Oops... I forgot to answer... no they have never pre-treated him before and infusion. I asked about it at one point in time and was told that it was not necessary. :) Guess they might have been wrong!...
Thanks Nanners and PV for the posts.... Sorry to hear about your husband PV, sounds like you are both going through the ringer. From what I read a reaction to Remicade can happen up to 21 days after...
It has been almost two years since my son started Remicade. He had no reactions and responded really well to the treatment, but he was never able to go more then six weeks between infusions. He...
Hello to everyone! I have not posted in awhile. Life has been crazy! Tyler had his capsule scope on the 8th of Oct. We recieved a call from the GI wanting us to return to Boise ASAP. He said that...
Hi all! Monday was Tylers capsule scope.... Things are really bad. He has a very narrowed section in the middle of the small intestine and ulceration throughout the small bowel. He does not have an...
Hello to everyone /community/emoticons/smile.gif I just wanted to share what I have been learning in the last couple of months.... There is a good website www.spodylitis.org that has a lot of...
Patty, I just read this thread and i am so sorry you are going through this! I have been there and it is so hard to watch your child suffer. I hope that you are able to get the answers you seek and...
Good Afternoon! I was able to sleep until 8:30am, then a friend called to inform me it was snowing. I got up looked out the window and sure enough it is coming down, not sticking, but still dumping....
Thanks Gail. I am not going to give him the Imuran, the dr. has mentioned chalenging the reaction in a couple of weeks, but I will refuse that too. I have never seen my child get so sick so quick......
my son was first diagnosed with celiac - based upon symptoms. A really good book to read about it is Going Against the Grain by Melissa Diane Smith. In it she writes about Celiac, gluten allergy, and...
Help!!! I am not sure if I am doing the right thing.... my childrens doctors are about a 5-6 hour drive away and getting them to cordinate is so frustrating! Problem #1) My 12 year old had a bad...
Vicky, What your are describing sound like what my son has been going through... The GI had us give him large doses of MOM(works good at breaking stuff apart) to get things pushed through, and now he...
I just got off the phone with the GI, she said that it definitely sounds like a case of drug induced Lupus. We are stopping the Imuran, and she wants to do another capsule scope on 10/08 to check the...
We just spent another night at the ER and still have no answers as to what is making my son so sick. I was worried that he was having an allergic reaction to Bentyl, because he was dizzy, seeing...
We live in Rigby, ID... only 1hour from West Yellowstone...
I want to begin by thanking all of you that responded to my earlier post about my son and a possible blockage. We were able to finally start flushing things out with a lot of help from laxatives. I...
Thanks to everyone... he has been drinking a lot of water, and I have been giving him 1/4cup of MOM, but still no bm for the last 24 hours. He was hurting pretty bad this morning and had pain going...
My son has been in his bed sick all week... he was in the hospital last week. The ped said that he felt like it was a flu with cd... all of his blood test came back in the ranges they normally are,...
We did the prometheus test on my son and it came back negetive... a year later we did a capsul edoscope and it became clear that he has Crohn's. We are also in the testing proces for our youngest (he...
Thanks Vicky. I have been doing my best to get informed.. it is so much to take in. And it is hard to watch my son hurt. Today was a tough day. His SED rate is up so we know we are dealing with a...
I am new to posting so forgive me if I do this wrong. My son is 11 years old and was Dx with CD in May, although he had his first scope a year before. In July he was Dx with spondylitis. He is...