Thanks for the feedback guys I really appreciate the responses and different experiences. It's not an anemic issue as they tested my blood for that. I am on remicade every 8 weeks, but I think I'm...
For the past 1.5 years I have been having severe leg pain at bed time when my legs must be still. Specifically in my knees (sometimes also elbows). It feels like they are on fire, and I must move...
I can't scientifically break it down for you, but Ativan- and benzos in general- slow down your heart. I would suspect it had something to do with that. It is wonderful that you have found something...
So I'm up right now unable to sleep because I'm in intense pain and this infomercial comes on. Usually I shut these things off, and tune out (quite literally). But they started talking about...
I'm no doctor, but I was having a flare up a few weeks ago. Only thing I had around at the time was two year expired Entocort (intestinal steroid) and wasn't sure if it was safe to take since it was...
I feel that the title of this post is very misleading. We are all aware that having surgery does not rid ourselves of this terrible plague. I remember when my doctor gave me the choice, and he...
I wonder what my MD will say when I tell him I'm taking LDN now and I want off the Remicade. When I brought it up 6 months ago he wasn't enthusiastic at all......
I don't know. I started LDN about a week after one of my Remicade infusions. Didn't seem to interfere at all. I know the LDN is working now because usually I start getting flare ups 6 weeks after an...
For the past two years I have been on Remicade every 6 weeks. Hesitant at first, I had to agree to the toxic drug because I had no alternatives and was in excruciating pain and my life was a wreck. I...
Can we get some feedback from HW members on this? Anyone try this out? I'm curious to know what effects, if any, it had. Wolfie...My GI didn't want to touch the LDN thing either, so I went to another...
Ahhhh...it seems like only yesterday when I came across the decision of where to go when nothing was working. I considered surgery, and came very close to it, but remember this is not a permanent...
Can't speak for Imuran, but I have been on Remicade for 2 years now successfully. It has totally put me in remission with little to no side effects, and while I am very happy about this, I am...
Has anyone heard of Helminthic Therapy? Or more precisely known as hookworm therapy as a cure for Crohn's? I just recently read a few articles online about infecting yourself with this and supposedly...
What state do you live in? Sounds like you need a lawyer......
Never took Pred so cant help you there, but I was on Entocort for quite sometime when I was first diagnosed and the mesalamine would not help. Entocort worked great for me, the only problem is these...
Yeah alcohol def makes it worse. Had a beer the other night and could not shake this burning stinging pain in my gut....
Is anyone prescribed anything? I was thinking of asking my doctor for adderall or something to help me operate....
Has anyone been prescribed anything for the drainage of energy this disease puts us through? I get so tired and need extra rest throughout the day that I was hoping there was some kind of medication...
The problem with Humira is that I have severe needle phobia. I can barely take them putting the IV in me every 8 weeks. I just dont think I could handle giving myself a shot every few weeks....
I started Remicade in June of 07. It worked instantly and I continued to get relief from 5mg at 6-8 week intervals. Life was finally normal and I could eat whatever I felt like, whenever I felt like....
Ranitidine is all you need. 1 pill a day will knock your heartburn out, it can also help with burping....
I see you're from Seattle also. Where do you get treated? If you need a doctor referral I have a really great GI. I hope you feel better soon....