My last colonoscopy was 8 months ago and not sure if Medicare will cover another one yet. I did have a CT scan and it showed 2 new polyps which were in a different area. I am wondering about a...
Can you also get crohns in that area? My right side has improved since my remicade started 6 months ago and 6 MP 3 months ago but my lower left area near the waist still hurts. Very bad pains for...
After 2 yrs. of looking for answers I was diagnosed with crohns and ulcerations all over (as he told me) On Remicade since Oct 2018 and 6MP for the last 3 months.. The only time I am in pain (BAD...
The Derm Dr said maybe i should stop 6MP and see if it goes away but not sure if I am supposed to just stop it...
Started 6MP on 12/22. 3 days ago I developed itching and big round bumps that dont . Now my face, scalp also itch and my lower legs but no rashes yet. (sort of like little pricks) GI Dr had me go to...
after I posted my reply, I did wonder why al my other ulcers didn't show up.. I will see what my Dr says since its something that didn't show up last year. Thank you and happy holidays to you and...
I think you may have just answered my question. I went back to see the report and it said that there were a few ulcers there and biopsies were taken. So I am assuming these are the ulcers that he...
Just had a CT since its been 1 year. Something new showed up but don't think its really an issue? Wondering what the Dr will tell me or if he will want another colonoscopy right now.. Had 1 5 months...
I forgot to add that ever since I got Crohns, when I pass gas, it is a different smell and also get worried that I am bleeding inside somewhere.. Really dont understand why but never see blood or...
I had a few transfusions from rectal bleeding due to coumadin and know all to well the smell of blood. Since I have constipation with crohns I take linzess. When I move my bowels its all dark brown...
I do want to say thanks to all the moderators and members. I get more facts and info then from the dr's.. I really dont think the Dr's know as much as the people who suffer from this because when I...
The pain is right in my waist from the middle all the way to the left and then up the left side.. Took Linzess so I know its not constipation. Also have a thumping feeling.. The Dr said I have 3...
I also am seeing a pain mgmt Dr but for a back issue.. Therapy and injections.. With both conditions would it be easier for him to prescribe or because of Crohns he will not? Not sure if I should ask...
Has anyone ever asked or considered a resection just to feel better? This is the last thing people would want but the dr's dont give me anything for pain with is every single day for 2 yrs now. They...
How long were you on it before you noticed a difference? This is my 3rd day.. Did it make you tired, dizzy at times? I take it in the day time, may have to switch it to night.....
thank you guys, i just took my first pill.. Has anyone lost hair which ls listed as a side effect? I dont mind a few strands but people on Chemo loose "patches" at a time and just falls out... Feels...
I just had my 3rd remicade infusion Nov 2d.. My Dr now is adding 6MP 50mg I think. I start taking it tomorrow and he said I may have to have a CBC bloodwork done every week or 2..(starting Monday) Is...
Seems like many here have had some type of surgery or resection. Curious how many years did you have crohns before surgery. Also, how many years have others had crohns and didnt need surgery yet.. I...
I went to an urgent care walk in facility. They did a swab of Strep (negative), tonsils are find and no signs of inflamation. Also, he didnt see any white patches.. He then did an x-ray because he...
i just posted above your topic.. Asked the same question with remicade and trouble swallowing and it hurts when i swallow.. At times I wonder if its my glands or tonsils.. This started between my 2nd...
I have been having trouble swallowing and it also hurts when I swallow.. It doesnt feel like its my throat but right before the actual throat pipe begins.. Had this for a few weeks.. Can this be from...
I just had my 3rd Remicade infusion. I have tried Pentasa and Prednisone and none helped.. My Dr said to give it more time but there are those days that are really horrible and its not like you can...
Has anyone been given Opioids of any kind to ease the pain or if it helps? I know about the constipation with those and that is also part of my problem. I take Linzess which helps and there is also...
I am a shareholder of vivus. They are in stage 2 of clinical trials of Tacrolimus. They are targeting the Pulmonary Hypertension market with this drug. I was told from the company that they may try...
fwiw - Its nice that there are a few "regular" posters here whether they are feeling good or not..I got some useful feedback since being diagnosed with crohns. I posted on the "Heart disease" forum...
You can be tired because it also lowers your heart rate.. happened to me as well which is normal...
Hi Mark, just to coment on Amiodarone - My dr put me on that for Arrythmia and I ended up in the hospital because i was loosing weight and falling down. Diagnosis was Hyperthyroidism which is a side...
Went to my GI Dr today, in addition to remicade (had 2 infusions so far). He wants to also add 6MP. Has anyone ever wondered whether to just suffer from Crohns or risk and suffer from potential side...
My primary also then gave me betapace since i didnt want amiadarome.. Not sure if i should take that either since the other dr disagrees...
I had a heart attack (left vertical) 29 yrs ago. I was put on Amiadarome for a few yrs for palpitations/skipped beats but have stopped it for 9 yrs since it gave me hyperthyroidism. I now have a...
I am also new to crohns and had trouble getting my insurance to cover Remicade or Humira. Now I have it covered.. I did contact Janssen Pharma and they offer patient assistance. You may be eligible...
Also, I am on Coumadin, Plavix and ecotrin. I have only had bleeding twice.. But this is also a concern of mine...
Coincidently I go for my 3rd infusion in another 3 weeks, Just had my 2nd one on Monday.. When you had your reaction on the 3rd, were you give Benadryl prior to the infusion? I get that and 2...
I told my Doctor if I was able to live with a feeding tube instead of eating, I would not be as bad.. I am still learning about what foods bother me..I actually am taking laxitives because once food...
Yes, I did the enteroscopy because of where the pain was located. Everything was negative so they decided to do another colonoscopy at the same time and then spotted what looked like Crohns In the...
There is another test I had called a "push" endoscopy also called "push" Enteroscopy. This is almost like an endoscopy where they look into your stomach but only it goes further down where a...
Hi, they finally found it by doing a colonoscopy. He showed me pictures and the report saying he "thinks" it may be Crohns.. I had about 8 different bipsies and a few types of blood tests down and it...
My Dr's ask me and I tell them the truth. The best way for me to describe it is a combination of geting kicked in the balls and someone shoveling a bat up my rectum.. Also the feeling of mice running...
snappy, you have been on Remicade for 12 yrs? How long did it take before you noticed it was helping? I just had my 2nd infusion yesterday and feel nothing. Like I didnt even have anything.. Was on...
Thank you Ides for your reply. I do have a defribulator and heart disease but felt fine until a week after the remicade.. The feeling is usually at rest but at times when I am doing things.. My...
Hello, I am a new member here who was recently diagnosed with Crohns and a lot of patchy ulcerations. I had my 1st remicade infusion 2 weeks ago. Has anyone had chest pain or heart issues? Also...