About the last 3 times that I have given myself my Humira injections (I use the pen) I have watched the little green thing go all the way down so that I know that the injection of the medication is...
I have never had any problems with any kind of flu-like symptoms with my Humira. I can feel wearing off though. I know when I need another shot because my joints really start hurting. I usually feel...
I take Levsin on occasion when I am having troubles. It definitely is a BIG help. Also, I am taking Wellbutrin. I have taken Lexapro and Celexa and had a BAD experience with them. If I didn't take...
I am completely understanding of the place you are in right now with your joint pain. Are you taking any biologics, i.e. Remicade, Humira, etc? I was having such terrible joint pain that I was...
I have had mouth sores like you are describing for as long as I can remember. My doctor thinks that I have had crohn's for quite a bit longer than I can trace the timeline back. Remember that crohn's...
Metallichic, Did you get pre-meds for your last infusion that has caused you all of this trouble? I just had my very first infusion today. My doctor only does pre-meds if you have been off of Remi...
Thanks everyone. If anyone else has any "tricks of the trade" to share, I'd love to hear them!...
I will be having my first infusion this coming Friday. What should I expect? How will I feel after the infusion? Will I be knocked out and unable to do things after the infusion or will it just be...
I am in the middle of getting my approval done. I think that what happened in my case is that my doctor forgot to send the stuff on to the people in his office that needed to get it. I called him,...
Tylenol is fine. I can't tell that it works much on me. When my cramps are really bad, I take lortab. You should also look at the kind of birth control you are taking. I was switched a little over 4...
Andy, I am in Richmond! Wow. I'm sorry to hear that you are having such problems. I recently went through the same problems with my GI. I lost all confidence in him because after months and months of...
My sedation wore off very early in the procedure the last time I had one. That was VERY bad news for me. I could feel the dr. cutting the biopsies! I begged for more sedation but they said that it...
I am getting ready to start Remicade. My PCP vaccinated me for pneumonia and tetnus. He wants me to have my flu shot in mid October. He has the view that I need to be as vaccinated as possible due to...
I have shaking in my arms and hands pretty much all the time, on steroids or not. It is so annoying. My doctor has no idea why it is happening. He has tested everything he can think of as to why it...
I have Barrett's Esophogus from GERD. I never knew that I was experiencing any kind of reflux until my EGD. My doctor was shocked! I guess my stomach pain was the worst so I just didn't notice the...
I am pretty much nauseous all the time. It is so hard to deal with. On one hand you feel like you are going to puke all the time but you know that eating might potentially make things better. I'm...
Ok, I'm getting ready to start Remicade. I'm actually really excited. I've heard so many good things about so many people doing so well for so many years after taking it. My doctor wants to...
Jenn, I'm in the same boat as you are. I'm 28 and single. No boyfriend. Most of the time I pray that some day I will have a husband and a family of my own and then I think the same things you said....
Thanks Brit!...
Bektold, My mom has the same situation as you do. She has MS. Her doctor believes it is one of the manifestations of an autoimmune disease in her system. She has some kind of prescription mouth wash...
Oh, yeah, and it also is very painful sometimes for me to do tampons. Thoughts?...
Brit, I know this might be a more personal question than you may want to answer but can you explain any other pain issues that you had other than during your period that might point toward endo? For...
I have to say that I have the same pain that you describe as like a hunger pain. That is really the only way to explain it. I go to my GI tomorrow morning and am going to ask about this pain and try...
Mega, I think probably most of us "feel your pain". By that I mean the pain of not having a doctor believe the amount of pain you are in due to the fact that they can't "see" any reason for you to...
I too have HORRIBLE cramps during my period. After my CD dx I talked to my gyno. We decided that having a monthly period would really continue to enhance my CD issues. He thought that it would be...
I used to use Aciphex until my insurance company decided they didn't want to cover it anymore. They even denied my doctor's letter. They said I had to try protonix. I just use Prilosec OTC every day,...
Thanks, Jenn. So many things are going through my mind right now and the biggest is my CD, of course. All I keep thinking about is what I would do if I ended up having to be in the hospital for...
I'm really going to need as much knowledge and help with COBRA as possible. I think I'm getting fired for my company finding out that I am looking for a new job. I'm in a major panic today. Some days...
I am interested in this topic too because I'm getting ready to start Remicade. I've recently lost 47 pounds that I really needed to lose. I really don't want to gain any weight. I know that sounds...
My joint issues are with my hips and my ankles. My knees sometimes hurt because the pain of my ankles moves upward or the pain of my hips move downward! My ankles don't swell really badly or get red...
NAP! When I was in college I lived for my naps! I miss being able to take a nap in the middle of the afternoon. Oh, that was such a great time. Look at it this way, if you nap in the afternoon then...
I spoke to my doctor about this exact issue today. My question to him was whether my joint issues and gut issues have some kind of correlation. He said that when your joints start acting up it is...
I always do prednisone and entocort together and stay on my full (9mg) dose of entocort while weaning off of prednisone. Then after about 2 weeks I start to wean myself off of the entocort. I have...
MMac, I bruise easily too. I have started to bruise a lot worse since CD happened to me. I wonder if there might be some kind of connection to the steroids? How has Remicade been for you? I'm a...
Pray for me that I get this new job! I hate my boss and my current situation. I get so worked up about things there and get so stressed out. I know that a new job can only be better for my health....
I am currently taking Wellbutrin XL. I had a hard time getting off of Celexa. I had major withdrawls. Once I had finally weaned myself off it threw me into a major flare with my CD. My doctor...
Thanks everyone! You have given me hope that I can get out of this BAD job and take a good one that will definitely be less stressful and more of a place that I WANT to go every day....
I have been using Biotin for about 4 months now. My hair loss has slowed but definitely not stopped. I am sure that it is my Pentasa doing it to me. I might have to ask for the RX Folic Acid to see...
I'm sure some of you have had this experience so, I'm looking for some help. I live in VA and I'm trying to get a new job because I HATE my current job. The job I currently have, I had when I was...
I don't want to have any more fatigue than I already have. I'm wondering if Humira is a better option....
If you have had allergic reactions to Remicade, have you ever had allergic reactions to any other medications? I'm trying to decide if I want to go for the Remicade or do 6MP or Imuran. For those who...
Gretchen, Thanks. I am usually the one that pushes her into the neuro's office. She doesn't like to dwell on things or let them get her down. I'm sure if she is going through a flare that her stress...
Hi! I am new to this board as I am a regular on the Crohn's Disease board. My mom has MS and was diagnosed about 18 years ago. Her symptoms have always been tingling fingers and no feeling in her...
SilentTears, I went through the exact same problem you are going through. I was in so much pain and it hurt so badly to eat (really anything) that I was feeling like I constantly had to vomit. It...