's is not on the VA's list of Agent Orange diseases....
You need a second opinion. I went for years with the only symptom being extreme fatigue that would come and go sometimes for month sat a time. Only after losing twenty five pounds in less than two...
I've been on Humira for about 3 months and had very bad fatigue around week five. Lasted for about two weeks. I still occasionally get fatigue especially the day after an injection....
I have been on Humira for only two months and have gained about five pounds in the last two weeks. I believe the weight gain is due to me experiencing extreme fatigue so I am no where near as active...
Welcome to the Forum. Yes Crohn's is thought of as a young person's disease, but I was not diagnosed until I was 62. I'm now 66 and have been on Entocort for a few months and now going on Humira....
Thanks, I'll look into that....